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Conditions and Diseases > Epilepsy Forum > I Seriously Need Some Help. I'm Scared.
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Q: I Seriously Need Some Help. I'm Scared.
asked by: chicnstu on May 4th, 2004
New User
I am a 15 year old male that has been having these "weird moments". During the moments I get an extreme feeling of "ownership". You know how you can look at something of yours and you get a different feeling than you do if you look at something that isn't yours? Well it feels like that during the "weird moment". Its like my subconscious is saying to me during the moments "there is my world, I have to get back". It's not actually saying that, it just feels like it. Its like I am in a daze and my left side goes a little numb. Lately I have been having them very often (maybe 2 or 3 times a day). They have become so much easier to trigger, all I have to do is move my left leg too much and it triggers it, it happens a lot when I stand up. I recently read some info on epilepsy and I think it may be that.

I also have these other weird moments when I stand up from sitting down for a long time. My eyes go black and I see a grid that is like pushed forward a little bit like a sphere.

I have another reason to think I have epilepsy, I am pretty sure I have autism. I have read a list of symptoms and I have almost all of the symptoms.

I need some help from someone to determine if I have it or not. I don't want to go to the doctor because I am afraid of them (autism thing). I am very very scared right now that I may die early from epilepsy so someone please help me with this. Are there any cures that you can do at home without having to see a doctor? Like maybe some kind of brainwave sounds?

Thanks for all of your help.
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Replies(5)
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ciao77
replied on May 4th, 2004
Experienced User
If you do have epilepsy, your neurologist can easily prescribe you some medication, most likely tegretol. But you cannot know the problem without first going to the doctor. I know you're afraid of doctors, but if this is left untreated, it could persist and lead to something worse. It is best for you to speak to your parents about this, i'm sure that they'll help you out and take you to a doctor ( it's your only option). I used to have epilepsy ( developmental seizures) and I was prescibed tegretol, which I no longer take. When I had seizures, I lost control and it felt like I was extremely dizzy. But I very rarely got them, and you say that you get what you think are seizures all the time. This signifies to me a more serious problem that may or may not be related to epilepsy. You should get a medication prescribed to you once the proper diagnosis is made. This website will not provide you with definative answers, just advice. So trust me, go see a doctor, it's the best thing for you to do. You won't regret it
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bubble1
replied on May 5th, 2004
New User
Hello

i can fully understand your situation. When I was 17 my hands started jerking above my head and it scared me so much, I didn't tell anybody about it. I was scared it was something serious that I kept fooling myself into believing it was nothing to worry about and ignored it.

Eventually, I had a grand mal seizure in front of my mum and dad and I was taken to hospital. I was referred to a neurologist and given medication which controls my epilepsy.

It was such a relief when I had a grand mal seizure in front of my mum and dad and they found out what had been going on because I told them that my hands had been jerking above my head on and off for a while. They were upset that I hadn't told them and were upset that i'd been worrying on my own.

Could you tell your mum and dad what you have been experiencing or maybe tell a family friend / relative who you can trust and talk to. It always easier to talk to people about things that are bothering you when they aren't so close to you. This is probably because you aren't worried so much about their reaction - I know that I didn't tell my mum and dad for so long because my concern was that I didn't them worrying.

Once you've told a family friend / relative then maybe they will speak to your parents for you and explain to them that you're feeling really anxious because you don't know what's going on.

I understand that you are scarerd about seeing a doctor but you will have to go and see a doctor. If you don't, you will continue having these experiences and not know what they are and it's highly likely that something can be done to control them by taking medication so that you can lead a normal life.

Once your parents know, you will feel better having their support. Let them know how anxious you are ask them to go to the doctors with you and take them into the appointment with you. I always took my mum or dad with me.

Good luck and take care
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chicnstu
replied on May 6th, 2004
New User
I have been trying for a while to get my courage up to talk to them about it but it isn't working. The fear isn't like a normal fear or phobia, I can't really explain it that well. Just read a little about autism and you will understand mostly. I believe it is the confrontation that scares me. I dont even like meeting new people or relatives I haven't seen in a long time.

I also dont want to be asked those stupid questions that the doctors ask you (do you have any girlfriends?--no. Do you want one?--yes. Do you ever feel sad for no reason?--yes.). I'm afraid I will find out I have some kind of major problem and i'm going to die before I am 18. I just dont want my mom to be sad and cry.

All my life I have had this feeling that I am going to die before I turn 16 or 18. I just cant see my future, being a grown man, having a wife, having a job...Etc.

I often have thoughts of killing myself just to get it over with. I know its not the right thing to do and it would hurt my mom even worse but I cant help the thoughts because I just have so many problems. You can't even imagine how many problems I have. I have been taken to doctors many times when I was little because I had some kind of problem and the doctors tell me that the problem has never happened before, that I am the first to have that problem.

Are there any online diagnosis sites? It seems like there would be.

I'm so upset right now that my eyes are full of water.
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sami_1982
replied on May 6th, 2004
Experienced User
You Need a Hugg
Sounds to me like you have anxiety, I know its one thing to sit here and have me say this to you. As young as 4 yrs old I would walk around the house feeling bad, I can remember it all clear as day right now. When I felt down and sad about my life in my early teens because I thought I was growing up wrong because I didnt like boys, because I was attracted to other women, I thought I was strange and that my parents would hate me. That was just icing on the cake for me. I started to think silly things alot of silly things. Like I wasnt real. I was so scared of doctors I didnt want to go anywhere I was scared of other ppl, I wouldnt go to frirnds houses either. Just remember you are your own person and you dont have to do anything that you dont want to do ok. Just say no. I had a great friend at school who didnt let on that he was feeling sad and things like that and he finally went to the doctors and had alot of tests done and he is schitzophrenic. I mean I still dont know exactly what is wrong with me. But I got over the hurdle of telling my parents that I was gay when I was `15
i have taken myself to doctors now and still not a full diagnosis but I have been diagnosed with tonic clonic and partial complex seizures. And before all this was done I had to see a shrink. And I was so scared because what I thought my entire life inside me, in my heart of me dying at an early age every one thinks like that. And my shrink said I was fine I kept seeing her to talk about how I am going but I dont need to see her anymore. Im moving on with my life. I am 21 yrs old now. As you get older you learn to not be so scared. Mate you are older now and if your problem as a young child was so bad (one of a kind) you would have been tested for everything and prehaps it was a phase you went through as I did as a young child. You are older now and you can tell the doctors how you feel your self. I am here if you need to chat ok mate.
Take care sami
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chicnstu
replied on May 9th, 2004
New User
Thanks, I guess i'll keep trying to get my courage up. I doubt I will be able to but i'll keep trying.
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