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Conditions and Diseases > Muscular and Nerve Disorders Forum > leg muscle pain and myasthenia gravis
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Q: leg muscle pain and myasthenia gravis
asked by: qusar on February 25th, 2008
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i was diagnosed with myasthenia gravis about a year ago and was put on a treatment of a commonly used steriod and mestinon. well the steriods made me feel weird and after the initial prescription was used up i never refilled it and only used the mestinon. using the mestinon helped immensly and i didnt see any adverse affects on stopping the steriods. anyway about 2 months ago i started feeling a sensation in my left leg, as if i strained a muscle or gland. the sensation developed into hip and leg pain the strangle subsided in one leg then switched to the other. i went to a local doctor who after chatting for a few minutes said it was inflamation in the joints (i had a mild flu a week before the symptoms) and put me on an anti inflamatory. well no improvement , rather more pain less mobility, so fustrated i went back to the expensive specialist that diagnosed the initial myasthenia. he was aghast that i stopped the steriods and suggested the the joint and leg pain was a result of the myasthenia. i did some web research but it dosent seem to add up i cant find those symptoms associated with myasthenia. could stopping the steriods have caused this? even though i have been great for the past year
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Anonymous
replied on December 21st, 2008
leg pain and MG
All I can tell you is that I have pain with the MG. I think that MG patients do have pain, from the muscle weakness.
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Cholla
replied on February 18th, 2009
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Leg Pain and Myasthenia Gravis After Lipodissolve
I developed MG immediately after the second of two lipodissolve (mesotherapy) treatments to the tummy two years ago. Symptoms include severe weakness and fatigue of all striated muscles from the waist down, and after a couple of minutes' walking, I get that sort of burning sensation in quads, calves, etc. expected with overexertion -- like I'd been on a treatmill for hours!

I've not accepted any medical treatment as the long-term effects of medication seem worse than the disease. How else someone with myasthenia gravis can gain or maintain muscle tone, though, I don't know. My lower-body muscles are weakening (and shrinking) with time. Suggestions?
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lu3lu3
replied on July 5th, 2009
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Leg pain and Myasthenia Gravis
I was diagnosed with MG 7 years ago, 3 1/2 years ago I developed leg pain (not sciatica). The docs have been worse than helpful-at one point giving me meds that made me almost stop breathing. I'm almost ready to try witch doctors, as I can barely function now. Any suggestions?
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joyitl
replied on October 25th, 2009
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Myasthenia Gravis -fasiculations and pain in ankle,calvesand hip
I have had MG for 4 years now. I take 150 mg mestinon daily and receive ivIG every 8 weeks. I lead a normal lifestyle (53 years old). I have fluctuating weakness, mostly in my legs and my left leg is weaker. I've never had eye involvement. I'm positive for MG antibodies. I have frequent pain in my calves and ankles. Standing, walking affect this. I can often do an activity but "pay" for it the next several days. I also have fasiculations (without pain)and they are random. I think we have to accept that this is a disease that can't be explained and any kind of infection or medication can mess with our immune systems and cause "flares". I had swallowing and shallow breathing initially but now it is rare. I pray that Obamacare won't take away my ivIG treatments. They help me to have the quality of life that I do have. I feel a lot of times I limp more from pain in my calves than from weakness, but I guess it is a result of the weakness. 1000 mg aspirin helps me. I try to eat healthy and not take any vitamins or things that would "boost" my immune system. God bless all of you with MG; I hope that a cure will be found. It IS the best understood of all autoimmune disorders.
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