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Facial swelling and debilitating fatigue

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kaattteeee

New User, Becoming EHEALTHy
Joined: 28 Feb 2008
Posts: 2
Facial swelling and debilitating fatigue
Posted: 02-28-08 16:39pm

Every single day I get horrible facial swelling. I also have debilitating fatigue and I am not sure if the two things are connected. I have been to every doctor you can imagine but no one can figure out what is causing the swelling in my face. I am so sick of it because it has been going on for about a year now. It makes me so self conscious and I just wish that my face would go back to the way it used to be. If anyone has any ideas at all about what is going on then some feedback would be greatly appreciated. I am really at the end of my rope with the fatigue and constant swelling.
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firecracker

Advanced Support Team
Joined: 30 Jul 2007
Posts: 43
Location: Solar System,

Posted: 03-04-08 07:56am

Are some specific areas of your face more swollen?
Have you noticed some memory loss?
Do you find yourself depressed and irritable?
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MandMs

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Joined: 26 Jan 2007
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Posted: 03-04-08 07:59am

Are some specific areas of your face more swollen?
Have you noticed some memory loss?
Do you find yourself depressed and irritable?
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wantingtohelp

New User, Becoming EHEALTHy
Joined: 24 Apr 2008
Posts: 1
facial swelling and fatigue
Posted: 04-24-08 09:21am

This is for Kaatttteee who wrote regarding facial swelling and fatigue. You may possibly be suffering with CELIAC DISEASE. My daughter was suffering with your symptoms, but no doctor would take her problems seriously. INSIST upon a blood test for CELIAC DISEASE. Good luck.
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MandMs

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Hi, kaattteeee!
Posted: 05-05-08 05:52am

Have you been tested for thyroid gland hormones?
Under active thyroid gland can be a reason for facial swelling and debilitating fatigue.

Waiting for your post!
Marija
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tteache

New User, Becoming EHEALTHy
Joined: 10 May 2008
Posts: 1

Posted: 05-11-08 01:22am

My son has had some bizarre swelling. First his tongue, then 3 weeks later his feet, then swollen chin, then swollen knee. We're waiting on blood work. It's baffling doctors and urggent care nurses.
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TrueBlue71

New User, Becoming EHEALTHy
Joined: 22 May 2008
Posts: 2
Location: Sterling Heights, MI USA
Facial Swelling and Fatigue
Posted: 05-23-08 17:07pm

I have two daughters ages 10 and 15, who have been suffering from non-pitting swelling in the face, jaw, tongue (in/out side mouth) with drooling, breast, hands, legs, behind knees and feet. This has been going on for a few years now with no diagnoises. All routine lab and common illness were negative. The swelling occurs daily and comes and goes for no apparent reason, even at bedtime. I have gone to every specialist that the doctors thought could help including a visit to Cleveland Clinic who checked for T.A.R.P.S. and Muckle-Wells Syndrome, tests are negative. The pediatrician believed this to be Hereditary Angioedema because my sisters oldest daughter who is a twin has similiar symptoms with no found diagnois; the test was negative. The doctors have been treating all three with allergy medicines and steroids that do not help, with no response to Epipen. The 15 year old has an IgE of 601 with no found allergies, has Asthma and Ezema with a low C1q compliment level. The 10 year old has not been able to attend school regularly due to the nature of the swelling, inability to walk, talk or use her hands. She has an IgE of 320 with allergies to mold, grass and rye, has Asthma and Ezema with low C1q compliment levels. Other symptoms include; abdominal pain, headaches, dizziness, fatigue, nausea, vomitting, itching with no rash, no fever but insist she is very hot and completely undressess, shakes and feels as if there is something crawling on her, personality changes to more humbling during episodes, doesn't remember what happened and usually responds to question as "I don't know" instead of given an opinion like she would normally and she sleeps alot. They both swell in their sleep even if they are not swollen prior to going to bed. So far we know what it's not, if anyone has a thought of what this might be or is experiencing this problem please let us know. Best Wishes and good health to all!!
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MandMs

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Posted: 05-26-08 08:00am

When was the onset of this swelling for both of your daughters?
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TrueBlue71

New User, Becoming EHEALTHy
Joined: 22 May 2008
Posts: 2
Location: Sterling Heights, MI USA
Facial Swelling & Fatigue
Posted: 05-26-08 22:54pm

The 15 year olds swelling started at the age of 8, primarily in the palms of her hands. The 10 year olds swelling started at the age of 7, she awoke one morning with her face, lips and tongue swollen.
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