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Cancer > Bone Cancer Forum > Osteochondroma vs. Osteosarcoma
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Q: Osteochondroma vs. Osteosarcoma
asked by: sharon4402 on February 6th, 2008
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I have a five year old who was diagnosed with an osteochondroma on his right knee a little over a year and a half ago. We called our dr. on a Friday evening as he had been limping for a few days and complaining of severe pain. He met us at the emergency room at 7am the next morning. We had an xray done and he then referred us pictures in hand to an orthopaedic surgeon. This surgeon reviewed the xrays and said it was just an osteochondroma and that we shouldn't worry. We would just watch and see how it grew and that it would be removed before it became problematic. It has grown and he has been complaining of pain again off and on for the past few months. I am beginning to worry as last week I received a call from his teacher saying that he seemed to be having trouble writing. I questioned him on this and he said it was hard because his arm hurt. I asked him to describe the pain and he said it was like the pain in his leg. I need some advice. Everything I have read says that osteochondromas are very rare in children under 10. I also feel that some other form of testing should have been done. I heard the news I wanted to hear, so I never second guessed them, but now I feel I should have. I called to make a follow up appointment, but he cannot be seen for several months. Has anyone dealt with osteochondromas and more importantly a misdiagnosis of osteochondroma. I have tried to find another orthopaedic, but none in a 50 mile radius will see a child as young as him. I am frightened and don't know what to do.
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MandMs
replied on February 8th, 2008
Extremely eHealthy
Hi!
Osteochondroma is the most common bone tumor in kids and it can be manifested as solitary or multiple tumor. There is a some percent of possible malignant transformation.
Has this mass rapidly increased in size?
Is your son with short stature?
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dtb
replied on August 14th, 2008
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Update
Can you give me an update with what ended happening in your situation? I have a son in the same situation. He has been limping for over a year, diagnosed with the osteochondroma last March and told to wait. It has gotten worse over the summer. More limping and even screaming during our vacation two weeks ago. My pediatrician gave me a name of a pediatric surgeon, 40 miles away and another 3 hour drive away. So, I will see what happens next week. He just turned 4. If you can give me an update on you situation that would be great. Any info is helpful.
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AmieG78
replied on January 9th, 2009
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osteochondromas
Hi, I hope that I can help. My 13 year old son was diagnosed about 5 years ago. We took him to our ortho-surgeon upon the advice from our family Doctor. The surgeon decided to go in and do surgery and never once reffered us to a pediatric ortho. We then took him to a larger city and to a specialist and he told us that he would not touch him because he really needed to see a pedi ortho. The Osteochondromas can become very painful and can cause deforming of the bones. If he is having pain you should not wait another several months. We are currently taking our son to Shriners hospital for children in Shrevport, LA. I don't know where you live or if you have a shriners hospital around you but, they are wonderful. They have been very helpful. If you are not able to get him there they can provide away. What ever means possible. I hope that your child gets to feeling better and should you have any other questions that I can help you with please let me know.
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hopethishelpsabit
replied on April 24th, 2009
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hi
if this helps you any, I was diagnosed with osteochondroma when I was four and I've been treated four the last 17 years at shriners hospital to remove them. The chance of an osteochondroma turning into an osteosarchoma is less than one percent, most people notice it after they stop growing. On a darker note, a recent study was done on children who have osteochondromas and it was found that many of them had an osteochondroma in their spinal canals, myself included. Although the tumor it's self is not life-threatening, it could compress the spinal cord or if the neck suffers some kind of trauma, it could cause the individual to become paralyzed depending on the position and size of the tumor.
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smalltowngal
replied on June 5th, 2009
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My son (13)was diagnosed with this a couple of months ago. We noticed it because he had this large "lump" on the side of his leg. It is about 4 inches above the ankle. The xrays showed a 2"x1" growth on his tibia pushing against his fibula, which is now bent(this is what was causing the "lump"). We took him to a ped ortho dr who said to do nothing!!! We went back to my ankle/foot dr who was amazed, to say the least. He agreed to do the surgery next week. He has since discussed his case with several other doctors who all agree that this needs to be removed so that it does not keep growing which can break the fibula. It is not on his growth plate. I have an xray if anyone would like to see it, I can email it.
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luis42
replied on October 9th, 2009
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My only son is having that problem, his is all over the body Multiple Osteochondrosis he had surgery on his both arms already. Right now he is 11 years old he had some bumps but it's not hurting... yet, his height is still normal. They say it is hereditary, in his case is different me and my wife's family does not have any bone problems. The only thing I can think that causes my sons problem is exposure to x ray radiation, my wife is operating room nurse, the possibility that she was exposed to radiation when she was pregnant was too high. X ray radiation damaged my sons genes that causes his bone problems. For people with knowledge about x ray and radiation, is it possible that, what I am thinking is right?
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lilangel09
replied on November 12th, 2009
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hi i have osteochondroma it is hereditary i got it from my moms side my mom also has it. You can learn alot on the internet but more from the doctor i think what you should do is to find a like a bone doctor i already had one bone spur removed but you can't remove all of them because they grow back and the more you remove them they are cancerous so it is something your son will have to live with. I am 18 years old and i was born with it for the pain have him take Tylenol or ibuprofen well something for the pain. the tumor will grow as he grows but i just thought i would let you know about it from someone who has it. I hope that i helped you.
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griffo
replied on November 17th, 2009
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Osteochondroma
Hi,

My daughter is 13 and we have found a osteochondroma at the top of her femur in between her leg and pelvis (just below her hip socket)which in turn has deformed her hip socket and the ball of her femur, the pediatric ortho surgeon said she has probably had it about 10 years but has never seen it in that spot. We have had an MRI because he thinks its about the size of a tennis ball. We go back tomorrow for results on what they are going to do next.

Anyone got some advice on what we probably should do?

Its a pretty scary thought to think that she might have to have a reconstruction of the top of her femur as it looks like a stump.
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