Hi!
Well, I may not be 23, but I still consider myself young! I'm 27 years old and have been diagnosed with rrms since september, and looking back, definately know I had ms for about a year before that. I've had one mri, and had one lesion, but it was on my spine. I've had two attacks (and more severe) since then, so i'm sure I must have more lesions by now. Actually, it was b/c I only had a lesion on my spine that my first neurologist couldn't definatively diagnose me with ms. But my second neurologist immediately diagnosed me, and she said I was the only case she's ever seen without a lesion on the brain - but i'm sure its there now. I've only been relapse free for a total of a couple of months for the last two years. But, I guess you are progressive, and experience everything differently. I don't really know about a lot about progressive ms and how it effects the body. Does it come on slowly over the years, or do you get hit with harder attacks as well?

Write back if you want!
T.

I was a 22 year old college student when I was hit - and hit hard. That may have been 25 years ago but yes there are younger people with ms.

Hi. I'm 24 and I just found out back in april that I have ms. It all started with hearing loss in one ear and then went on to the right side of my face going numb. I'm not quite sure how many plaques I have and I couldn't tell you what stage i'm in. All I can say is it all came as a shock to me b/c it doesn't run in my family and I don't know anybody with it. So you aren't the only young person with ms.

I'm only 24 and was just diagnosed 3 days ago but i've known in my heart for a while now. I have rrms not the pogressive type. I just wanted you to know that there are young people with ms out here now i'm glued to my newly acquired high speed connection and just surf the internet finding all the info. I can. I have to decide about meds, lifestyle changes, when to have another kid, all kinds of stuff. My computer is my new best friend

It sounds like you are actually suffering from a type of obsessive-compulsive disorder. Worrying about getting particular diseases is not very productive. Enjoy life now, do the things you want now. You might get ms or cancer or a brain tumour one day. Or you might get hit by a bus tomorrow.

I am have an obsessive compulsive disorder ....So much fun!

Well...It is nothing to worry about really...Maybe it is.

I am a perfectionist-although that does not mean I am obessisive compulsive. I do weird things I guess...Like I cant stand it whenever im dirty and my plate needs to be super clean when im done eating. Ive grown out of those tendencies a little because I made myself do it cuz I felt like an fool infront of everyone (and I didnt know I had ocd when I was younger.) I also have weird muscle things in my legs and neck...Its not a spasm but it always feels like I need to stretch it whenever I think about it. So I stretch it and I look funny--i never do it in public. Also, when I read a book, I have to reread the same page over and over again until I remember every word perfectly...Its a pain...Especially when I took ap us history and ap language and composition at the same time. Another thing I do is that I get really scared whenever I may think I have something...Like a disease or something of that nature. I think about it nonstop...And I cant help thoughts that come into my mind at all....Same thing with depressed thoughts... I cannot avoid them when they start...It just keeps coming obsessively and I cant do anything about it (without medication.) as for the disease thing, I think about what it could be-making it much worse than it actually is- and when I find a computer, I have to look things up--because the internet is my source to everything nowadays. There a few other sypmtoms that I have from ocd, but I cant think of them at the top of my head. Good luck to you and I hope I helped in some way (not quite sure I gave u any info at all! But thats ok

I was diagnosed with multiple sclerosis over a year ago at the age of 19, and I had my first episode at the age of 18 so young people do have problems with multiple sclerosis too. I have had 2 or 3 episodes so far, but otherwise I have been living a normal college student life luckily. If there are any other people out there my age it would be cool to talk about anything really, I don't think I have ever met anyone with ms, especially my age.

I thought I was the only person who felt like this...I was only 10 when I was diagnosed with ms...None of the doctors knew what it was but once they took a few mri's it was confimerd and they were very confused. That was then this is now...And i'm 19 and i'm living, if its possible, happily with my ms.

If you need to talk I suppose you could write back, from what i've experienced so far it's not such a bad thing

- luigi

What scares me the most is that I seem to be the oldest one, i'm 29 years old, but I was diagnosed at 26 and when I think back and analyze my health I think i've had it for about ten years now. I have the remitting-relapsing form of ms and I still have to learn to live with it, looking for information in websites like this because the local support isn't really helping. I know that good nutrition and exercise helps a lot, personally yoga does wonders for me. I'm not a very religious person but I am spiritual and I have faith that I eventually will be fine, and I try to be positive even though it's really hard when the pain is unbearable but instead of worrying I try to learn as much as I can about it I just make sure I don't obsses over it so I don't get depressed. Anyways thanks for listening and if you have any questions you can certainly contact me.

Hi, my name is cecilia and I was diagnoised with ms at 19. I am 23 right now and I can say ive been lucky. Ive only had one episode (my left side went numb and I lost my vision in my left eye). This was the only episode I have ever had. Once I got on my medicaition, betaseron, ive been doing great! I feel fine, the feeling in my left leg pretty much came all back and even some of my vision came back! Trust me, going blind in one eye was so scary! :cry: and all that happened 4 years ago. To all those with ms, keep a positive attitude do everything you can to bring positive energy. The mind is so strong and amazing, its all on how you train it. I truly believe that. Be happy with what you have and live each day as if it was your last! I try to do that. I am still pretty active, I have my days where I dont feel my best, but at the same time... That can really happen to anybody. I do admit, I am scared myself.. I really am... Who knows what lies in our futures... But its important to be positive and stay strong. :d

Oh, wow! I'm sorry I have not had a chance to respond to anybody's message(s) lately.
I'm sort of happy that I am not alone in this, but sad because I would not wish this disease on anyone.
I hope everybody is well, or at least as well as possible. :)
since the last time I was here I have been getting new symptoms such as sharp pain in several areas of my body, trembling, slurred speach, memory loss, and my gait is not as good as it used to be. I am considered impaired by my neurolologist, but disabled by my psychologist. So I don't know where I really stand there.
I am considering trying to find a new neurologist because I feel like she really does not get the fact that I am in pain, and I am getting worse. I guess it may have to do with me being on dshs, but that should not matter. Eh, i'm on a rant, sorry. Xd
anyways, I will try to be more active and reply to you all.
Thank you so much for coming forward with your stories, I really appreciate you all for helping me. :)

I know it isn't nice to say I am glad i'm not the only one, in a perfect world no one would have ms! Sometimes I feel I am going through this all alone! No one in my family or even know for that matter as ms. I was diagnosed last september with remitting-ralapsing ms. I am 26 years old and I too have probably had it for 10 years. All through high school I had all the symptoms but none of my doctors could place what I had they all said I was healthy! I sure didn't feel healthy! I had sinus surgery because I had lost part of my vison in my right eye. They said it was because I had a sinus infection. They kept telling me I had bells-palsy (about 5 times) because my right side of my face would go numb. They finally did an mri when I was 24 because of the bells-palsy and they found the lessions! It took a year to diagnose me. I was kind of relieved when they told me because there was finally a reason for all the wired symptoms, it wasn't just in my head. I have been taking avonex intramuscular injections since september but it seems though I am having more and more problems I don't seem to be getting better! I have kept a good attitude but at times I get very discouraged! About a month or two ago I had my first migraine headaches off and on. I am currently having problems with stabbing pains in both of my ears and now they have started to ring. Well, if anyone would like to talk it would be nice to talk to someone else going through the same thing!

Im 16 years old and was diagnosed with multiple sclerosis several months ago when I was only 15 years old but my doctors told me that my mri's had shown that it looked as if I have had ms before I had shown any primary symptoms of it.

Jillianna

Is 29 still young :wink: I was diagnosed with ms when I was 24.


I was diagnosed in 1997 with guillan barre right before I was to start my first year of college. It wasn't fun having to use a cane for the first month of school but I quickly got rid of it :)

in 2000 I had another attack and was diagnosed with multiple sclerosis. I don't take anything for it as I don't want to put anything into my body until we are finished having children. I did try copaxone a few years back but I had bad site reactions and stopped. The once a day thing wasn't for me anyway.


I have to say that the best cure for ms is pregnancy. We had our first child (lucas) in january 2004. I felt almost 100% while I was pregnant my ms symptoms slowly started wo come back about 7 months after having luke and i'm now off on sick leave due to extreme fatigue caused by my ms (a tough decision but it's helped a lot).

I could go on forever but i'll top there.


Nice to read everyone's stories....Helps knowing that someone else knows how I feel :d

Hi
i am a new user to this forum. I had my first attack when I was 17 and it was pretty severe. It basically paralyzed me. After that my left side returned to normal, but my right side had a severe intention tremor. I was diagnosed at 18 when I had optic neuritis. I then had an extremely severe attack, which basically destroyed the whole of my left side. The movement has come back, but there is no coordination. I can no longer walk properly either. I am using voice recognition to type this post. I think I have relapsing remitting, but I may have secondary progressive. I have seen about 10 doctors and they are all pretty baffled. I was wondering if anyone in this forum, had an intention tremor and if they knew of any way to help with this? I'm currently on chemotherapy, but will probably start new treatments in the coming weeks. Like a few others in this forum, I do not know anyone with ms.

Doesn't it feel good to share your stories. I can't believe there are so many of us out there that are so young, and by young I mean anyone from 10-75. I'm about to turn 25 on monday.

Unfortunately, just last tuesday I was hit hard again, this time I was numb from the waist down. I am taking steroids in a temporary iv for 3 days, tommorrow will be the third day.
I am still feeling somewhat numb, and I am walking very funny. My neurologist warned me I may not be the same after this. I'm afraid I will have to get a cane for my new bad days.

Mehra 66: I was numbed from the waist down when I had my first attack. I had to use a cane for a little bit but not all the time. The cane lasted for about 2 months and then I ditched it. I haven't used one since and that was in 1997 :)

I'm new here....I am 33. Was diagnosed with ms when I was 26. I couldnt figure out what was wrong with me. We all went to a club one night and after a few drinks, I felt tired, but strange tired like I never felt before. My legs felt extremely weak, and I started to walk funny.....That and the fact that I was buzzin gave the impression I was completely sh*t faced. :roll:
anyways a couple of visits later and a spinal tap from hell, I was diagnosed. I am in denial however cause nobody close to me knows about this (i realize it's stupid of me) and I choose a quick fix like prednisone (which I am on right now but tapering off cause I feel like i'm getting better). I've tried everything vitamins, exercise, not being as stressed out, no more coffee/chocolate, but these only help a little bit. I hate to say this but the only other thing that somewhat helped was a couple years back I stopped eating as much and stuck with non-fat foods, no milk, lots of chicken etc etc... Not only did I loose some weight (always a good thing I guess) but I started to feel better... I'm going to give that a shot again. Good luck to everyone and keep fighting!!