Spontaneous Pneumothorax X3, Pleurodesis On Both Sides

Had tension pneumo '99 with blood pressure hardly registering, fixed with chest tube until 6 months later. Another chest tube and lots of nerve damage from the scope surgery. Had minor blow outs at weak spots on right lung continuing after surgery. '02 had major tension pneumo on left side this time, inserted chest tube, left it in and sent to anchorage. Pleurodesis done on left side with a longer hospital stay this time. Since that time I have had daily pain usualy about a 5, with recurrent blebs popping and usually just go to er where they iv me, give pain meds and send me home. I was using annexia to control the pain just so I could go about daily life. Finally the doc ran out of ideas except to remove the pain meds and put me on celebrex 200mg daily and tylenol which I end up taking too many of just to try and stop the pain. Ct scans, xrays show no pneumo's just new blebs forming on surface of lungs where they had removed them before. I get horrible shooting pains under my shoulder blade of left side and sometimes I get really short of breath, and almost pass out. My normal bp has always been 90/70 but the last year it has just about doubled. Specialists have done mri's along with other tests and found nothing of significance they say and send me home. I am so tired of being in pain all the time,and mostly have to sleep propped up in bed or I feel as though I am suffocating. I feel as though most of the doctors I see either give me the runaround, no straight answers, or try to pass the buck to someone else. Feeling at the end of my rope, it's affecting my life, my childrens lives and everyone around me. Everyone keeps mentioning cancer which doesn't help the anxiety level either. The latest med was 40mg of prednisone daily along with xanex for anxiety. 3 hours after taking the prednisone my heart was racing out of control, the pain was unbearable and I really thought I was going to die. Back to the er where the nurses said prednisone does not cause that, it was all in my head and shot me full of some type of sedative. It did nothing for my breathing but basically made it so I cared nothing of the pain or life or anything. One of them said I was nothing but a drug seeker. If I accomplish nothing else, I wish to be rid of this constant pain. If anyone out there has any ideas, suggestions, comments, please let me know as I don't know what else to do. Thanks so much. Bonnie