Appendix were removed at 15 years old, I live in the uk, I have an uncle with cmt , could my problems be related to his illness, cmt is something I know nothing about.

Someone at least give me a clue as to why its hurting my hands when I urinate, I have been to my doctor in the uk and she says it is not possible, nerves do not work in this way, pain in your hands relate to a problem with your neck.

Can anyone point me to web sites where I can find any more info,

please help, this is a genuine case and i,m desperate,

thankyou

chris palmer

I had surgery for appendicitus about 1 year and a half ago and I realized shortly after the surgery was done and I was fully awake, that my stomach was experiencing a lot of pain a clentching sort of feeling. The doctors and nurses said that it was a gas build up inside of me and told me to eat lots of fibre, so I read into that, but it hasn't gone away and i've been eatting lots of fibre for soo long. I would expect something like that to be gone by now but it's not, but my doctor did a check up and said that it was scar tissue left in my stomach that couldn't be removed and when it sticks to my bouls it creates the pain that I experience in the morning, noon and later evening. Though it happens during school year a lot but rarely over summer vacation which has got me stumped. I would like to know if anyone else is experiencing simular symptoms and if so post please. It would be a nicer feeling to know that i'm not the only one. Especially since my doctor said it could get worse and it has and it doesn't go away. It strikes me odd that they don't have a medication for any of these after effects that so many of us are receiving.

Thank you

:?:

I too have had trouble walking properly after my operation I have been off work for 6 months now after several infections and abscesses I now have a large blood and gunge mass attached to nerves in my groin and lying underneath my scar. I have been told by my doctor that this could take upto two years to disappear and even then there is no guarantee that iwill be able to walk properly.

hi chris,
I have got exactly the same symtoms after an appendectomy in 2001 in sydney. I have had 4 operations to divide adeshions but the pain still continued. About 2 months ago I trialled a stimulator that was fitted about an inch above the scar in my stomach to see if it could help with nerve pain. I get a lot of spasm pains since waking from the operation. The tests were very successful and a permanent stimulator will be fitted in an operation in december 06. During the trial I was able to sleep all night for the first time in years. I will keep you informed of the progress after the permanent one is fitted. I am hoping it will relieve most of the pain so I can have a better quality of life.
Regards,

rossco

My husband has suffered from debilitating chronic nerve pain since an appendectomy 2 years ago. The pain is so severe, he can no longer walk without a cane and only very short distances, and spends the majority of his day in bed with an ice pack and opiate pain killers. We'd love to hear more about Rossco's "stimulator" treatment, or any other remedies out there.
Thanks so much,
tamara

Hi , I'm from Malaysia. I got appendix prob when I was 12 yrs old and I did surgery to take it out. Now I'm 28 yrs old. I got same prob as yours last yrs. I went to Hospital but nothing much they can do. They just provided me a with few type of pills such as paracetamol and antibiotics. After finished all, I still have the same probs. So I went to seek for other medical treatment alternative.
I went to see homeopathy practitioner.
Homeopathy has a very safe type of medicine. You can get xplanation or info on homeopathy from internet.

Before I see this homeopathy practitioner, I thought of death. I thought I got this leukaemia. Bcz the symptom i had , all headed towards this leukaemia.
After checking through their machine, they found out that I have prob with my blood circulation. All bcz of spleen low function, that blocked my blood vein. After sometimes, my blood getting stucked , my white blood gets more then my red blood. Then, they give sweet pills that I can suck in my mouth to cure my spleen. The function of the spleen is to release clog in the blood vein. After few days, I was getting better. Then I went to see the homeopathy practitioner again, to get medicine to release all the wind inside my body. Now I feel more energetic and got no probs at all. I advise u to do the same, just go to homeopathy practitioner!!

Hi,

I didn't have an appendectomy, however I had a routine gallbladder removal in June of 2006. Afterwards I have had around 20 hospitalizations for severe right-side pain, vomiting, other digestive problem, kidneys stopped working properly and I developed a mysterious lesion on my right lower lung (that wasn't there before surgery).

I have been to numerous specialists, hospitals and under the care of a gastro specialist, unfortunately there is no answer to why I am so sick. I can not work and have been unable to finish my MBA degree, which requires only one more class, in fact I was dismissed from MBA program, because of my illness and inability to keep my grades up. Before my surgery I had a 3.5 and a promising future. I now live in poverty and live with day to day pain. The only thing that has gotten me through this is love of my family and believe in a higher good.

The answers the health community have for me is to send me to a pain clinic and give me non narcotic pain meds and cortisone shots, which do not work. (I'm terrified of taking narcotics, because becoming addicted) I have told my pain doctor that I'm still in pain and my day to day living is affected, to no avail. I can say I'm not as sick as I was, the daily (almost every minute) vomiting has subsided and my pain is not as severe.

I think as more time goes by, my body overrides the day to day side pain and I have several good days a week, which I try to take advantage of by getting out of house ect...

Take care of yourself all of you on this forum and know that you are not alone.

Pam Thompson

As after thought, I did find out from a home health nurse who took care of me for awhile, that the surgeon who did my surgery has a reputation for "ripping out gallbladders" (as quoted). She also told me she used to work with him in the surgical room, but quit because of his surgical practices. This surgeon came highly recommended to me from my in-laws, so for those of you who are having surgery double, triple check your surgeon's reputation.

I had my appedix taken out 3 months ago and there is a pain in the same place, but it is a shocking,pinching pain and it comes and goes on a regular basis. I have been to my doctor, and to the emergency with this pain and they have done blood, and urine test.All they tell me is that the tests are normal and that it could be nerve damage or an abcess.Oh my God can someone please help me and let me know if anyone else has this and what to DO!!!! Help please

I have the same symptoms yet my stomach will swell within minutes to the point of looking six mths pregnant. I have the same sensations in my stomach but it's more like a twisting feeling. I have been to multiple doctors and hospitals and yet they all tell me the same thing. All of the testing also comes back fine so they don't look into any further. I only wish there was someone out there who could help me, I am a single mother of two, and they are suffering just as much as I am.

I had my appendix removed about a year ago, i just recently starting feeling pain about 2 inches below my appendectomy scar...the pain sometimes radiates towards my back (on the right hand side) and now I have just started to feel left perineum pain which comes and goes which sometimes radiates to my left leg...I have gone for numerous ultrasounds on my abdomen and testicles, and had urine and blood tests done.

I had my appendix removed 48 years ago and still I feel pain on my right side at the same location or around it or higher up to ribs. So an operation leaves its mark for life!!! thats why when I was enlisted in the army the first day I was asked whether I had any operation!!!
So we have to live with it!!!!!!!!!

For years I thought I was one of a few people who have experienced this medical anomaly, but clearly this is a more frequent occurence just based on my limited web search. How come doctors don't take this seriously, or even acknowledge that the pain could be from an appendectomy?!?!? I was told once that it wasn't a "quanitity of life issue, but a quality of life issue", well I think we all deserve to have a good quality of life. Stay proactive & don't let physician's dismiss your problems!

Has anyone tried any unique treatments that have been helpful?
Pain meds, lidoderm patches & nerve blocks have been of little help (but could work better for some of you). Haven't tried a TENS UNIT yet, which may be effective. Also, Pevlic Physical Therapy was mentioned to me the other day... not sure if that is a viable option.

i just had my appendix removed last week and i a m starting to feel the same symptoms i felt the day i checked myself into the emergency room and had the surgery!! it is like a twited feeling i feel very bloated and have back pain. and from reading all these letters it looks like i am in store for more pain for a long time!

JennJenn... you are only a week out and still recovering, so don't get too pessimistic yet. But if you continue to have pain, then go back to the doctor and address it then.

I hope you recover well (without lingering pain)... take care!

hi people .... i need your help. im 17, had my apendix moved about 2 weeks ago. since than i have pains, in my stomach at times, at times towards the bottom right side of my stomach and at times in the left side as well. i also have pain occuring in my lower back at times, mainly in hte right but at times in the left. in addition, i also have pains in me chest at times, but only for a small amount of time, i also have pain occuring in my testicles mainly my right one. i also have pain occuring in my bum cheeks, i know strange.

is this normal, cause i am getting really worried, that something else is wrong. im getting really paranoid. can anyon please help me.

thank you, shakar

I have been doing a crazy amount of research trying to find out what may be wrong b4 my appy w my surgin next week. I am quite dissappointed to here how common these pains are and that all docs seem to be dismissing them...its really irritating.
It has been 3.5 weeks since my lap-appendectomy and my symptoms include:
-occasional shortness of breath
-severe shooting/pulsing pains that come and go on my lower right abdomen, where the appendix used to be that shoot into the right side of my groin and rectum. (this pain is slight when im moving around but seem to intensify when laying down.
-I also get random achy/stabbings above my belly button and left side.

***my conclusions include possible nerve damage to ur pudendal nerve/ it being entrapped by ur sacrospinal and sacrotubular ligaments, or
***possible twisting/entaglement of the cecum(end of large intestine, above where appendix was attatched) and or ur intestines.
**or potentially but not appendix related kidney stones. the pain sticks to one side and shoots thru from the pelvic region thru the groin

anyway, i'm still looking and at least i have some ideas to bring to my surgane to c what he says!
thanx