Well I know it's been a while since I posted, so I'll see if I can remember all that's happen since the last time I posted.
To start with Carly tried to give me a heart attack last week when she self extubated (pulled her breathing tube out) herself. It absolutly scared me to death. I felt so bad for her. I know it's so umcomfortable to have to have the tube put back in. I swear that day I saw her first tears in her eyes. It just hurt my heart so bad. So I sat there with her after it was all over and just kept my hand on her side trying to comfort her.
Okay so she's been doing good no bad new to report really. Other than her trying to jumpstart my heart last week. Her blood sugars have been kinda out of conrtol. They've been super low. Like 20's-40's. So they tried many different thing such as bolus injections of glucose and continuious feeds neither seemed to work. So they stopped giving her my breast milk and put her on formula. They say you can only assume that breast milk has 20 calories and they really don't know that for sure. But they can be positive that the formula has 24 calories. So for the meantime she's on formula to help with her sugar levels. Whichh seems to be working great. This should also help her to pack on the weight. Now since being on formula her sugars have been in the 80's to 110's which is great!!! And yes I'm still pumping. They are hoping to get her back on breast milk as soon as possible. I had to start taking medicine for my milk production because it was slowing fading away. Now it's back up and better than before! I got 5oz this morning which is the most I've ever got in one pumping!!!!!!!!!!!!!! We've been doing kangaroo care every day now. And Ryan held her the day before yeaterday for the first time! He loved it! She just loves to be held.
Her oxygen levels have been good. Low 20's to low 30's. When daddy held her the other day she went to room air!!!!!!!! That was the first time for that! She's been maintaining her O2 sats as well. I was kinda worried about her O2 level and sats levels because she asperated the other day when she pulled her breathing tube out! I was afraid she'd get pneumonia again. But so far so good! Today I went in and they told me that they started her on caffine. When I asked why they said they usually do that a couple of day before they extubate (take breathing tube out) them. I was like OMG why would you do that!!!! They are going to try her on CPAP in the next day or so. The caffine will help keep her from having spells of apnea. So I'm kinda nervous about them puttin her on CPAP be excited in the same time. I will actually get to see her whole face and possibly hear her cry and sneeze for the first time! What a wonderful christmas gift that would be! Ane she would finally get they awful tube out of her throat! She hates that tube she's always trying to pull it out! So I'm hoping she'll do well with this change.
Well I can't think of much more. Although I know there is more to say. But for now that's all. I'll give more updates as I get them.
Oh yeah I have an angel made out of a baby blanket that I sleep with to put "my scent" on it then I'm gonna put it in Carly's bed so she'll always have the idea that mommy's near by my scent. Also I have a tape recorder that I'm gonna read stories on then play it for her when I'm not there so she can continue to hear my voice throughout the day. Okay that's really it this time!