Multiple Sclerosis Forum - Doctor's Appt. to Discuss Test Results

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Q: Doctor's Appt. to Discuss Test Results

asked by: kathy_k on June 7th, 2004

New User

Hi:

i am seeking advice on specific questions to ask my doctor when we meet to discuss my tests results. I had a lumbar puncture and my spinal fluid was tested for ms. I am having a re-occurance of a paralysis in my left hand and arm. Originally started 4 years ago. Lasted 3 months then went away and now has returned since the end of march 2004. I was also reading about guillin barre (which my father had) and my symptoms aren't identical to someone w/gb - there are some similarities, but no one has even mentioned the possibility of that. 4 years ago I had a spinal and it was negative for ms.

I'm not at all satisfied with the care and service I have been receiving from my neurologist. I have had to follow-up each time I need help at least twice (approvals from insurance, confirmation of appt. Times at drs. Office and hospital for procedures). I also had spinal fluid leakage after the lumbar puncture and wasn't able to get ahold of my neurologist for 6 hours after my initial call. I had to call his office 3 times before he called me back and this was the day after my procedure.

So when I meet with him, I need tips on how to get what I need and let him know my care is unacceptable. I am definitely thinking about changing doctors right now but feel a little scared and would need to find another neurologist first.

Thanks for all advice

Replies(1)

Mehra66

replied on July 2nd, 2004

New User

My advice would be to get a different doctor if you are not satisfied. That makes all the difference. And secondly I would make a list for the doctor stating all new and old symptoms and how severe they are. That is what I do because I have terrible memory problems. And sometimes it helps if a friend or relative/spouse goes with you to help you remember and to make sure you are getting the care you deserve. Plus it seems to make the doctors more adament about helping you because they don't want to look bad in front of other people. That is why my mother comes with me to almost every appointment, it's good moral support. I hope this helps and good luck.
Polly

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