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Conditions and Diseases > Epilepsy Forum > What Does Everyone Do For a Living With Epilepsy?
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Q: What Does Everyone Do For a Living With Epilepsy?
asked by: connie elaine on May 22nd, 2004
New User
I was just put on leave without pay on my job due to seizures and oras. I have dealt with them for over 2 years at my job and my boss decided to "let me go". My neuro. Says that i'm an accident waiting to happen. I would like to do something productive, but now... Cant drive, no job. I feel like a burden to my sweet husband who is real understanding but I want to feel like i'm trying to add and not subtract.
Let me know what you all do and even if you dont work let me know that as well. Is the guilt i'm feeling normal.
Connie
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sandyallen
replied on May 22nd, 2004
Extremely eHealthy
Have you spoke with an attorney, are you a union emplyee, how about the labor board? How about a new Dr. As you should have a right to a second opinion! What about social security and disability administration? What about vocational rehabilitation, I know they have that in oregon. It seems like their should be something you should be able to do about this situation! I hope this has helped!
Sincerely,
sandy
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connie elaine
replied on May 22nd, 2004
New User
I am looking into retirement disability right now, but would like to be able to go back to work when I can drive again. Seems like when I think ill be able to drive again I have another seizure. And the oras kinda keep me out of the drivers seat even if I am able to drive .Its been a month since my last one and that means at least 5 more months before I can get behind the wheel. Its been so long since I drove anywhere I think I might have forgot how. Laughing well at least its getting warm outside and I like to plant flowers. My husband doesnt have to lift a finger around the house, my house is imaculate and the dogs go for nice long walks every day. Well I guess there is alot to do Confused
Thanks, I will look into more of what you mentioned.
Connie
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MickeyFan
replied on May 23rd, 2004
Experienced User
Work....
Connie elaine,
hi I know where your coming from..... Because of my seizures i've never really been able to work, besides when I was a teenager and my seizures were so suttle that noone knew about them, (i was born with a spot on my brain).
I have tried to get social security, but i'm always turned down....Because I never worked enough 1/4's, or they say my husband makes to much money.
Even though I can prove that I was born this way..... The goverment don't seem to care.
My husband is great with all of this too, his main concern is that i'm okay.
It does stink not being able to drive and having to rely on others all the time, but as often as I seize I don't expect to ever get to drive again.
About having a job.... Since noone would probably hire me, a couple of years ago I made my own job.
In high school and college I majored in art.... And I love to make things.
So I started to sell things once in awhile to friends....And it just took off from there. I now do craft shows, and sell things out of the house on a regular bases.
Trust me i'm not getting rich, but it does help me feel better that I do contribute alittle to our household income.
And I get to work on my things when I feel up to it, and I enjoy it. It also helps to keep my stress level down too.
Jill
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connie elaine
replied on May 24th, 2004
New User
Thanks jill
i am into artsy things. I recently started sillouettes and they can be fun too. I really have to be in the mood to work with them though and with all this paperwork and worry about my insurance and stuff it's kinda hard.

I have had some bad medical problems just over the past 3 years and my boss had been trying to find a way to let me go.

I had filed a grievance against her for scheduling issues. She was saying that she was working when she really was not. I did payroll so I knew what was exactly going on. (i may be alittle slow cause of the meds I take but I actually think that they make my mind sharper at times.) thats when all this started and its really taken a toll on me. My co-workers noticed changes in her attitude and asked me what was going on.

She (my "stupidvisor") is good friends with this one lady who has a disability and she has made astonishing reasonable accommodations for her...She has even taken a laptop computer home with her and done work at home and kept up with her time on a log...Later I found out that she was covering up for my boss and that was probably the reason that my boss was so accommodating for her. I was the assistant supervisor and she would not even consider giving me reasonable accommodations other than directly supervised 7 hour computer entering. (that will mess with your head)

i could write a series of books on "coping with a vindictive boss". But thats a whole other thread.

Sorry I bent your ear for so long but I really have a hard time thinking that someone could be so cruel, and that someone else could lie (or maybe "brown~nose") and not have a conscience.

Thanks for all your encouragement,
connie elaine
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MickeyFan
replied on May 25th, 2004
Experienced User
Connie elaine,
did you ever contact the epilepsy foundation for info about what to do about your boss????? I volenteer with them alot, and I know if you were to contact them they would help you out or at least point you in the right direction.
It does royally stink when your up against people like your boss.
Its not the first time i've heard about a boss being this way.
I hope things start going better for you.
Just keep your chin up and take it one day at a time. Smile
jill
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aspAddict
replied on June 5th, 2004
New User
I'm an it specialist for a trucking company in illinois. My epilepsy really doesn't interfere with my job most of the time - last week was the first time I ever had a grand mal on the job, and I managed to come back in to work after a quick trip to the hospital. I probably should have gone home and slept it off for the rest of the day, but im too stubborn for that...I didnt want my boss to think that anything like that could keep me down.
Everyone at work was really supportive and glad to see me back so soon, but if it happens again, I think I will take the day off... *grin*
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Alice in Wonderland
replied on June 12th, 2004
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I agree that you should find out what your rights are......But in the meantime, I find hobbies are helpful. Volunteering is too. (and sometimes they can work together).

I like to create things with calligraphy. I enjoy playing music. I mess around with american sign language too. I also have a website that I like to work on occasionally. I go in spurts. (right now, it's the music). I've volunteered at nursing homes playing the piano, my guitar and my banjo. I must admit, though, that I don't volunteer often enough.
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ksbkrzi
replied on June 18th, 2004
New User
I think I am really lucky girl since I am free-lance translator anyway. Besides, my husband works at home too, so I really work in safe environment. Epilepsy never interfered with my career. We live in a really nice neighborhood where nothing (post-office, bank, pharmacy, small shopping mall, grocery stores, market hall ...) is not more than 300 meters away. Fortunately even two of my best friends live in the same neighborhood ... Btw, I live in europe where having a driving license is not such a "must".
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