I been having pain since I had some dental work early 2006. Recently, in May 2007, and then October again, I had MRI done, both times it showed a cyst on the right side of TMJ condyle. It is approximately 0.3 mm in size and could be seen as a white dot on the MRI. What's hurting
me most is that I am unable to function properly anymore. I have strong desire to continue my education, work, but I am unable to do so because of pain. This strong pain recently was also joined by loss of energy, serious loss of appetite. I now know that I can end up in hospital if I do not force myself to eat. I used to eat 3/day rich food. Now I depend on soy milk, soft foods such as fruit. Today I did not eat yet, it's now 3 pm. I do not want to eat due to extreme pain, difficulty getting up. What's more stressful is that I am young (24 yo male) and never faced such condition before, only thing that I can compare this to is an instance of very bad flu (when body hurts, you cannot get out of bed easy).
To complicate things more is facing egoistic doctors who are so used to people complaining of aches that when you say pain, or even worse, chronic pain, and it passes their heads in one ear and out next.

It's hard toy understand why doctors do not take pain serious and look at it pervertedly. I almost feel that unless patient come in with a visible tumor on his head, doctor is not willing to do much. Even then, who knows
how some doctors might response, I bet some might yawn and look the other way.
It is strange, that when I saw oral surgeon, he was more concerned about a "cyst" which he though I had in my mandible (jaw) on the other side of the face, even suggesting surgery to remove it! I told him, "Doctor, I do not care much for that, I have a problem on my other side of the face, remember - it has a cyst"? To which he continued, I do not think you have a TMJ problem, appearance of cysts is quite common and unusual, I would not be concerned about that." This is nothing compared to what the other oral surgeon said after I left him a CD with MRI results. He called me and said that he does not "see anything wrong". Now I am waiting to see oral surgeon at UIC who is the head of the department there. After my first visit there he prescribed physical therapy and appeared very unconvinced. He also conirmed a possibility of a cyst on the other side of the jaw and suggested to remove it, while not showing any care for the one on the other sided in the condyle. It almost feels as if they do not know or do not want to do anything surgical about my TMJ, although they would be willing to operate on "a cyst" on the other side of the jaw which is not causing a bit of a problem and was found coincidently.
It makes me feel that it is better to keep quite about your feelings, and hope that your body starts shaking, your skin becomes pale, body temperate changes - otherwise, you can talk all you want. One more thing, DO NOT dare to use medical language or appear smart in front of the doctor, they might just label you "obsessive compulsive person who reads everything too much, schizoid paranoid type personality." It appears there is a huge emphasis on SYMPTOMS versus SIGNS in medical community. I am hoping to get into occupational therapy masters program, and from my initial reading of "Occupational Therapy by Willard and Spackman" it is not uncommon for doctors to show lack of concern about overall well being and health of a whole person. Doctor's will cut of the arm and send the patient home, not realizing how it might impact his/her ability to function.
Most distressing is not knowing what future holds or what can be done. I cannot imagine how to continue normal life and be able to take care of myself long term in such conditions, I just feel like I'm wearing completely down, barely able to shop for groceries, cook, clean up, talk, do homework for school.
By the way, I have recently developed a strange lump, which was diagnosed as a salivary gland inflammation and also a small nodule on the back (dorsal) right mandible.
Here is the copy of MRI report, which I scanned and ran through OCR program.
MRX1 -€751
10/09/07 06:06 PM
INGALLS MEMORIAL HOSPITAL
-------------------------------------
M --
MR#: ----------------
INDICATION: PAIN. RIGHT JAW PAIN.
RIGHT SIDE:
THERE IS A TINY HIGH SIGNAL ROUND LESION IN THE RIGHT MANDIBULAR
CONDYLE, BRIGHT ON T2 IMAGES, SERIES 6 IMAGE 9, CONSISTENT WITH A TINY
3 MM CONDYLE CYST.
THE RIGHT SIDE CLOSED-MOUTH IMAGES SHOWED THE POSTERIOR BAND AT 11
O'CLOCK POSITION. THERE WAS NO TRANSLATION FROM CLOSED TO OPEN MOUTH
POSITION. THE POSTERIOR BAND REMAINS IN THE SAME POSITION.
LEFT SIDE:
THE BONY ARCHITECTURE LOOKS NORMAL. THE POSTERIOR BAND IS FLAT AND AT
THE 12 O'CLOCK POSITION. THE LEFT SIDE SHOWS MINIMAL TRANSLATION TO
THE OPEN MOUTH POSITION WITH THE POSTERIOR BAND MOVING TO THE 1
O'CLOCK POSITION.
IMPRESSION:
1. POOR TRANSLATION RIGHT MORE THAN LEFT SIDE FROM CLOSED TO*OPEN
MOUTH POSITION.
2. RIGHT MANDIBULAR CONDYLAR CYSTS.
DICTATED ON: 10/08/2007 03:18 PM
TRANSCRIBED ON: 10/08/2007 03:19 PM
SIGNED ON: 10/08/2007 07:12 PM
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