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severe sinus pain under eye and in jaw

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About once or twice a year, it's happening right now, I get this escrusatingly terrible pain in my sinus area. It is usually on the right side, under my eye and usually goes all the way to my ear, temple, upper head. Many times it is also in both upper and lower jaw and teeth I have even felt it down the side of my neck.

Here's the kicker. It only happens at night, usually right after going to sleep. I cannot lay down at night. I stay up until 3 or 4 in the morning and can usually then go to bed without pain. I can lay down in the day with no pain.

Antibiotics do no good at all, or advil, aspirin etc. Sinus medicine rarely helps. The only thing I can do when it hits is drink hot liquids making contact with the roof of my mouth, usually 2 cups of hot tea will relief the pain. Heat from a hot cup or hot pack or heating pad will sometimes help too.

The pain cannot be likened to anything I've ever felt including migraine. It's like a ordinary sinus headache times 10. If it lasted more than a short time I would go mad. It hurts so bad I cannot even cry--until after.

It happens every night for about 2 weeks. Last spring it was 3 weeks and right now I'm on about day 10.

I do have some congestion sometimes and I do have allergies. But I don't have anything like a cold.

It seemed to begin about 5 or 6 years ago when I had the flu.

Does anyone else have anything like this? I have read about cluster headaches and sinus, but I'm really confused as to which it is. Naturally I've seen my doctor, but he's clueless too.
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First Helper kimberlylarae
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replied February 5th, 2008
I'm not a doctor, but from everything I've read about migraines and sinus infection (I've suffer from both), it does sound like cluster headaches.

Has your doctor done anything else to find out if it's a sinus problem?
I really think you should see your doctor about it again. Don't let them fobb you off. Press the point that the pain is unbearable. And if they don't, carefully suggest having a head scan, as this will often show up problems with the sinuses.

If they are cluster headaches, as you probably know there's not much that can be done to properly treat them. But there's no point assuming that they are until more investigation is done. If you're in doubt, keep talking to your doctor. Good luck, please let me know what happens.
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replied February 5th, 2008
Sinus or cluster
I saw a sinus specialist Friday and he really feels it's cluster headaches. He looked into my sinuses and said they look good. He wants to be absolutely sure it's not sinus before referring me to a neurologist. Today I had a CT, I don't know the results yet. He did prescribe something for the pain thank God, and so far I've been sleeping through the night. It's such a blessing to be able to lay down and go to sleep at night (knock on wood).

I keep thinking that the pain will find some way to break through the medication's defenses. I think the pain has made me a little paranoid. There are some medications that are suppose to help and may prevent the cluster headaches. So far my headaches are acute and not chronic so I don't have to fight them all the time. I so, so hope they don't become chronic. This "spell" has lasted about 3 weeks now.
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replied February 27th, 2008
PAIN
I have just started to have this pain you are having. Ccan you let me know what your CT showed?

I was given an antibiotic 875mg twice a day for a sinus infection this is about gone but the pain is still here.

Any input would be greatlt appreciated.
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replied June 13th, 2012
Sinus pressure/eye pain
I'm having the exact same thing, The pain is so bad there is no way to even describe it. I've been trying all types of pain meds but nothing works. Problem is my body is so numb from them I could probably cut off my finger and not know it, but the pain in my eye/face is so strong that its unaffected by them. Steroids help allot to reduce swelling but when the pressure hits and that pain starts, its like being hit like a mac truck. I'm also scheduled for a CT scan. This has been ongoing for me for about 5 weeks. Hope to hear some good news from anyone here, and will do my best to keep you all updated on my end.
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replied July 12th, 2009
Severe sinus headaches with right side facial pain
I've been dealing with this for 8 years. I was diagnosed with trigenimal neuralgia but I know that it's not. It happens an hour after I lie down and can last about or so with this happening several times per night. I have been on every kind of pain medication u can think of to no avail. Sometimes codeine and Tylenol 4 help if I catch it in time. I had two sinus surgeries but that left so much scar tissues in my sinuses that they cant operate any more. I was told this is a lifetime condition. At times I feel like my jaw, cheek and eye are going to explode.

One thing you should do is get on blood pressure medication as pain increases your blood pressure and can cause u to have a stroke.

The next thing you should do is not smoke or drink.

The only medication that helps me is a prednsone pack.
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replied December 20th, 2009
I know this is an old post, but what was your final result kimberlylarae ? I have the exact same thing to the letter and am not getting any sleep. I sure would love to have a cure!
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replied January 23rd, 2010
Headache while sleeping
I have the same problem (for the past 5 months), and like you I've tried everything. The ENT said I have sinus migraines. He said to try sinus rinse and noise spray, both didn�t work. My neurologist said I have facial migraines and recommends a medication to take every day or do boxtics, both of those I�m not too keen on. CT scan on my sinuses and brain was normal I finally went to a health store and told him my problem. He told me to try Japanese mint oil. This holistic healing he said is all nature. The oil is good for lots of thing including congestions, headaches of all kind. So I bought some (I was on my last leg and had nothing to lose). So at bed time I put a drop behind each ear and a bit on my forehead. You only need a tiny bit. And for the first time in 5 months I couldn�t believe - no pain in my sinus and slept 4 hours straight. I had a bit of a stuffy noise so at 4:00 am I put a bit more and it worked wonders. It works for me. Give this a try, you have nothing to lose. Try not eating dairy, I have the same problem (for the past 5 months), and like you I've tried everything. The ENT said I have sinus migraines. He said to try sinus rinse and noise spray, both didn�t work. My neurologist said I have facial migraines and recommends a medication to take every day or do boxtics, both of those I�m not too keen on. CT scan on my sinuses and brain was normal I finally went to a health store and told him my problem. He told me to try Japanese mint oil. This holistic healing he said is all nature. The oil is good for lots of thing including congestions, headaches of all kind. So I bought some (I was on my last leg and had nothing to lose). So at bed time I put a drop behind each ear and a bit on my forehead. You only need a tiny bit. And for the first time in 5 months I couldn�t believe - no pain in my sinus and slept 4 hours straight. I had a bit of a stuffy noise so at 4:00 am I put a bit more and it worked wonders. It works for me. Give this a try, you have nothing to lose. Try not eating dairy foods and drinking alcohol. Hope this helps.
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replied March 25th, 2010
2000--I had an untreated ear infection that got worse and (I know) damaged my inner ear somehow. It was constantly "plugged up." It hasn't been right since. Frequent ear issues ensued.

2001--ENT Specialist said there was nothing wrong with my ear---he was NUTS!--all his expertise gone to waste--as tho after almost 50 yrs with the same ears-maybe all of a sudden I don't know how they are supposed to feel when working right! Had weird "fluid" (very liqiud not viscous like sinus fluid) that came out of my ear at times.

2007--Then I had a "critter"--spider? climb in my ear and I felt a "stinging" that felt like a bite. It made my ear hurt for a while then diminished.

2008--Started having VERY debilitating headaches--hot poker stuck in my head, wet myself, puke and screaming type headaches. They were infrequent at first (1 in 3 mos)but now have progressed to sometimes 3 or 4 times a night I am awakened by them.

The pain hurts like fire on my right side from above my temporal lobe down to my eye and ear and all the way to my upper and lower jaw both of which has significant dental caries. My eye is losing accurate sight.

Then I started experiencing muscular "tightening" where I feel rigid and achy. Preliminary consults with Doctors brought sinus issues up, then migraine--atypical so I did not think it was an accurate diagnosis.

Then the headaches progressed to having so many that I am not functioning very well AT ALL! Went BACK to the Doctor who sent me for CAT Scan--which showed a "mass." So HOW LONG has THAT been there????--to be readily found by any other of the Doctors whom I've consulted about this?

My research has shown that I most likely suffering from Cerebro Spinal Fluid loss at first into my ear then down the back of my throat. This loss of fluid allows a part of my right hemisphere of my brain to sit down on the structure underneath it. This causes EXTREME headaches!

This is SUPPOSED to be a rather rare condition--but from the number of comments on this site, I suspect that it is not quite as rare as the "Doctors" may believe. The "mass" is most likely a part of brain matter or pituitary matter that is out of place--which is no doubt what I occasionally hear shifting when I move my head position.
Now they expect me to live with this level of pain and incapacity for TWO MONTHS to wait for an MRI and then no doubt TWO MORE to wait to see the neurologist.
I am SICK of Doctors that do not listen and just dismiss what I KNOW to be FACT about MY body!
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replied June 30th, 2012
I have the same issues and it got so bad one time that my pupil actually burst. I went to the neurologist and had a plethora of tests done including a doppler of my brain waves and an angiogram.
Turns out that I have narrowed arteries in my brain which causes these headaches.
Some things to avoid if you think this is the case: diphenhydramines(spelling?) which are usually found in sinus medication, smoking cigarettes, drinking alcohol, and anything that is a blood thinner like asprin.
Some outside factors that also don't help the headaches: grinding your teeth, chewing gum for extended periods of time, clenching your jaw for any reason really, lack of sleep, lack of water, and crying a lot.
If you feel like you can't live without sinus medication, like me, there are some herbal remedies that really help. There's this medication that's available at Wegmans (if you have one near you) in the nature's market section that's specifically for sinus headaches and it's made by a brand called Boiron(again, spelling?) and that works wonders for me. Also you can buy like eye masks that you either put in the microwave or freezer and that will alleviate any pain you have in a matter of minutes, guaranteed. The masks also work on the back of the neck if thats where you get the headaches.
Make sure you do a lot of research into naturopathy and herbal remedies before you go in for tests because a lot of the time going the holistic route is friendlier to your body, and to your wallet. (especially if you don't have health insurance)
Good luck!
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replied October 23rd, 2012
I can see by reading this thread I am not the only one who is suffering from this condition. Mine just started, I mean it started last week and so far this week I have had it twice. And like many of you have said it is a pain I cant describe other than it gets so intense at times I feel like I could throw up and the pain can stretch from the top of my head all the way down to bottom side of my jaw.
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replied October 23rd, 2012
I can see by reading this thread I am not the only one who is suffering from this condition. Mine just started, I mean it started last week and so far this week I have had it twice. And like many of you have said it is a pain I cant describe other than it gets so intense at times I feel like I could throw up and the pain can stretch from the top of my head all the way down to bottom side of my jaw.
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replied January 20th, 2013
My mom suffers from these horrible pains described in the previous comments. We tried Eucalyptus and it helped only a little. Then we tried Olba's inhaler and it works great. As soon as she feels the pain coming she uses Olba's and the pain stops immediately. Please try it, it might help you too.
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