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Q: synemet responsive dystonia
asked by: brians on February 17th, 2008
New User
I am a 45yo man. When I was 31 I was diagnosed with Parkinsons. This, the doctor, based on the PK symptoms I had described. So, I was prescribed Synemet. I remember the immediate help this provided me, and has since. I still need to take it every day (four doses). However by the time I was in my late thirties the doctors began scratching their heads as my parkinson's hadn't progressed at all, and basically re-diagnosed me as having a "Synemet responsive dystonia", and this is where I am today. Over the last year or so, I began wondering (after considering that the medical industries primary objective is to throw drugs at everything) if it were just possible, that this dopamine deficiancy that I have could be an allergic reaction to something I am consuming every day. This has been weighing on my mind for some time now after hearing from a friend who suffered for years with something completely different. He'd been to doctor after doctor as they seemed to invent new medications that never helped him. After ten years of this, he went to a nutritionist and discovered that he was alergic to Wheat germ all along, and now is living his normal life drug free (and wheat germ free, I suppose). Is it possible that I too, am just having a reaction like that? Could I be alergic to something as seemingly harmless as milk fat, that if I just removed it from my diet everything would start working normally? I live in Tacoma Washington, is there a great nutritionist you'd recomend me seeing here in Tacoma? Or even Seattle? I am six feet tall and weigh 175 lbs.
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bakin_april
replied on February 25th, 2008
Experienced User
Re: synemet responsive dystonia
brians wrote:
I am a 45yo man. When I was 31 I was diagnosed with Parkinsons. This, the doctor, based on the PK symptoms I had described. So, I was prescribed Synemet. I remember the immediate help this provided me, and has since. I still need to take it every day (four doses). However by the time I was in my late thirties the doctors began scratching their heads as my parkinson's hadn't progressed at all, and basically re-diagnosed me as having a "Synemet responsive dystonia", and this is where I am today. Over the last year or so, I began wondering (after considering that the medical industries primary objective is to throw drugs at everything) if it were just possible, that this dopamine deficiancy that I have could be an allergic reaction to something I am consuming every day. This has been weighing on my mind for some time now after hearing from a friend who suffered for years with something completely different. He'd been to doctor after doctor as they seemed to invent new medications that never helped him. After ten years of this, he went to a nutritionist and discovered that he was alergic to Wheat germ all along, and now is living his normal life drug free (and wheat germ free, I suppose). Is it possible that I too, am just having a reaction like that? Could I be alergic to something as seemingly harmless as milk fat, that if I just removed it from my diet everything would start working normally? I live in Tacoma Washington, is there a great nutritionist you'd recomend me seeing here in Tacoma? Or even Seattle? I am six feet tall and weigh 175 lbs.


For my own info I've read a little about dopamine and haven't run across any reference to an allergen association. But anything is possible, you could get a work up from an ent or allergist.

My preliminary dx is essential tremor or early-onset PD (thus my interest in the dopamine process). I finally see a neuro next week.

There's a site called wemove .org that I've gained lots of info from. Very informative, it covers many of these conditions. They have a discussion board that would be more geared to your question and condition. They also have a pretty active chat room. You might check it out if you get a minute.

btw You may be able to get a referral to a nutritionist from your PCP, however, you might want to get the allergy testing for a start.

Good luck to you!
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