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Q: Special Ptosis Treatment
asked by: volfman1 on May 15th, 2004
New User
Hi,

first I will introduce my self

i’m 31 years old

my problem is ancient..



I was born with ptosis (in russia)

since my birth I had a – 7 operations in order to fix my eye

the first 5 involved shorten the eyelid until it can’t be shorten.

The next 2 involved taking tendon from the leg in order to lift the eyelid (sling method)



those 2 operations succeeded in lifting the eyelid but a new problem envolved.

Because of the different between the 2 eyes eyelid there is a cosmetic problem ( they are different)

another problem is the eyelid don’t close till the end when I sleep or close my eyes.



I had a consulting in israel that told me that this is the best I can get

there isn’t any procedure to fix this asymmetric disorder.



Now i’m looking my ways abroad.



Can you please advise me if there is any hope for me?



Attached my photo.





Yours,



marat
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icandee
replied on July 30th, 2005
New User
Ptosis Eyelid
Hi “marat”,
your story sounds so much like my own, my ptosis eyelid is the worst thing that has ever happen to me, I was born this way. Had many operations to correct this problem, but alas, my eyelid still drops. I hate my life because of my eye. When I was younger (school age) the other kids made fun of me, I was put in "special education classes" my eyelid made me look to others like I was retarded or something, I so diligently had to prove myself, that I was a intelligent person. The struggle to graduate with high honors from both high school, and college was an up hill battle all the way. I, like you my russian friend, am now nearly 30 years old, and still to this day, have people asking me “what is wrong with your eye”, from job interviews, to just meeting people on the street, that’s the question of the day in my world. I have to work more hard, shine more brighter to be noticed in my career, luckily I choose the filed in art, where my art speaks for me, my designs and catchy logos don’t carry the sigma of my eyelid problem, which has been my enemy for so long. My prayers go unanswered, when it comes to having pretty eyes (heck, I would settle for just normal looking eyes that look the same). I have many things in my life, (nice career, own house, car, and my dog-as he never asked about my eyelid), but the loneliness I have suffered because of my eyelid truly saddens me. I am really bad at giving eye contact (looking at people when in conversations), as I feel so self conscious about my eye. I have had boyfriends, but my relationships seem to end in hardship because of my self-loathing when I think about my eyelid (it not like I am bad looking, I just would look so much better if it were not for my eyelid). I know that things could have been worst, but I wish I was dealt a better, prettier hand in life. I wish you the best of luck finding your treatment, my prayers have not seemed to work for me, maybe they will for you. Sincerely, your american friend.
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vinoo
replied on February 6th, 2007
New User
Hi,

I am a 25 year from india and have mild ptosis (congenital), which has affected my right eye. And I can understand the social stigma with which one grows up. Even I am conscious of this and am thus shy of public speaking and interacting with others. To make matters worst, my right eye dilates when I eat. All this has caused no visual impairment, but has affected my personality and have made me a shy and reserved person.
But by god's grace I am doing well in my career and thus am proud of myself.
All the posts made here are quite old and I would like to know if there are any surgeries/treatment that have helped you all.

Thanks,
vinayak
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vtrv
replied on February 18th, 2009
New User
Ptosis
Please help me / can some one help me with contacts of ptosis specialists in India or anywhere in the world // who could guide me on this subject . Need to get operated for mild ptosis / US or UK or any other part of the world / some one who has had success in the operation /

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hithishi
replied on June 13th, 2009
New User
hi,
My son who is 3 months old is suffering from moderate ptosis. For now, Pediatric opthamologist told that, since his vision is not affected, we can postpone the surgery for 3 years. But I am really worried about the surgery. How many surgeries might he require?
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Mikesu
replied on August 9th, 2009
New User
I have severe ptosis for both my eyelid. My problems became so severe early this year. Went to see eye specialist but he did not even think that I was having problem. So, I went for electroacupunture. The result is excellent. My eye conditions was immediately improved after only 2 treatments. The first time I could see that I dont look sleepy. I use to have hair cut and see in the mirror that my eyelid could barely open and no matter how hard I tried I could not raise my eyelid.People used to tell me that you look so tired.

For the first 2 sessions of electroacupunture, I was having treatment almost every other day and I never felt so good in my life. I feel like a normal person for the first time and I did not even know how it is like to be normal before. I use to suffer mild to severe headaches/dizziness every single days and many other conditions like very sensitive to light - so cant watch tv or look at computer screen for long. If I did that my eyelid would drop and eventually I could not open it and forced to go to bed and headaches /dizzy would come too. I did not know that they are caused by my eye conditions. Now all these suffering have gone .

Now I have less treatment, I dont' feel as good as before. my eyelid could not keep open for as long. My eyelid would feel a bit heavy at time but I think that is partly because I have not exercised for too long and fat tissue built up under the eyelid - I believe my condition would improve if I do exercise. I think it is a better treatment than eyelid surgery as no side effect (at least for me)I would love to have it everyday if I could afford it.
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lazyeyedgirlxo
replied on September 1st, 2009
New User
Ptosis delema
i also have congenital ptosis in my left eye. Im so self conscious.. i had the standard procedure to fix the condition when i was a baby.. but it has left me with an undisirble effect. Im 18. all my friends are beautiful and have all had heaps of boyfriends. but ive never had one.. and i blame my eye. I am also shy around boys, am self loathing and depressed . every time i see a photo with my eye looking bad, i feel dfepressed and want to die.. or rip it up.& wish to have beautiful eyes..
i went to like 5 difernet primary schools and each one.. i would be asked "whats wrong with your eye" and "lazy eye girl".

ive been thinking of this for a while... cant you go to the eye doc, and instead of asking him what can he do to your bad eye, ask him "can you please shorten the musclesin my good eye to be equal and the same as my bad eye".. and wouldnt that make them even? coz even is what im desperate for right now.
when i was a baby and had the operation done, the doctor asked my parents if they wanted my other eye operated on. but they said no.. but i cant blame them because they were under alot of pressure and stress.
i have thought that reading can actually help as it stimulates your eyes.

would my idea work, because i am going to equire about it after my HSC is over.
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koi1028
replied on September 17th, 2009
New User
hi there, my son has mild ptosis. not that bad, he can look straight and no need to tilt his head up so he could see better. the optha checked on him and told that his eyelid was drooping so suggested to go to a specialist. yoiu guys think he needs surgery at this age of 2? im scared, but an early intervention is better. thanks guys..
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mirrorshine
replied on November 2nd, 2009
New User
Hi everybody, i'm now 24 years old and i had my left eyelid operated at the age of 13. At first my left eye was a little bit more opened than my right one and i was said it was made intentionally becase as the years pass the operated eyelid tends to return to its initial position, so now i see they were right. It's not that i'm not satisfied with the result, but i think my main problem now is the scar which i don't know how to treat or is it treatable at all.....the only problem left from my operation is this protuberant scar which deters my eyelid to form a crease. So i wonder if anyone who has had this problem would give me an advice
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livelaughlove09
replied on November 7th, 2009
New User
is there anyone out there that has had something positive happen in re: to ptosis in their life?
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Ranya
replied on November 8th, 2009
New User
Temp Solution and request for surgury feedback
Hi Everyone,

I'm a 30 year old woman from Egypt with mild ptosis in my right eye. Like everyone I dream of even-looking eyes. I'm currently considering surgury and am looking for any forums to see if anyone has feedback after his/her surgury.

I found that using general eye drops in just that eye helps brighten it up and lifts the lid to a better position. In Egypt it's called Prisoline but I know there are stronger brands that your Doctor can prescribe. When going out, i put a drop or two in just that eye so that actually for about half an hour that eye is higher than the normal one! i still look asymmetrical but as it starts to drop back again, for a blissful hour or two my eyes look more or less the same Smile)

Not a real solution but make u look a bit better in pictures and such.
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