I have just been diagnosed with wagners disease. I was searching for answers and saw your note. I have been ill for about three years, maybe 4 and no one could find the problem, I had accelersted bp and weakness in all the muscles. My eye (left) began to bulge and it bulged to the point that I felt it would pop out of my head at any moment. I now have sties that manifest every other day. In the past 2 months I have had 15 sties on the left eye and 2 on the right. I have never heard of this disease before and am curious as all get out as to what to expect. I see the opthomologist friday after a cat scan that am and then they are going to biopsy the eye. It is all so weird to me. If any of this has been helpful to you , pleas reply and tell me the symptoms you are having.

Sincerly,
bear32137

Weagners disease is what my father has been diagnosed with 3 years ago found through his kidneys a simple blood test for kretinin is how the doctors decided he had it from what I understand this disease affects your kidneys lungs and sinuses- it was causing my father's kidney failure advanced chemo treatments are how he is being treated now and so far they are progressing very well so far

Thank you for your quick reply. Mine seems to be from the sinus and lord only knows what friday brings. Thank you again for answering me. I am 67 years old. How old is your father???

I am 20 years old and I was diagnosed with wagners disease almost a year ago. Its been really hard trying to deal with it since i'm young. And it keep me from doing allot thinks that I was used too. I also got kidney failure. But doctores put me on cytoxan and it is really going good now and i'm doing much better then I was. Because I was really sick. I just wanted to share this!!!!!!

My uncle was diagnosed with wagners about 6 years ago, he past away on sunday 09/08/09 may he rest in peace and for all the people diagnosed with this disease i wish you all the best and may you all recover as soon as possible

I think you (or your family member) might have Wegener's disease or to be precize: Wegener's Granulomatosis. Wagner's disease is ocular only.

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For more info on Wagner disease: www.wagnersyndrome.eu
For more info on Wegener's disease: http://www.vasculitisfoundation.org/wegene rsgranulomatosis

The Wagner website is certified by the HON code (like ehealthforum is too). Both websites are without advertising and not-for-profit.