I shall attempt to summarise what has happen to me regarding my eye swelling issue:

My initial symptoms were a small lump under right eye lid which grew to the size perhaps of a grape seed. I became alarmed and was originally referred by my GP to Dr Z.

Dr Z assessed the condition as being fairly common type of infection associated with the eye duct or glands under the eye lid. This lead him to prescribing anti-biotic treatment and, a bit further on steroid treatment.

The initial anti-biotic treatment got nowhere and in desperation I attended the QE2 Hospital casualty department because of the pain that was associated with the condition. The junior doctor there (apparently associated with Dr A tried to cut the lump out. This attempt was unsuccessful and as a consequence the condition deteriorated.

I then visited Dr Z again. Understandably he was very upset and annoyed with me for allowing this occur and our relationship deteriorated somewhat. He prescribed further stronger courses of anti-biotics and steroids. The Latter eventually resulted in the swelling going down for a short period. It than deteriorated even further after I ceased the steroids.

After seeing a couple more specialists I was hospitalized when the condition deteriorated even further and eventually spent 7 days in QE2. Whilst in hospital all sorts of test were done. Initial MRI’s suggested that this was a cancer of types and the doctors treating me became very concerned as a result of this indication. However subsequent test have eliminated cancer.

The tests were unable to assist the specialists in concluding what the cause is. It is Ideopathic. I think I have had the full range of test available and it is still not clear as to what the cause of this condition is. I have even had a Lung biopsy to eliminate emphysema and T.B.

Eventually after my release from hospital Dr A put me back onto steroids. Steroids have reduced the swelling almost back to normal, I have now been off them for 3 weeks. The steroid treatment had unfortunate side effects which caused me much anxiety so I am happy to be off them. I still do not have any answers though. I am keen to hear any similar stories, suggestions or thoughts - I would be very grateful. Thanks.