If you take any meds for your lupus, you should not be drinking alcahol at all! That could be very dangerous!!!!

sharon

I'm not taking and medications....My doctor doesn't think traditional medicine helps...What are other people taking? The biggest problem I have is brain fog, fatigue and joint pain....Kim

I hope i'm not being bold but if I were you I would get a new doctor. I have problems with fatigue and joint pain I am also being investigated for cns involvvment. I'm currently not on any steroids but I do take plaquenil and flexeril. Plaquenil helps to control my flares and flexeril is a pain medication that I often take with a drug called amytriptiline which is a nerve blocker. I'm definately not a pill pusher but I enjoy having a certain quality of life. When i'm on my meds I am able work and enjoy life much more than when I am off them. :d I hope this helps. You should not have to suffer because your doc does not beleive in meds. As for the alcohol, I avoid it most of the time but when I have a drink or a glass of wine the next morning I can hardly walk because of muscle pain in my lower limbs. This is not a hang over it is a symptom of my lupus.

Keep smiling,
jenn

What is cns??? Maybe thats what the effect was the next day...In the past I could go out for dinner and drinks, and never feel bad, now 2 glasses of wind over a 5 hour period and I can barely maitain the next day. This was not a hangover...It was muscle pain and fatigue...Maybe my lupus is advancing and that's why I can't drink???? Thanks for the response, kim

Hi kimmie,

cns is a short term for central nervous system involvement. I have been having stabbing pains like someone is using a voodoo doll on me plus loss of sensation and forgetfullness. I don't know if it connects to the alcohol but it might. It may be that your lupus is getting worse or maybe your symptoms are just changing. I think certain chemicals or products in the alcohol affect my muscles. It's extremely painful and if you are like me I understand you having to take the day off work. you should dicuss the possibility of meds if you start feeling that you can't function from day to day. I hope you are feeling better. :d

keep smilimg,
jenn

There was one serious topic missed here...Wines have sulfites. Sulfites can cause lupus flares!!!!!

As always, drinking with most medicines is not a good thing. I would mention this to my doctor!

Hugs,
ladybrannon

Hey there, we all heard you were sick are you better now ????? Thanks for the sulfate info, makes a lot of sense, kim

How are you?

Yep, gladly out of the hospital! Woohoo!

They found out that I have three ulcers! Being sick from the ulcers caused me to start having lupus flare symptoms. They caught it very early...Thus, only four days in the hospital instead of my usual 7-8 day stay!

I am actually thrilled that they tracked it down. Makes me feel better. I knew that something was wrong with my digestive system.

Hugs,
ladybrannon

I am newly diagnosed with lupus, and I am not on any medications yet.. however when I drink the next day my cheeks, nose and forehead become very very red. This happens when ever I am in the sun or when I drink. I won't be drinking and I will stay away from the sun. I wonder if drinking has something to do with this.

I was diagnosed with SLE in 2000. But diagnosed with RA when I was 11. My father also had RA and was in a wheelchair. Hmmm think its genetic. Anyway I noticed recently after a few beers on the weekends, I am extremely fatigued and feverish with an aching body. My butterfly gets very red when I get fevers which seems to be directly associated with fatigue. The aches are not joint related but seem to be muscular and stiff. I came on this site looking to find out if the alcohol is the culprit and if anybody else has this problem. I see I am not the only one. sux doesn't it. I guess I won't be enjoying anymore cold beer the rest of the summer or my life for that matter. Although I have been rather fortunate. Most my organs are not effected and the ones that are is very mild, some fluid around my heart which even healthy people have some and I do have pluerisy but the joints are quickly twisting. I wish you all the best and keep up the fight.