NIce to hear from you. No dialysis today
and I am so glad. I do not think I can do
it again today. I just woke up have been
sleeping off and on. Have to eat before
this nurse has a stroke. I always have one
nurse everyday in the bunch that is
miserable. Most of them are very nice. I
still feel terrible, but am smiling.
Jonathan is in Philadelphia for a couple
days. He left last night. My cardio said
no visitors today. I will try and talk to
everyone on the phone. I wish with the
exception of Luciana they would email me.
Ha Ha it is easier. How are you feeling?
Take it easy today! I think my cardio
wishes today was over as well. Very
serious today. Looking forward to hearing
from you later. Janine
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
redsoxgirl Posted: 05-14-08 06:49am
Good morning,
You had an e-mail I wrote last night
that didn't make it to you. I sent it this
morning. Going to school, I'll write in a
while. Take care. Everything's good.
God Bless,
jerry
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
JERRY jrod Posted: 05-14-08 09:23am
Hi. I got your email this morning. I just
thought you went to sleep early. Sorry
about Kristen and her seizures. I hope she
is doing better today. I hope you do not
have to do summer school, because you
should rest and enjoy your summer. I know
you probably want to work. Hope you are
feeling alright today. I have to have
dialysis today, even though my
cardiologist is not too pleased I have to
have it. I do like Norte Dame, and they
did have a horrible season! My mom and I
are Notre Dame fans, and my dad is a Penn
State fan. Jonathan is a UCLA fan. Believe
it or not the only Massachussetts based
team I like is the Red Sox. The Penguins
game was awesome. They are doing great.
Looks like Sid was saying a prayer before
the game. I was so tired, but was enjoying
the game so I stayed up until it was over.
No I did not ask my cardio for regular
coffee. I know better, especially when he
is so serious. I am craving shrimp! I know
that definaetly is not an option! Well
have to go my cardio wants to do an ekg
before dialysis. Have a good morning.
Janine
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
redsoxgirl Posted: 05-14-08 13:13pm
Hi,
Still in school. Just wanted to make sure
your doing ok with dialysis. My day is
going ok. I'll write a little later. Get
some sleep. Everything's good.
God Bless,
jerry
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 28
Janine Posted: 05-14-08 14:33pm
hi ..its me again...i just saw a video of
the berlin heart being used for people
till a heart was available.it comes in
different sizes and they are testing it in
the childrens hosps.if im not mistaken
your a very small woman?just a thought you
may ask your cardio about.
hope your doing ok...my prayers are with
you. suzy
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
Suzyjane Posted: 05-14-08 14:57pm
Hello. I have a biventricular assist
device in already. I am 5'0. Thank you
for thinking of me and your suggestion.
Hope you are doing well today. Thank you
for your prayers. Prayers are also with
you. Janine
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
Jerry Jrod Posted: 05-14-08 15:02pm
Hello.
Just resting from dialysis, and I still do
not feel right after having it. Maybe
after I sleep I will feel better. The
vascular surgeon was in, and said my
vascular studies on my legs still show
blockage free. My cardio has a cardiac
electrophisiologist coming in tommarrow
for the arrythmias that will not react to
medication these past few days. Hope your
having a good day. Thank you for your
messages today. Janine
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
redsoxgirl Posted: 05-15-08 06:44am
Good morning,
I'm sorry, I didn't make it up long
after I wrote you. In other words I
crashed.
Great that you talked to Jonathan
yesterday. I know he is very lonely
without you. Your E.P. will run a few
tests on you to see what part of the heart
is the problem. Maybe atria and or vents.
You will get a little something to put you
to sleep. His tests will probably help
decide what they do next. Again, maybe a
pacemaker. I'm not sure how that works
with a bivad.
I'll keep in touch during the day.
Don't worry about writing. Gotta go to
school. love ya. Everything's good.
God Bless,
jerry
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
Jerry Jrod Posted: 05-15-08 07:57am
Oh great! I did not think it would be
those kinds of tests. Oh well anything to
get out of dialysis haha! The EP is
supposed to come at 11am. That is ok you
did not write, because I figured you fell
asleep. Have a good day at school. Hope
you are doing ok. Will let ya know what
the verdict is. Thank you for telling me
about the EP tests. I thought it was just
going to be a bunch of scans and xrays.
Now I know it will be procedure like. I
appreciate your help. You do not have to
write me in the morning and afternoon. I
know you are busy. Just once either or to
let me know you are ok. We can talk more
at night. Not that I do not like hearing
from you. Talk to you later. Janine
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
suzyjane Posted: 05-16-08 12:11pm
Hi,
This is jerry writing to let you know
that Janine is having open heart today.
The doc found 3 holes in the heart that
was causing her arrythmia. I'll let you
know how everything went/ Feel free to
write me,Jrod. Everything's good.
God Bless,
jerry
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 28
jerry Posted: 05-16-08 13:20pm
well that poor little thing,she sure goes
thru it.open heart surgery.isn't that
dangerous with her heart so bad? do you
think this will make her better?will she
still need a new heart? i have atrial
fib...and left bundel branch block.i'm not
in a fib all the time .i have bouts of it
. i'm on sotalol and enalapril,warfarin
and digoxin for the a fib and tons of
other stuff for blood pressure,water
pill.
anyway..im praying for janine too...i hope
it isn't to hard on her body.i just can
not imagine her going thru open heart
surgery in her condition.also i can
imagine how hard it will be for her to
heal...well..dont want to take up to much
of your time...you sound like a very busy
man.thank you very much for lettin g me
know janine is in surgery.please let me
know how she is...thanks again...suzy
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
suzyjane Posted: 05-16-08 17:54pm
Hi,
Thought I'd let you know that Janine made
it through surgery ok. A few
complications, Jonathan said, but is doing
ok. Thanks for being there. Prayers work.
God Bless,
jerry
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 28
jerry Posted: 05-16-08 22:54pm
thank you very much for letting me know
about the outcome of janines
surgery..thank you dear lord!!!!
suzy
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
suzyjane Posted: 05-17-08 20:50pm
Good Evening,
I thought I'd let you know that I just
talked with Jonathan and Janine is still
on the respirator. She's had a hard time
of it. We'll stay in touch. Everything's
good.
God Bless,
jerry
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 28
jerry Posted: 05-18-08 11:36am
hi jerry, thank you very much for letting
me know about janine. i figured it would
be very hard on her. has she been awake at
all yet?how much will this help her ? will
she be back on the heart list again soon
now?
suzy
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 28
jerry Posted: 05-19-08 20:32pm
have you any more information about
janine? i'm praying for her .can you tell
me anything about her condition?how are
you doing? i hope your doing ok...not to
stressed .. thinking of you both
.suzy
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
suzyjane Posted: 05-19-08 20:55pm
Good evening,
Thanks for writing. Janine is extremely
weak. She'll be on the respirator for a
few more days. She's still very sick. I'm
fine. Just too hot in south Texas. Her
antibodies are down a little which is
good. It will get her that transplant
sooner. They still have a ways to go. They
are planning on doing plasmapherisis on
her when she's healthy enough. That takes
the antibodies out of the blood[plasma].
Will keep in touch and let you know of
any changes. Lots of prayers. Everything's
good.
God Bless,
jerry
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 28
jerry Posted: 05-21-08 13:18pm
thank you for letting me know. i sure hope
she is ok...and not suffering i can't
imagine .
i hope you are doing well and don't stress
out to much. i know you are worried about
a lot of things. please keep yourself
well.
let me know whats going on with janine.i
hope she is doing well...
suzy
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
suzyjane Posted: 05-22-08 17:15pm
Hi, Jerry here,
I talked to Jonathan and Janine is not
doing very well. Alot of internal
bleeding. Very bad. Will let you know and
keep you up to date. Everything's good.
God Bless,
jerry
|
suzyjane
New User, Becoming EHEALTHy
Joined: 05 May 2008 Posts: 28
jerry Posted: 05-22-08 18:27pm
oh my lord,i so pray for her to be ok.what
is your opinion of her condition ?how will
they fix the bleeding? im so scared for
them...i was shocked they did an open
heart operation on her.jerry do you know
what the internal bleeding is ?where it's
coming from?im saying prayers for her and
my family will also. thank you very much
for letting me know how she is doing.
god bless them and god bless you and
yours, suzy
