Joined: 13 Dec 2003 Posts: 200 Location: Australia
Sleep Deprived Eeg Posted: 05-07-04 21:15pm
Can someone tell me about this. I am to
go and have one done.
The lady on the telephone told me that I
cant have any stimulants or nothing like
that to drink.
She also told me that I have to stay awake
the entire night. After that I have to
have a brain mri done.
I am scared. I have had a ct scan done
and that was perfectly normal, I have also
had a normal eeg done and that was normal
also. I just dont know what to do or why
this is happening to me. Or to any of us
here at this web site.
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insurancegirl
Especially EHEALTHy
Joined: 25 Sep 2003 Posts: 5286
Posted: 05-08-04 01:45am
What are your symptoms, huni?
~jennifer~
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jamal
Experienced User , Rather EHEALTHy
Joined: 05 Nov 2003 Posts: 60 Location: oroville,Ca
Sleepdeprived Posted: 05-08-04 09:21am
Hi sami,
being sleep deprived for one day for your
eeg, they want to see where your seizure
activity is coming from. Which side of
your brain probably. The mri is not bad.
Just a little noisy. Let me know how you
come out. Jamal
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jamal
Experienced User , Rather EHEALTHy
Joined: 05 Nov 2003 Posts: 60 Location: oroville,Ca
Sleepdeprived Posted: 05-08-04 09:21am
Hi sami,
being sleep deprived for one day for your
eeg, they want to see where your seizure
activity is coming from. Which side of
your brain probably. The mri is not bad.
Just a little noisy. Let me know how you
come out. Jamal
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sami_1982
Experienced User , Rather EHEALTHy
Joined: 13 Dec 2003 Posts: 200 Location: Australia
Hello Insurancegirl Posted: 05-08-04 19:04pm
Hello.
My symptoms are.
Grand mal seizures. I let out a cry or a
squiel my flat mate says. Stiffening of
the bodywith arms to my sides sometimes
arms straight, arms clenched to chest,
violent jerking episodes back arching,
eyes fluttering and rolling backinto my
head. Sometimes I think that I can hear
when this happens I feel like. I am in a
black hole a tunnel that I cant get out of
I feel trapped with all I see are strikes
of lightening. I feel like I am calling
out for help but to the onlooker I am not
saying a word.
After I feel like all I want to do is
sleep. I can respond afterwards I am just
a little confused for a few minutes.
Partial complex seizures. And petit mal
and pseudo seizures
the neuro says I have those aswell.
Sometimes I can hear. I get weird
sensations. And feelings like a smell
reminds me of a day years ago and I can
imagine it as clear as day; stuff like
that. Sometimes for no reason I feel like
I am having a sexual experiance.
Sometimes I am so afraid for no reason out
of the blue. Sometimes I see things in my
vision. I dont suffer headaches until
after the seizures. I am just really
scared.
The doctors say I have epilepsy they just
want to find out how many kinds I have
incase its a syndrome of epilepsy. And
where it is coming from.
I am 21 yrs old and I am scared outta my
head. My seizures are getting to last
20minutes.
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MickeyFan
Experienced User , Rather EHEALTHy
Joined: 28 Jan 2004 Posts: 73 Location: Algonac, Mi.
Thanks: 1
Thanked:0
Posted: 05-10-04 09:40am
Hi sami,
don't worry a sleep deprived eeg is a
better form of a test.... I've had them
done a couple of times.
It is very hard to stay a wake the entire
night.... And the doctor is hoping that
by not sleeping, its going to cause you to
have a seizure while having the eeg. So
that they can see where the seizures are
coming from. Because, it is well known
that if you do have seizures you do need
to get the correct amount of sleep.
During some of the ones I have had they
have had me go to sleep so that they can
record me during the differnt stages of
sleep. Because I have alot of seizures
during the night.
A mri is not must differnt than a cat
scan, its makes a lot of noise, when i've
had them the tech has given me ear
plugs.
The test it self took about 45 minutes,
and you have to lay as still as
possible.
I hope this puts your mind as ease....
Good luck.....
Jill
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Midnight
New User, Becoming EHEALTHy
Joined: 28 Jan 2004 Posts: 33
Posted: 05-11-04 03:33am
Sami, you explain things of what you go
through in the way that I feel but can't
explain it. In other words I have almost
the exact same stuff that happens.
Are you afraid that the video eeg will
show nothing then they will just claim
that you are faking it? I am scheduled
for one in sept. I will be there for 3-5
days...They said hopefully they can get a
read out. The hospital told me that if
they don't happen to get something than it
doesn't necessarily mean that you do not
have seizures.
My question is do they take you off the
meds for that time also?
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jamal
Experienced User , Rather EHEALTHy
Joined: 05 Nov 2003 Posts: 60 Location: oroville,Ca
Take You Off the Meds Posted: 05-11-04 08:29am
Midnight,
I have been slept deprived for almost 3
days, they viedo monitor me and also
hooked me up to the eeg to my head, lots
of wires. Also the decreased my meds so I
would have my seizures. This was before
brain surgery. One of the test they do to
see were the seizure activity was coming
from. They already knew it was from the
right frontal lobe, I guess they wanted to
see how many I would have and so on.
2 years later they are on the left side
of the brain, which they told me before I
had my surgery, could be possible. But
thats the chance I took. My seizures have
leesoned. The doc. Wants me to go back
to u.C.Davis next month for the same test
to exactly were they are on the left side.
The eeg showed the activity. Boy what we
go thru!!!!!!!!!!!!!!! Good luck. Jamal
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MickeyFan
Experienced User , Rather EHEALTHy
Joined: 28 Jan 2004 Posts: 73 Location: Algonac, Mi.
Thanks: 1
Thanked:0
Differnt Eeg's.... Posted: 05-11-04 09:51am
Midnight,
to answer your question, sometimes they do
wean you down on your meds or stop them
cold turkey......
I was in the hospital for monitering for
possiblilty of doing surgery and had the
wires on my head and the video monitoring
24/7. They sleep deprieved me. Then they
took some of my meds away which didn't do
much. So then they took he rest away cold
turkey, which did the trick.
The doc was able to locate where my
seizures are coming from.... He even did
another test called a spect scan right
after I had the grand mal in the
hospital.
A spect scan is where they inject a dye in
you right after a seizure and it makes the
seizure area in the brain glow/light up in
a cat scan type picture that is taken
then.
If you have any questions just let me
know.....I hope I explained this okay.
Jill
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sami_1982
Experienced User , Rather EHEALTHy
Joined: 13 Dec 2003 Posts: 200 Location: Australia
Midnight Posted: 05-11-04 12:14pm
No I am not afraid of being called a
fake.
I am scared that I will have another bad
seizure
i hate how I feel when it happens.
I want this to all be over with. I am
just affraid that I will still have no
answers. I know that 70% of epileptics
have normal eegs and ct scans etc. It
seems to me that all of us here in this
little forum have a underlying problem as
women and that is stress, pms,
i have so much anger inside me. I want to
leave my partner but I am so afraid
because I also depend on her.
But even when I am away from her I still
have these seizures so I know she isnt to
blame totally. I just over worked myself.
And as women we do over work ourselves.
I just have so much anger inside me I want
someone to hold me so I can just cry and
cry and cry.
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Midnight
New User, Becoming EHEALTHy
Joined: 28 Jan 2004 Posts: 33
Re: Midnight Posted: 05-12-04 11:30am
sami_1982
wrote:
no I am not afraid of being
called a fake.
i am sorry. I did not in any way want to
insinuate that I think you are faking it.
Sorry, I ment that in a friendly way.
What I ment by it is that you said in
other threads how they just claim you are
faking it. I thought maybe you would be
afraid that if they didn't get a readout
right away of how they would then react.
I totally understand that you are afraid
that you won't have an answer yet and yet
you know you are still feeling this
without knowing what it is or why, and how
to cure it. I too seek the answer.
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MickeyFan
Experienced User , Rather EHEALTHy
Joined: 28 Jan 2004 Posts: 73 Location: Algonac, Mi.
Thanks: 1
Thanked:0
Posted: 05-12-04 21:03pm
Hey, sami and midnight....
Dealing with this totally
stinks....Espeacilly when you don't get
any for sure answers.
It seems i've been doing this forever....
And at times I feel like I have a good
grasp of things.... But it changes really
quick.
I don't know of a more fusterating feeling
that dealing with doctors who don't
listen, and who don't take what you say
seriously.
I finally had it with my doc one day when
he must have told me for about the
millionth time that the "book wasn't
written about me and my seizures" because
there not conrolled and he can't figure
them out.
So I told him then go get a new damn
book......
Or step back and take a fresh look at what
he's dealing with.
Sometimes I think we need to be more out
spoken with the docs to take us
seriously.
As for feeling depenent on people/partners
it does stinks..... Thats the thing I
think I hate the most.
I am sooooo in dependent and hate having
to have someone take everywhere..... Or
watch over me all the time.
I've been married for over 20 years and my
husband is wonderful about dealing with
this whole thing, but we do have times
where we have problems because of
it.....
And it does cause alot of stress at
times.....Mainly about money, because of
the seizures I don't work....
And its not easy raising a family on one
income..... And the cost of the docs, the
meds and so on.
Sami, I hope your test go well...
Keep your chin up!!!! And take one day at
a time.
Jill
