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Can Seizures Kill You ? (Page 2)

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October 29th, 2006
Yes They Can...
We are just now becoming aware of the dangers of seizures. Not only can they kill you, they can cause permanent brain injury. We are an organization dedicated to bringing these facts to light. We are just starting to get our website up and running, but please check this out. If you are interested in becoming involved, don't hesititate to contact us.



Www.Raiseepilepsy.Org

r.A.I.S.E
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replied October 29th, 2006
Extremely eHealthy
I understand that their is such things that are known as silent seizures that can kill you. If while having a seizure you fall and hit your head and have some possible internal bleeding it can kill you. If you drink while taking meds it can kill you. Some dr's change patients meds and the patient or the dr forgets to cancel the other meds out and the patient might have an overdose or the patient may forget about when he/she took the other meds and may take extra and may end up in a possible coma leading to death or the patient may become tired of taking the meds, give up and overdose instead of getting the professional help he or she needs as some epileptics become depressed, unfortunately.
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replied November 19th, 2006
Epilipsy Killed Me But I Was Revived
I died recently on 10/28/06 when I went to a outpatient services place. I am only 26 I was found dead and had only a 6 minute siezure they revived me. Dont let them tell you any differnent ok. I have been on alot of meds some help some dont hehe. But I am also a bipolar, schizphrenic as well that sucks.

Chris
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replied March 6th, 2008
I was born with tuberous sclerosis and have been dealing with anxiety, depression, and hallucinations. I had gotten rushed to the emergency room 2 weeks ago for having 23 seizures. I had blood coming out of my nose and eyes and they said they were really suprised my brain didn't explode. After 3 days they made me stay in the pysch ward for a month and they put me on depakote,famotodine,klonopin,sertraline, and risperdal.
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replied April 16th, 2008
Death from Epilepsy
To all on the board ( especially those who lost someone to seizures):

I was only 25 years old when my mother died of cancer. A short ten months later my ONLY sibling, my brother Jimmy, died as a result of his having a grand-mal seizure. The doctors never told my family that my brother could possibly die from this disorder. I hold my brother's physicians to blame for not communicating ALL of the effects epilepsy can have a person. There was another factor in my brothers death that I really want to get out there to anyone who suffers from seizures......
My brother died because of a combination of a grand-mal seizure and his obesity!!!! According to the coroner, because my brother was carrying around so much weight, his heart was too weak to handle that last severe seizure. His heart simply gave out. Luckily, again according to the coroner, he did not suffer, he was dead before the seizure was over. That is my one true peace.
Anyhow, I just wanted to tell all of you with a seizure disorder, especially if you have the seizures that make you convulse, please watch your weight. You have to make sure your heart is strong enough to handle a grand-mal, or any other major seizure.
God Bless to All!!!!
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replied April 16th, 2008
I have done some research on epilepsy because a family member has sadly dealt with it over the years. I looked it up at Healia.com, this great online health community and they have a group dedicated to people who deal with epilepsy. You should really consider joining since they have such an open dialogue.
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replied June 29th, 2008
siezures are dangerous!
Hello everyone,
First I will give you a brief introduction of me. During a cold night in 2004 I was in Iraq patrolling the usually quiet city streets of baghdad. I got out of my truck with about three other people and lit up a cigarette. No more than two minutes later I was blown on my back by a bomb which contained lethal levels of chlorine gas. There were nine of us at the bombing that day, only three of us walked away.
Flash forward to april 20th 2007. Yes I know a big marijuana day, but I am not a smoker in any fashion. I was walking to an appointment before being cleared out of the army and I suddenly fell into a grand mal siezure breaking my nose and three of my front teeth. I was taken in, given meds and released. The next day I had five siezures resulting in an ambulance ride to the hospital. I was put on depakote 500mg three times a day. two pills in the morning and one at night. In the next three months I had 29 siezures. I was sent to the hospital many times, and my perscription was amped each month. I now take 2500 miligrams of depakote during the day and 50 miligrams of topamax during the night. I take two 500mg pills in the morning, one in the afternoon and two at night. I then take one 50 mg pill of topamax before going to bed followed by a 20 miligram pill of klonopin. I am seriously messed up and I hate siezures. I never remember much about them, except how much pain I awake to. It hurts having a siezure, not from falling but rather from having your brain stopping. To all the people who have epilepsy or deal with family members who have it, bless your heart and I hope they find a cure for us.
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replied July 4th, 2012
I am very thankful for your services to our country and I thank you. I am so sorry for your pain that you have gained from doing so. I wish I could take it all away.
I am a host home provider to a consumer who has grand mals up to 10 times a month and it breaks my heart.
I send my heart out to you and hugs to follow.
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replied January 24th, 2009
question
Hi all,
I'm new to this forum. I'm NOT diagnosed with a seizure disorder. I have POTS (postural orthostatic tachycardia syndrome). Many people, POTSers and others alike, have recommended I investigate the possiblity that I am seizing, rather than simply experiencing POTS episodes (fainting with shock that produces tremors). My episodes so closely resemble seizures, that I simply call them seizures to avoid the ambiguity when telling non-POTSers about why I can't do certain things in my life (like work full-time). My "seizures" consist of blacking out, falling, full loss of control over my body, inability to speak, see (but I CAN hear), or think, and convulsions that sometimes are limited to the left side of my body and sometimes rock my entire body.

That's the background. The question is this: recently the nature of my episodes has changed. I cannot breath steadily while it's happening. I feel this during the thing as well as right beforehand, when it's coming and I'm getting aura-like signs. It's like my whole chest just freezes. This started happening any time I recline. Consequently, I basically stopped sleeping in my bed. After a month of it, several attacks a day (each lasting as long as 45 minutes, and some occuring back-to-back until I'm unconscious for several hours), I decided to forgo my medication and "detox" from it. This immediately stopped those kinds of attacks. I was on Midodrine, a vasopressor (usually prescribed for Parkinson's patients, but frequently used for POTS sufferers). I know I need to get ahold of my doctor, my POTS specialist. But I just read about Trivolta's son's death. And my daughter (5 yrs old) keeps asking me if I'm gonna die. I told her people don't die that way. I lied. But what I can say? Anyway, the question is: do people who die from seizures stop breathing? Is that the mechanism, or like why they die from that episode?
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replied March 17th, 2009
Mel Wood
im just 15 years old and i have had extreme epilepsy since i was 8. i have been told that epilepsy can kill but it is very rare (around 1 in 3,000.)
unfortunately, my epilepsy will never be controlled fully and i will never completely grow out of it.
i just try to live life to the full.. enjoy every little bit!
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replied May 29th, 2009
I know this has been a long time and dont know if you will read this or not bethesdabob but i just have to tell you that what you said about you laughing at your wifes seizures cut me to the core, i have had them since i was seven months old, first fever seizures then stares and now stares and gran mals, until you have one of these you have no idea what it takes from you, im 45 and cant drive anymore and what it does to your body is horrible, i cant imagine my husband laughing at me though, i hope if you see someone have one in the future you will have compasion for them and not laugh at them. I thank god that i have a husband that sits by me and talks softly the whole time and takes care of me like he does, i am so sorry for your loss, i cant imagine what my husband would do if i was gone, God Bless you and yours
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replied June 2nd, 2009
Had I not been in school when I had my seizures on May 1, 1999, I would be dead today. I went into status epilepticus and was unconcious and not breathing. I was very lucky to be part of a school that put 7th and 8th graders in the high school, because had I been on an elementary time schedule I would have been home alone when that happened. And only medical attention can get you out of a state of nonstop seizure. When you aren't taking medication you put yourself at significant risk for status epilepticus.

There are some non-medication alternatives to seizure treatment out there, such as strict diet, but you have to be very strict, and not cheat on it - which is why the option is almost never offered to adults who tend to be set in their dietary ways. Seizures can kill. Sudep is rare, but status epilepticus is more common
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replied February 22nd, 2011
my wife had a seizure after 9 years of taking zonegran 400mg daily.she came through but died in the abulance after given sodium bacarbonate.things went very bad they gave her atropine,epinephrine.I feel so bad for convincing her we need to go to the ER to make sure she is okay.She was responding talking and all before putting her in the ambulance.I am totally lost i have don't know what could have happened.Please help me !! I need closure,I can't figure out dying after coming out of a seizure.
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replied February 22nd, 2011
my wife had a seizure after 9 years of taking zonegran 400mg daily.she came through but died in the abulance after given sodium bacarbonate.things went very bad they gave her atropine,epinephrine.I feel so bad for convincing her we need to go to the ER to make sure she is okay.She was responding talking and all before putting her in the ambulance.I am totally lost i have don't know what could have happened.Please help me !! I need closure,I can't figure out dying after coming out of a seizure.
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replied June 7th, 2011
Shaggy9 and all. My older brother of 40 just died and we suspect it was due to a seizure. He had hydrocephalus for many years and in December had it treated. Prior to the treatment he had numerous seizures and he always complained of the side effects of taking the meds. I assume he did not take his meds and on May 5, 2011 died. He was doing so well. I also blame myself for not doing more, but as the Medical Examiner told me, there was no way to be there 24/7 to help and you must have the correct meds with you to be of any help. This hurts and I wish I could have done more. RIP Paul, I will and still miss you.
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replied October 26th, 2011
tratment available
i had treatment for my epilepsy on 6-6-06 and had seizures for 25 years and am 29 now, since getting treatment i havent had a seizure or have had to take medicine anymore, but not only that with the treatment comes better memory and more if you want info about the proceedure and what is involved email me and we can talk more
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replied March 20th, 2012
Re: Can Seizures Kill You ?
What's with your doctor? I do not mean to scare you but the fact is seizures can kill you. When a person has a head injury, the effects can appear to suggest epilepsy. Head trauma causes amnesia and unconsciousness.

It becomes difficult to establish whether the victim had the injury before or after the fall. there is a myoclonic seizure which is the jerking of various body parts.

There is a clonic seizure where by the patient falls and experiences convulsions. Where the person falls but does not experience any convulsions, it is referred to as a tonic seizure.

In the event the patient is not attended to, the injuries could be fatal such that they result in death.

cmac wrote:
I have nocturnal seizures less than 10 times a year. I switched to zonegran 2 years ago. I am now suffering hair loss and severe weight loss. When I asked my dr about trying a med free approach his responce was "i wouldn't advise that seizues can kill you!!"
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replied April 8th, 2012
Tegretol is amazing
I USE to be an epileptic, I know it sounds crazy. I can't remember the first medication I took but Tegretol changed my life. NO weight loss or hair loss issues. Ask your dr. about it. I got weened off in 01' and haven't had one since.
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replied August 1st, 2012
I take lamictal(lamotrigine)it works good but I still have seizures if I miss a dose or I am very tired or have had a few drinks. I have nocturnal seizures some times and bite my tongue and hurt my shoulders. My muscles ache bad and I feel out of it for days.
I can see these are potentionaly life threatning. I don't breathe right and they are tonic clonic(grand mal).I also have had absence seizures. I think this all started with sleep apnea when I was not getting enough oxygen and damaged my brain.
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replied August 3rd, 2012
One of my best friends died two years ago on christmas day from a random tonic-clonic seizure.so yes u can die from them. Sad which scares me because the easter sunday after she died i had my first tonic-clonic and have been diagnosed with epilepsy. Its always bothered me that she died and i didnt.
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replied March 24th, 2013
Death in epilepsy
Hi everyone my name is Cici and i am 24 years old. i came on across this page as i was doing some research about death in epilepsy. 2weeks ago i lost my boyfriend and the father of my two girls one is 3 and the other is just six weeks old. I was left devastated as he passed in his sleep with nothing but a bruise on the side of his face. The post mortem came back inconclusive which upset me even more. My boyfriend smoked marajuana and had recently stop taking his meds. His seizures where only at night time and recently he was under a bit of stress . Please if anyone could explain to me if he would known he was dying please i need some closure . We are now awaiting the biopsy results until then i will keep looking to find answers he was only 24 years old. Thank you replys will be appriciated
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