Congenital Hip Conditions Posted: 05-10-04 14:33pm
I would like to talk to someone who has a
hip condition that he/she was born with.
I am on a wait list for surgery and am
being told I will need bone grafting done.
I have a million little questions and
need an experienced patient to learn from.
Anyone out there that can help?
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Meg910
New User, Becoming EHEALTHy
Joined: 19 Mar 2004 Posts: 15 Location: Fl.
Congenital Hip Conditions Posted: 06-05-04 18:37pm
Hey, what kind of hip problem do you have?
I was born with legg calve perthes, and I
am also waiting for surgery. Ask away if
you have any questions!!!! I know how
scary it can be having surgery. How long
do you have to wait?
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TerryX53
New User, Becoming EHEALTHy
Joined: 29 Apr 2004 Posts: 5 Location: BC, Canada
Hip Surgery Posted: 06-06-04 11:58am
I will be seeing my surgeon for another
question period in about 3 weeks. So glad
I pursued some answers from his nurse as
she has recommended this extra
consultation. I have not heard of your
particular condition but all 'waiting for
surgery' is scary. The bone grafting is
the part that I don't really know much
about. What is recovery like? What sort
of level of pain will I have to deal with?
How long will I have to use crutches to
get around? How successful is bone
grafting? My wait for surgery is between
10 and 16 months now. Been on the wait
list for 2 to 3 months now.
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Meg910
New User, Becoming EHEALTHy
Joined: 19 Mar 2004 Posts: 15 Location: Fl.
Hip Surgery Posted: 06-06-04 20:59pm
Wow, that is a long time to wait for
surgery!!!! As for the pain, everyone has
a different threshold. My doctor has
assured me that the pain won't be as bad
as what I am living with now. He also
said that you are given good pain meds to
help with physical therapy and the overall
healing process. I was told that because
of my age(29) that he would not be able to
cement the implant. So, that means I have
to either use crutches or a walker for at
least 6 weeks. As for the bone grafting,
I am not sure how that works. What
problem do you have that makes you have a
bone graft? I sure hope that you do get
your questions answered by your doctor.
If he/she doesn't make you feel more
comfortable with the whole thing, then I
suggest you find another doc. I wish you
the best of luck!!!!!
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TerryX53
New User, Becoming EHEALTHy
Joined: 29 Apr 2004 Posts: 5 Location: BC, Canada
Congenital Hip Conditions Posted: 06-07-04 14:47pm
Thanks for your reply meg, I had almost
given up on this forum for getting answers
when your first reply came. First of all,
i'm sorry to hear you need this kind of
surgery at 29. I was diagnosed at about
32 with protrusia acetabulae. I was told
then that it was in the beginning stages
and I should put off hip replacement
surgery for as long as possible. I can't
wait any longer (i'm 53) so have gone for
it. The protrusia thing means that the
femoral head (ball joint) has protruded
beyond the end of the normal socket joint.
That's why the need for bone grafting.
They need to re-build the socket before
they can put the replacement socket in. I
understand that bone grafting is done
routinely in different situations so is a
realistic way to slove the prtoblem. Both
surgeons I have consulted have given me
the same information. I need both hips
replaced. I'm going to be layed up
healing for a while. They'll do one first
and a year later, do the other. Wait
lists in canada are becoming routine. Has
to do with our health care system. Thanks
again for your replies. Its nice to talk
to someone else about these issues.
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Meg910
New User, Becoming EHEALTHy
Joined: 19 Mar 2004 Posts: 15 Location: Fl.
Posted: 06-07-04 17:58pm
I am glad to haved helped you!!! I saw my
doctor today and he was telling me about
the bonegrafting. Come to find out that 2
inches of my femur has died and now he is
thinking about doing that to me. If he
doesn't I will end up with one leg 4 1/2
inches shorter than the other. So, I
guess I will be having some bone grafting
myself. Good thing that I got to talk to
you or I would have been really confused
about the whole thing. With legg calve
perthes the ball is shaped like an egg so
to speak, which causes deformity to the
socket. I had it in both hips as a child,
but the doctors were able to heal one of
them. Everything was fine until I had my
daughter. I guess all the extra pressure
caused more damage. Oh well, I guess
things happen for a reason. I hope that
you keep in touch so that we might be able
to answer each others questions!!!!
