Hi,
i'd like to respond but I don't understand your question.
Could you ask it again or a different one?

In what way do your seizures change? Does the actual seizure type change, or does the frequency and severity alter?

I have various forms of seizures ranging from somasensory hallucinations, vacancies, night convultions and visual distortions. These have altered depending on what drug I have been perscribed at the time, although no medication has ever fully controlled my temporal lobe epilepsy. Certain forms of seizures can be dealt with better than others. So I take medication which deals with the more dangerous of the seizures. And I deal with the lesser evils.

I hope this is of some help

Hello.
I know exactly where you are coming from micky fan. My honey moon with my meds is about 2 weeks. I was on tegretol 100mg. 4 times a day. And 500 mg of epilim ec 2 times a day. That worked for a few weeks. But I still felt strange in the head all day. And at night I would get this light in my eyes. Like a star dancing. And the further away I looked the larger it was and the closer I looked the smaller it was. I was in the supermarket and I had a huge seizure. I couldnt remember it at all and I wasnt even sore either.
So I went back to the doctors and she chenged my tegretol to the tegretol cr 200mg 2 times a day the slowly released tablets and she upped my epilim ec 500mg 2 times a day to 700mg 2 times a day. That worked for a while. 3 weeks to be precise.
Then 2 weeks ago I had a huge seizure. My blood levels were taken and my epilim level was 190 when its supposed to be between 300-700
and my tegretol level was 21 when its supposed to be between 20-45.
The doctor upped my epilim. I am currently taking 1000mg epilim ec and 400mg tegretol cr morning and night.
All my eeg tests have been normal.
I am 21 yrs old and I was only diagnosed with epilepsy 6 months ago now.
Take care fingers crossed.

What I mean is.... Like what sami posted. Do others go through the "honey moon" period too?????
Me.... It varies, it could be a couple of weeks or I could last a couple of months on a med or med combo.

But... It does seems that when a med is trying to do something for me, and is working for a while the seizures just figure away to come out anyhow, just a little differnt than before.
And it just seems to me that the older I get the more that they are changing too.... (i also have a varieity of seizures)

thanks for the infor

I know what you mean
my seizures have changed heaps. Since I was diagnosed in the last six months.
When I was on one med ( tegretol 100mg) I would have alot of blank stares instead of so many grand mals. Then when it was upped my grand mals were lasting 2 minutes instead of 40minutes.
When I first started my seizures were lasting almost 1 hour. Sometimes during a seizure I can speak and other times I think I am speaking. So strange. Mickey after you have a huge seizure have you ever felt paralised in any way.? I often feel paralised down my arm or in my neck, but its usually the side I fall on. It always goes away with in a few minutes. When the doctors mixed my meds tegretol and epilim I had a seizure in a supermarket and I couldnt remember a thing. I do know that when its happening though I can see like lightening. My pupils are always huge as after. Also mickey I was wonderin throught the day do you know if you are of arent going to have a seizure?. Because I am so unpredictable. But since my last seizure 2 weeks ago it was the worst ive had on meds. It frightened me so much. And my cousin. It went for over 20 minutes and I was rushed to hospital. Yeah well since that ive had this weid thing happening to me. Where one shoulder jerks up and my head jerks to the side also and then my other shoulder comes up and hits me in the head. I cant stop it. As quick as it happens its gone. But I do know since that seizure 2 weeks ago and me having my meds upped 2wice in the same week my mind has been so clear. Instead of feeling hazed. Do you ever have seizures that make you feel like wow? That just got rid of alot of alot of crap lol.?
I am still so new to all this. So if anyone knows can you please help me too.
Hope to chat soon mickey take care

Since I was diagnosed my seizures have changed alot too!!!! But more so in the couple of months.
Right now i'm on 500 mg of topamax, which the side effect for me is i'm having a hard time thinking, spelling, memory, math, and sleepness.
The doc wants to keep increase but I got him to put that idea on hold for a while till I adjust alittle.
Yeah, I have had some seizures that were weird,
i usually hear people talking around me, sometimes I can talk back. I might not remember what happen later.
During a grand mal for some reason my body wants to either fold up backwards, or go into a fetal poition. And I tend to hold my breath. Then my teeth start to chatter like i'm freezeing cold, and they do this for 10-15 minutes sometimes. Plus my bodys jerks.
A normal seizure for me usually only effect my left side, my mouth, eye, arm, hand, fingers, and side, and sometimes my leg. When the seizures are going to be wores then normal my speech starts to get garbled and my left arm gets limp like a noodle. Sometimes my vision gets blurry/dark too. I also have taken to getting confused alot anymore, this is really bugging me.... Things that I know how to do are now taking a whole lot of thinking....(is it the meds or is it the seizures???)
i cluster alot where I have one after another, I can do this for 20 minutes with just a couple seconds between,or its happened where its gone on for hours. With afew minutes between seizures.
I use to know when my seizures were coming, but now that there changing so much all the time anymore, one of my auras is I get a metal taste in my mouth, a tingling in tounge, or just these funny feelings I get.
About that seizure you had I never heard anything like that before, I did have a really bad grandmal once and had the feeling of coming out of fog and feeling differnt, the doc explained it to me that I had seized so hard I was like the electro shock treaments that they used way back when....And that was way I felt that way.
Lets keep chating.....Jill :d

Mickeyfan,
I have the same kind of szs as you do. I'm also on topamax 500 mils aday. I've been on top for 4 years. Was on with others meds, but now just top. I usally get a aura the metal taste, that weird feeling thru the body, the eye twitching, hearing sounds funny, then sometimes I going into the gran mal. Grind my teeth, eyes rolls back, right side hand goes into a claw, I tense up, it goes for about 5 to 10 mins. My boyfriend tells me. After words I talk really fast and he can't understand me. The auras use to wake me up at nite time before I had my surgery, thats was 2 years ago this june. My szs are not as bad as before my surgery. Jamal

Jamal,
hi...You posted your reply. Your seieures sound sooo much like mine. At night when it happens to you,do you feel like your half a wake half a sleep???
I do.... I feel like I can try to fight it off, but I know I can't. Sometimes it gets to the point at night where I feel like my whole body is tingling/numb and floating above my bed. Weird huh?
Sometimes this happens over and over during the night, and I hate to go sleep sometimes, cuz I just can tell that its going to be one of those nights.

Mickey fan,
same for me when I use to have them at nite. They would wake me up. I did not want to go back to sleep, but I would dose off and wake up and have the same feeling you describe to me. Then by 8 in the morning I would have a migrane so bad I could'nt sleep anymore. I would cal those my auras. For many years they would come during the day time 6 times a year from 80 to 98. I would get a funny feeling then the taste then my body would feel like it would be leaving and numb, my stomach would hurt, it would last for about a min or so. I had no idea what was happening. Probalbly they were coming more at nite the last couple of years. Then boom one of them went into a gran mal. That was in 98 when they told me I was a epy. Life sure does change. Jamie

...The honeymoon periods are strange. But, if you think about the chemistry of the brain, it's not like a muscle. Muscles are simple - you stress them and they grow; you don't they weaken. The brain is always changing. And for some of us, we have these uncontrolled impulses somewhere in our head that trigger seizures. The meds don't target that area... They target and saturate the entire brain. So, when we first start taking them, I think that:
- a. You get a placebo effect hoping it's going to help and make the seizures go away.
- b. Whatever pathway the drug affects is helped, but electrical signals never stay in those pathways and eventually, you'll find a new balance.

Over time, our health, attitudes, everything about our lives changes and each change causes the brain cells to form new connections. The brain is always changing. And, don't forget that each time we have a seizure, how many brain cells die? I have a personal theory that seizures are like water. Water wants to flow downhill to the lowest point. Seizures start as electrical activity that follows the easiest path. That's why for me, I always feel like i'm falling to the left just before. Others experience different, but consistent auras, etc.

I would also note that almost all epilepsy medication also treats a host of other psychological, mood, and brain disorders. Somewhere in our nervous system is something triggering the seizures... And so maybe one med treats 1 of 100s of possible pathways of seizure control. But, in "treating" that, you do stuff to other pathways that are also either being affected by the meds, or having to pick up a different "load" than before the meds.