Misfiring / Jolt Feeling In the Head Posted: 05-25-04 23:34pm
I've had epilepsy since I was 17. I was
diagnosed with juevenile myoclonic
epilepsy. All was well until recently -
went for pre-conception counselling
because I want to try for a baby so I took
the decision to try and change my
medication from epilim to topiramate but I
had really bad side effects with
introducing topiramate along side the
epilim. I was weaned off the topiramate
and now just taking epilim again.
Since having these bad effects, i've
started having what I think are mild
seizures. The only way I can explain it
is that I can feel misfiring in my head -
it only lasts a second but I completely
lose my track of thought and for that
second, I can only see black. I very
quickly feel back to normal but it feels
like such a jolt going through my head, it
always leaves me with my heart pounding a
little bit through panic because I don't
know when they are going to happen.
Sometimes I will have quite a few in a row
and if I don't stop what i'm doing and
rest, then sometimes I go on to having
jerks.
Does anyone else have expreiences of this
misfiring or jolt feeling in their head?
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Midnight
New User, Becoming EHEALTHy
Joined: 28 Jan 2004 Posts: 33
Posted: 05-26-04 07:18am
All the time. It is scary, annoying,
embarrassing, I can think of a lot of
words that come to mind when it happens.
Especially when I am talking to somebody
and feel like I am zapped out of my train
of thought.
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sami_1982
Experienced User , Rather EHEALTHy
Joined: 13 Dec 2003 Posts: 200 Location: Australia
Hello Posted: 05-26-04 09:30am
Hi,
i know what you are both saying. When I
was taken off my normal fast release
tegretol and put onto tergetol cr the slow
release including the epilim I would get
these weird sensations. Like statick
electricity in my head on a particular
spot. I would have to stop what I was
doing it would feel like I was breathing
from the outside in and that my heart and
everything was going backwards. My vision
was the worst. I would be on the
telephone taking down a note and all a
sudden I would phasein and out with my
sight. From left to right it also felt
like I was looking inside a tunnel and
that I couldnt see what was going on
either side of me then it was scarey the
first time, because you are aware of it
all then it would get more violent and
make you feel like your eyes were shaking
from side to side in your head but your
eyes wernt rolled backwards. Still
keeping in mind the statick feeling in the
head and down the neck a little. It was
kinda like I had frozen and what seemed
like forever was only like 10 seconds but
it would always happen when I was writing
and now it is still hard for me to focus
on a small object. Like being cross eyed.
Well thats how it felt for me.
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MickeyFan
Experienced User , Rather EHEALTHy
Joined: 28 Jan 2004 Posts: 73 Location: Algonac, Mi.
Thanks: 1
Thanked:0
Posted: 05-26-04 21:14pm
Yeah, it happens to me too. But the only
way I can explain it is a static rippleing
feeling in my head. And if I close my
eyes I see jagged lines.
And sometimes I get a killer headache
afterwards.
