I live in the state of michigan, and I recently was asked to join the community advisory committee of the epilepsy foundation of michigan. (there are other states with one to, and there is the national epilepsy foundation also.)
its a group of about 20 people through out the state (the lower half) that are either the one with seizures or they have a child that has them. The people range from about 17 to 50's (?).
The purpose of the group is to help the epilepys foundation figure where there services are needed most. Like the camp for kids, semiars on the treatments of epilepsy, information, and so on.
It was brought to the groups attention that a survey was done of logos of different companys and groups (ex: cancer society) and very, very, very few people knew what the epilepsy logo was. Or what they (the epilepsy foundation) do for people.
We were the asked to do some home work, and find out from others who have epilepsy......
1. Have you ever heard of the epilepsy foundation???
2. Do you know what the logo looks like????
3. Do you know what services that they offer???
4. Have you or someone you know ever used the epilepsy foundation before???
5. Has your doctor ever told you about the epilespy foundation or for that matter any other source for help and info????
6. Do you know that november is national epilepsy month???? Where did you learn about it???
7. What services do you think our the most important for them to offer???
8. Do you know that they will help people form a support group in their area???
9. Have you ever been to there website????
Www.Epilepsyfoundation.Org
this is the national website (theres tons of info there)
and the phone number is 800-377-6226
your input is very appreciated....
Thanks
jill
p.S. If you have any questions just ask i'll try to answer them as best as I can