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Lyrica???

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Brandy32

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Lyrica???
Posted: 12-26-07 12:44pm

anyone on Lyrica? how is it going? any relief? how much? i just started 6 days ago, i think it maybe starting to help a small amount already!! i sure hope so!! i am in soooo much pain from my head to my feet!
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Tmddyan

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Posted: 12-26-07 15:05pm

Ive heard good things about lyrica.
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KimC

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Joined: 30 Sep 2007
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Lyrica
Posted: 12-26-07 22:50pm

I had to stop Lyrica due to side effects, affecting my abilities to function and concentrate at work..I will say that in the short time I took it, it really seemed to decrease the pain level. If you can take it, you are lucky...
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Brandy32

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Lyrica 4 Me
Posted: 12-26-07 23:34pm

Hi Kim! Sorry to hear u had problems with it, I do belive it is starting to help my pain a little! yeah! Has you dr. been able to find another med 4 u? I sure hope so! I maybe really new to this disease/disorder, but I alraedy know it's pretty damn mean!! best of luck!! keep in touch
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Tmddyan

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Posted: 12-27-07 13:26pm

Thanks you guys for coming and giving your input. what other meds are out there that have worked for you?
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KimC

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Posted: 12-27-07 21:31pm

The doctors tried me on Cymbalta after the Lyrica failed. Unfortunately, this one I could not take either. Too many side effects interrupting with daily function. Today after seeing a rheumatologist, he tells me that I do not appear to be a FS patient, and that he is baffled by the multitude of symptoms I have. His recommendation is the Mayo Clinic..That may be my next step. Today is a bad day, and regardless whether you have fibro, chronic fatigue or any other immune disorder, it hurts, it's real, and those us who deal with it, are on your side. Just wish some doctors would get on board and help...Kim
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Brandy32

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Help 4 U!
Posted: 12-28-07 05:37am

Hi kim! sorry to hear that u don't have a diagnosis now. I just wanted to wish u the best at the mayo clinic! I'll keep u in my prayers!! Brandy
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mirjoin

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Joined: 14 Feb 2008
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Posted: 02-14-08 08:55am

I've never tried lyrica and I don't think I ever will unless they reformulate it to make it safer. I found a forum about it and almost everyone reported massive weight gain 20-50 lbs in just 2-3 months. It makes most people crave sweets and carbs. Even people who work out contstantly and dieted would gain weight instead of losing. It can also cause blurred vision, which for some people occurred like 2 days after taking it and didn't get better when they stopped taking it. Lyrica can also cause severe swelling.

Sure some people might like it, but after what I've read, I'm too scared to try it. I'll just stick with the fibro pain, thank you.
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abba

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Joined: 29 Oct 2006
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Location: York, North Yorks. England

Posted: 02-14-08 09:32am

I had to stop it because of the side effects, It did work with the nerve pain but the weight gain,the severe swelling and depression that it caused were to much for me. I'm now trying Tegratol, have been on this for two weeks so will see how this goes.

Lorraine
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mcclellan

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Joined: 14 Feb 2008
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lyrica
Posted: 02-14-08 22:49pm

i have been on lyrica for two weeks and I feel wprse. Spoke with the nurse today and they want to up my dosage! I am having more trouble with the "brain fog" also....it scares me...and I do not want the extra weight!

I don't know what to do.
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mirjoin

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Location: Scottsboro, AL

Posted: 02-17-08 21:58pm

I have been hearing that a lot of doctors are pushing lyrica even if their patients don't really want it.
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mcclellan

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Posted: 03-07-08 12:38pm

Update on me:
As of last Friday my lyrica dosage was upped once again. I am so discouraged because I am actually feeling worse.
And I have found out just how expensive lyrica is and that our insurance won't help us with it.
My doctor has mentioned trying cymbalta.
I just feel so defeated right now.
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Tmddyan

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Posted: 03-07-08 13:56pm

hey we all have feelings of discouragement. dont let it get you down. you are a fighter--you will kick this thing
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mirjoin

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Posted: 03-07-08 19:57pm

mcclellan wrote:
Update on me:
As of last Friday my lyrica dosage was upped once again. I am so discouraged because I am actually feeling worse.
And I have found out just how expensive lyrica is and that our insurance won't help us with it.
My doctor has mentioned trying cymbalta.
I just feel so defeated right now.


Well, keep in mind that your doctor can suggest treatment, but he's not in your shoes. You can demand to be taken off Lyrica.

Today I signed up with Curves, I've heard that their program is supposed to work well with those like myself who have fibro. I've put on so much weight since getting married. I will not risk gaining more with Lyrica. All I know is that the more I weigh, the more I hurt. So, I'm hoping and praying that Curves works for me.

I hope that you all find something to help you.

God Bless,
Miranda
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calybash

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Joined: 10 Mar 2008
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Lyrica for fibro
Posted: 03-11-08 20:13pm

I have had fibro for 8 years. Tried all the anti depressants, the neurontin, and the lyrica. Nothing has worked for the aches and pains. I have a rule...a 3 month rule. If I dont feel substantial relief in 3 months, I'm off of it. I have tried a new (old) drug and I think it's working for me. It's low dose naltrexone. You can check it out at www.ldninfo.org or www.lowdosenaltrexone.org. I am on month 1 and I have no side effects and I think I feel better. Good luck with whatever you decide to try!
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^Serenity^

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Posted: 03-19-08 18:08pm

I had an allergic reaction to Lyrica, it was the worst experience in my life with a medication. I would advise anyone who is going to start a new medication to take it when someone is home with you in the event you have a bad reaction.

Hope you all feel well.
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Tmddyan

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Posted: 03-19-08 18:13pm

thats a good idea--i didnt even think of that. i live alone so i guess i wouldnt. but just in case something happens that is a really good idea
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