Spontaneous Pneumothorax X3, Pleurodesis On Both Sides Posted: 05-25-04 16:05pm
Had tension pneumo '99 with blood pressure
hardly registering, fixed with chest tube
until 6 months later. Another chest tube
and lots of nerve damage from the scope
surgery. Had minor blow outs at weak
spots on right lung continuing after
surgery. '02 had major tension pneumo on
left side this time, inserted chest tube,
left it in and sent to anchorage.
Pleurodesis done on left side with a
longer hospital stay this time. Since
that time I have had daily pain usualy
about a 5, with recurrent blebs popping
and usually just go to er where they iv
me, give pain meds and send me home. I
was using annexia to control the pain just
so I could go about daily life. Finally
the doc ran out of ideas except to remove
the pain meds and put me on celebrex 200mg
daily and tylenol which I end up taking
too many of just to try and stop the pain.
Ct scans, xrays show no pneumo's just new
blebs forming on surface of lungs where
they had removed them before. I get
horrible shooting pains under my shoulder
blade of left side and sometimes I get
really short of breath, and almost pass
out. My normal bp has always been 90/70
but the last year it has just about
doubled. Specialists have done mri's
along with other tests and found nothing
of significance they say and send me home.
I am so tired of being in pain all the
time,and mostly have to sleep propped up
in bed or I feel as though I am
suffocating. I feel as though most of the
doctors I see either give me the
runaround, no straight answers, or try to
pass the buck to someone else. Feeling at
the end of my rope, it's affecting my
life, my childrens lives and everyone
around me. Everyone keeps mentioning
cancer which doesn't help the anxiety
level either. The latest med was 40mg of
prednisone daily along with xanex for
anxiety. 3 hours after taking the
prednisone my heart was racing out of
control, the pain was unbearable and I
really thought I was going to die. Back
to the er where the nurses said prednisone
does not cause that, it was all in my head
and shot me full of some type of sedative.
It did nothing for my breathing but
basically made it so I cared nothing of
the pain or life or anything. One of them
said I was nothing but a drug seeker. If
I accomplish nothing else, I wish to be
rid of this constant pain. If anyone out
there has any ideas, suggestions,
comments, please let me know as I don't
know what else to do. Thanks so much.
Bonnie
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sdmaster
New User, Becoming EHEALTHy
Joined: 31 May 2004 Posts: 2 Location: Tennessee
Posted: 05-31-04 02:06am
Bonnie,
i'm not a doctor or anything, but
knowing what you're going through I just
have a couple of comments. I cant lay
down at night without being in pain
either, left side..Right
side..Back..Doesnt matter. If you havnt
tried it yet though, try hugging a pillow
while you sleep - it helps me some. Have
they removed the blebs before? That's
what they did to me last time and it's
helped..I think and hope (see post above
about my new pains). Well, thats about
all I have to say.. But more or less just
letting you know theirs more of us out
there that knows how it feel.. Feel free
to e-mail me if you think theirs any
questions I might be able to help with or
atleast compare pain lol joshy@dir
ecway.Com
joshy