Hi suzy,
Jerry writing you. Janine is watching a
couple of blood clots,probably from her
Bivad. She is very uncomfortable but
hanging in there. On getting my email,
that would be fine but you will probably
have to ask the forum directors if this is
feasible. Again, it is fine with me. I
would like to communicate, through you, to
the forum how Janine is progressing. She
is limited to what she can do right now.
Clots.
Thanks for all the prayers, I am doing ok
right now. Janine should be in touch
before long. Thank you. Everything's
good.
God Bless,
jerry
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 32
jerry & janine Posted: 06-28-08 10:52am
hi jerry,was very glad to hear from you.
good to hear janine is doing better. those
blood clots are a bummer.hope they go away
. hope you and your family are doing well.
were you sick for a bit? hope janine
keeps doing better and hope her family is
well. hope she gets back on that heart
transplant list very soon. good luck
to you all... suzy
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 188
Suzyjane Posted: 07-08-08 08:49am
Hi Suzy,
Hope you are doing well. Have not talked
in a while. Would like to bring you and
the forum up to date on Janine's
condition. A couple days ago she had an
artificial heart implanted. It is the
Excor pediatric. Pediatric because of her
size. Berlin heart makes it. This will act
as a bridge to her transplant. She was
having a terrible time with her heart
enlarging. The bivad was in the way. She
seems to be doing alright and we are
looking forward to her actually getting up
and doing some walking. You might want to
look on the web under Berlinheart. It will
show the machine she got. Quite something.
I hope you are well and look forward to
hearing from you. Everything's good. God
Bless. jerry
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 32
jerry Posted: 07-09-08 18:02pm
hi there...very glad to hear from you. i
am a little familiar with the berlin
heart.i actually mentioned it to janine on
page 18 here on the forum on 5-14-08.i had
seen a show on it and it is something. the
one i saw was for children but janine said
she was like 5 ft. so i told her a little
about it . im so thrilled about her
getting that. i am told they are very well
made and work extremely well.
how are you jerry? hope your doing good
too.bless you all.. suzy
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 188
Suzyjane Posted: 07-18-08 13:58pm
Hi Suzy this is Jerry. Thought I'd let you
know that Janine is recovering from a
moderate stroke. Her speech is slowly
coming back along with her strength. She
should be fine. Hoping to get
plasmapherisis started soon. Will stay in
touch. God Bless.
Jerry
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 32
janine Posted: 07-18-08 14:31pm
oh jerry im so sorry to har about that. i
can only imagine how scary it must be
i remember you telling me about the blood
clots.i suppose one got away. i pray she
will recover completely from all this. i
am praying it will not be long for her new
heart...and i hope she don't get depressed
or give up. she will have a new life as
soon as she gets a new heart. how is the
berlin working out for her? was it the
cause of the stroke? thank you for the
update...looking forward to seeing her on
line in person soon.hope you are feeling
well.. suzy
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 32
janine and jerry Posted: 07-28-08 20:56pm
hello...i hope your both doing alright.
it has been a while since i heard from
you. please drop a note and tell us whats
going on.i thought i would have had a
message from you by now hope your
well.....worried...suzy
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 188
Janine from Jerry Posted: 08-02-08 18:18pm
Hi Suzy,
Sorry I haven't got back to you,but
just got back from vacation. Thought I'd
let you and the forum know what's going on
with Janine.
She has been quite sick, Between her
dialysis, her stroke and her broken wrist.
She caught it in the bed rail the day
after the stroke.
They started Plasmapherisis two days ago
and she is mostly sleeping through it. It
probably will last about ten days. She
should then be eligable for a transplant
at that time. Don't know how long it will
take . The dostor said she might have to
have a lung transplant also,and that the
first heart may be rejected because of her
system. That would mean two heart
transplants. She's got a long road to go.
She can still laugh though. We enjoy our
talks. Her family is trying to cope with
the ordeal also. Her husband is holding up
well.
I'm ok, having some valve problems,
but no complaints.
Hope you are doing well and I will stay
in touch. Everything's good. God Bless.
jerry
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 32
janine/jerry Posted: 08-04-08 17:19pm
hello jerry.im very glad to hear from you
.it's been a while.sounds like janine is
having a hard time of it. one thing after
another.she may need a lung transplant as
well as 2 heart transplants...wow...that
would be hard on a well body.
i can not tell you how glad i am to hear
from you.of course my mind runs away with
me and i think all kinds of things.thank
you very much for letting us know.
im sorry about her poor wrist.how
unfortunate is that???really a bummer.
i hope you can find the time to let us
know when she has her surgery...so we can
all pray for her.
hope you had a very good vacation...did
you get to visit janine?
i hope your doing ok too. bless you
all.and thank you again for the info. hang
in there janine ...your going to come out
of this smelling like a rose.
suzy
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 32
jerry Posted: 08-12-08 17:17pm
hello i would be very glad if you or
someone could let me know how janine is
doing? thanks, suzy
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 32
janine and jerry Posted: 08-22-08 14:40pm
hey someone let us know whats going on.
just a note is good.please. suzy
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 188
suzyjane on Janine Posted: 09-01-08 15:41pm
Hi Suzy,
Janine had a heart-lung transplant 3
weeks ago. She had a childs heart
implanted and the same childs lungs. She
asked me at the time not to tell the forum
for a little while to make sure how things
went. She is in rejection at the moment.
Mainly her heart is the problem. The
transplant cardio is trying to adjust the
right amount of rejection drugs which is
making her extremely sick. She has some
fair days and some really bad. She has
alot of will power and will beat this
eventually. She is just able to set up on
good days.
Her family is doing well and are a great
support for her. They are there everyday.
she has kept her sense of humor and that
helps everyone else. I wish we could have
let you know earlier but it was her wish
to wait.
She loves you all and hopes to talk
with you soon. Thankyou for your prayers,
Suzy, and all those in the forum. Keep
them coming .We'll talk soon. Everything's
good.
God Bless
jerry- jrod
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 32
jerry and janine Posted: 09-04-08 20:02pm
thank you for letting me know whats going
on.i was thinking all sorts of things.
janine ...you just keep your faith and
think of all the prayers coming your way.
please get well and be happy. prayers to
you and all your family too. i can not
imagine how hard all this must be.i did
read up on stuff.
jerry you take care of yourself also,god
bless you all.........suzy
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 32
janine andjerry Posted: 09-25-08 23:14pm
hello to you all. hope to hear some good
news about janine and jerry soon.
hope to hear something soon. wishing you
peace and gods great wishes for you both.
suzy
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 32
janine Posted: 10-01-08 21:12pm
this is me again. i hope i'm not upsetting
anyone by asking how its going...i hope
everyone is ok.it has been a while
.prayers to you all, suzy
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 32
jerry...janine Posted: 10-09-08 20:28pm
i hope i am not bothering you all.we would
just like to know you guys are ok....were
all praying for you....suzy