7 weeks ago I was diagnosed with
autoimmune hemolytic anemia. I am an other
wise healthy 37 year old female. And until
a 7 weeks ago I had never heard of AIHA!!!
I spent 9 days in the hospital and
needless to say I was scared to
death!!!!!!
MY hemoglobin was at 4.4 when I got to the
hospital, and I was in need of a
transfusion but the anitbodies in my blood
were'nt allowing me to get one, and I was
started on Prednasone 100mg a day. The
Dr's wanted to remove my spleen the 2nd
day, but my concern was the I didnt have
any blood and they could'nt give me any
and what if I bleed during surgery. His
answer was " we will just make sure that
doesnt happen". That wasnt good enough for
me, so I refused surgery. I KNEW that if
I had surgery that day I was going to
die.
Well its 7 weeks later, and my immune
system is still completely out of wack,
my hemoglobin in back to 10, I still have
a positive Coombs test, and now my
platelets are getting high. My am on 60 mg
of Prednasone. The Dr is again talking
about removing my spleen.
Does anyone have any information on
experiecne with this and cane give me some
advice?
Im worried about my spleen being removed
because I get sick quite a bit, I get
broncitius a least twice a year. And I
dont want to be on antibioitics all the
time.
Thank you
Barbie, my daughter also has AHA. She is
scheduled this Monday to have her spleen
removed, but we are not sure we will just
yet. Heather has other complications as
well. She has Hepatitis C and Portal
Hyper Tension. She is 32 years old. She
has been treated with Prednisone and other
steroids and has been give IVIGG (Immune
Gamma Globulin by IV)...and countless
blood transfusions. Her type O- can be
matched but her antibodies are hard to
match so her transfusions are not always
compatible or helpful. It is getting
worse for her. She has had to have
transfusions almost every 2 weeks.
We are opting to try homeopathic
remedies...such as Hemotab or
Biofeed-back. You might want to look into
such things for yourself. Good luck and
may God bless you!
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rogersjm2
New User, Becoming EHEALTHy
Joined: 13 Aug 2008 Posts: 1
In Remission from Warm Antibody Hemolytic Anemia Posted: 08-13-08 13:59pm
Rituxan saved my life. I tried everything
to cure my warm antibody hemolytic anemia
and nothing worked. The Dr. treated me
with Rituxan and I've been in remission
for almost 18 months now. Don't get your
spleen removed it didn't help. Rituxan is
the way to go (four treatments one week
apart). Way better than prendizone,
Danizol and all the other drugs. I feel
great now!
