I have known that I have PKD for 32 years.
Now I am in kidney failure. I am 50yr
white male and until recently in decent
health otherwise. My father and paternal
grandfather both had PKD and had kidney
failure. Still I don't know much about it
because my father was not the type to talk
about his situation and he did not know
until he was already in complete failure.
I have a number of maladies that have
shown up in the last couple of years. My
Dr says they are not related but I am
having my doubts because they started when
my function got down in the low 20s%. I
spontaneously started what I believe to be
irritable bowel syndrome (very mild but
getting worse). Also about the same time I
developed Plantar Fascitis (heel spur)
that doesn't fall into the normal risk
factors (not overweight, normal arch of
feet, and not excessive exercise) and it
does not seem to respond to treatment.
Sometimes I have trouble getting my breath
especially reading out loud. My eyesight
has definitely gone downhill in these last
two years. Sometimes I can hardly read
and other times it is better (I know about
degenerate eyesight from age but I don't
think this is it). I have had about 10
episodes in the last year of severe cramps
in my lower calf muscle during sleep so
painful I wake up screaming. The cramp
lasts about 30 seconds. If they lasted 5
minutes I would probably pass out. Most of
the time I do not sleep well and my legs
are usually sore when I wake up. Here is
the weirdest thing and I am really anxious
to hear if anyone else has experienced
this. I have not had a viral respiratory
(cold) in 2 years. Everyone in my house
(my wife sleeps right next to me) has 2or
3 a year, friends at work, etc all
regularly expose me. I have always gotten
2 or 3 a year but now I appear to be
immune. Anyone else notice that? Is it
possible with my chemistry change the
virus can not get a foothold? Anyone else
relate to these different maladies? I
can't believe they are not related? They
all started around the same time on a guy
who was always well otherwise.
This is in response to peace4u's posting
regarding his symptoms. I am aware of the
problem with leg cramps and active bowel.
The former is likely a result of low CO2
in the bloodstream and the onset of
anemia- you can take sodium bicarbonate
under the care of your physician to
ameliorate the cramping. Also stay away
from all dark sodas and alcohol (wine in
moderation is ok). The stomach/bowel issue
may be the result of medications that you
are taking- ask your doctor. This is
frequently the case, especially if you
have been on some meds for a long time.
As the disease progresses, you will
probably need EPO to address reduced
hemoglobin as the kidneys continue to
fail. That will help stop any chills or
dizziness or weakness stemming from the
anemia. Also will increase your appetite
if it has been lost.
Hope this helps and good luck!
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angelina33
New User, Becoming EHEALTHy
Joined: 02 Mar 2008 Posts: 2
PKD Posted: 03-02-08 13:41pm
My Father has PKD and irritable bowel
syndrom. He complains of leg cramps as
well, and associates them with taking too
much fluid off while dialysing. I know
that numbness in the feet is a sign or
neuropathy which is a result of kidney
failure. Just wanted to share this info
with you.
take care
|
oumatoet
New User, Becoming EHEALTHy
Joined: 14 Mar 2008 Posts: 1 Location: , Republic of South Africa
Does anyone have any information regarding
Oral, Facial, Digital Disease? Kidney
failure apparently stepped in due to this
disease. It would be greatly appreciated.
