Undiagnoised Neurological Disorder with seizures, tremors Posted: 02-27-08 17:10pm
My son has been sick for 2/0.5 years. He
was taken in to hospital on the 28/11/2005
with severe headache and adverision to
light and noise. Because their is
Rheumatiod arthirits in the family eg my
daughter has it and my father had it the
doctors placed this label on him. As the
weeks went on and the symtoms became
increaseingly worse they said it could
possibly be due to a virual or bacterial
infection, which had left him with servere
problems with his balance, ability to walk
and to concentrate. He is now having
bleeding from his back passage and they
say it is either Chrones or ulcericated
colitus. But my son is having to many
neurological syptoms eg: seizures,
tremors, spazams of the whole body,
sometimes they can be just set off my by
an injection given in Hospital or a blood
test taken at out-patients, or at his
gp's. We have seen a neurologist who
suggested it was either MS or a genetic
condition which was rare, but also
indicated it could be both. Whislt a
medical registry suggested it could be
lupus, because of a rash my son gets.
Which is purple and red raised in colour.
We were told that this was defentley a
neurological problem. Here is a list of
his full syptoms in the best way he could
describe to me:
- Extreme nauesa
- Chronic pain all over his body
- Severe headaches
- Back passage bleeding
- Tremors
- Spazms
- When he is in a really bad patch
adversion to light
- Rash
- Vision will become affected sometimes
blurred.
- Eyes will go blood shot without a cause
- Seizures
- He complains that sometimes in his line
of sight are 'black spots'
- Sometimes severe ringing in the ears
- Stomach Pains
- Affected Co-ordination
- Affected Balance
- Bad Memory
- Pins And Needles
- Chronic Fatigue
- Cramping
- Coldness in finger tips
- General weakness in body strength
- Burning over joints and musles
- Shots of lighting down legs, arms, back,
neck.
- Lack of concentration
- Back is very weak
- Head is always heavy on his head
- Twitches
- Jerks In Movement
- Can't have anyone touch him without
tremors happening or at worst seizures.
There are a few nore which i find it hard
to explain in written form.
He already suffers from:
- Asthma
- Missing clotting factor 7
- Was born with a true knot
- He was blue and not breathing when
born.
He is currently 17, is there any advice
you can give to us? We live in the
Republic Of Ireland.
