Ne1 Feel Like Their Eyes Are Shaking From Side to Side

hello, i came across your post after searching and searching for something like it on the internet. I have the same sensation, as if my eyes are moving back and forth very rapidly and i feel like i'm spinning at the same time. It lasts anywhere from 10 seconds to 10 minutes. Sometimes it happens when i'm watching TV or on the computer or with no apparent visual stimulation, but always when i'm lying down or sitting. Its never happend when I was standing or driving. I've been to a few Dr.'s and a neurologist, had a CAT scan, an MRI and an EEG, and no one could give me an answer. I was told it could be seizures or migraines or possibly something else. You're the first person I've ever come across with the same symptoms, and even the doctors said they'd never heard of anything like this before. Have you learned anything more about your condition? If you have, i would love some insight.
Thanks

Hi ne1. I haven't been on this site for a litttle while but I am a member. I go by coolcat46. I have epilepsy. Ever since I had my first tonic clonic back in my early 20's my warning side would always be with my eyes. The very first time before my first seizure I was living at home at the time and was looking a a mag or book. All of a sudden the words were all jumbled, and I couldn't make out any words at all. I went and lied down and then I had a seixure apparently. Had a mri docs said I had a small lesion at the back of the right side of my head where the optic nerve is,. It isn't a tumour just likea abnormal blood vessel. I started off on dillantin which worked well for a long time. then too cut a long story short went on keppra as dillantin became immune and keppra worked until dosage increase in december07 then started getting bad physcosis and hallucinaations. Anyway I no longer had tonic clonics but the eyes would still play up especially around that time of the month, but the symptoms were different. Sometimes when I would be watching TV they would all of a sudden feel like they wouldn't focus and they were just moving from side to side. I sometimes get colours or the first number or letter would be blinding so I could not see it. Like the sun or aa bright light is shining on it and you cannot see the letter or word. I am now back on dillantin, too go off keppra which I am now off. But I still have the funny things with the eyes but thats it doesn't go further. They are part of what the docs or neuros say, a complex partial. Usually before or after I will have a pain in my eye. Sometimews it will happen when I am on computer too long. It lasts a minute or so. Since being basck on dillantin 230mgs, I do not get the eyes playing up much except at that time of the month for us women. Sorry I raved on. I am waiting for newer anti epileptic drugs,(AEDS) too come out then I might go on something else. Dillantin seem to be going okay again at the moment. Thanks hope thaqt I have helped.