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No Uterus Or Cervix Any One Else (Page 1)

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I am 22 have never had a period and never will I was diagnosed when I was 18 that I have no cervix or uterus they said it was very rare just looking for someone else that might know anything or have any expirence with this please respond Crying or Very sad Crying or Very sad Crying or Very sad
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First Helper snolovbunni
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Users who thank snolovbunni for this post: bluetennisgrl26  meme2009  korijo  malpal  Lilo9 

replied April 16th, 2004
Extremely eHealthy
Do you have ovaries or anything? Forgive my ignorance I have just never heard of this.
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Users who thank 2ferano for this post: korijo 

replied April 18th, 2004
Answer to ?
Yes I do have ovaries and falopian tubes just no cervix or uterus
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replied April 18th, 2004
Extremely eHealthy
I am so sorry. Thank you for answering my question though. I cannot help you with this as I do not have this problem. But I am sorry and I feel for you. Sad
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replied April 18th, 2004
Thank you very much I was just hoping to maybe find someone to understand me
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replied September 5th, 2012
hello how you doin my name is ashley and im 20 but i just want you to kno dat i understand exactly where you coming from why because i am just like you i dont have no urerus i have one fallopians n one of my ovaries so i know exactly know you feel
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replied September 1st, 2013
hello..i am also like you.because that is what my ultrasound result tell.it was 2002 or 2003 when i had an ultrasound, but what i don't know is if i have ovary etc..i already forget where did i kept that ultrasound result.
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replied January 8th, 2005
No Uterus, Cervix, of Fallopians Tubes Either....
Hi,

i know you posted that a long time ago, almost a year. But i'm just writing this to let you know that you're not alone....
When I was 16 they informed me that i, too, did not have a uterus, fallopian tubes or a cervix, but I do have ovaries.
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replied July 10th, 2005
No Cervix No Uterus
I know how u feel I was also told the same thing when I was 18 and now I am 23. I have everthing else just like u. Why do we have to go through this. It has been my dream ever since I was a little girl to have kids but we are one of a kind we have to stick together.

We can chat , for the subject put " one of a kind" so I know who u are
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replied August 19th, 2008
Hi. I'm 17 and just found out i don't have a uterus either.

It's really hard. Sad and i'm trying to figure out how rare it is.

but there are other options, and since you have ovaries you still can have YOUR children, just using someone else's body. that's good. i'm still waiting to find out if i have ovaries and if i do if i have eggs.

so you're not alone.
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replied September 18th, 2008
please i need an answer 4 this
i'm 20 and i just found out that i have no uterus...my parents knew about my condition since i was 15 but they never told me as they were afraid about how i may feel because i adore babies & its a huge matter..i have never ever got my period..and the thing i mostly want to know...does having no uterus affect anything else other than pregnancy??because i read that the growth of 1 of the kidneys is related to the growth of the uterus!!i also heard that having no uterus affects your health and other organs..i'm trying to adapt myself to this situation but i need to know all...so please if anyone knows anything about this that will be a great help
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replied November 30th, 2008
me too
I know exactly how all of you feel. I am trying to get the name of the conditon so i can look it up. If any of you have the name of it please let me know.
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replied March 4th, 2009
The name
I also have this condition and it is called Mullerian Agenisis, or Mayer Rokitansky Kuster Hauser Syndrome. There's lots of information out there, but I found information from my doctor the most useful!! I'm going to see her again this month to find out the options for my fiance and I to have children! Good luck to you all!!
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replied June 21st, 2012
I'm 15 and just found out that I do not have a uterus. I'm going for an mri next month to make sure and I wanted to know what is was called so thank you.
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replied March 7th, 2009
Hi
I am 21, at the age of 16 I found out I was born without a uterus... I am now wishing I could have kids but I am planning to adopt and cant wait till the time is right. I might have overies however
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replied March 14th, 2009
NOTHING
I was diagnosed with a condition several years ago at the age of 16. i hadnt started my period and i was really worried. my parents took me to the doctor and the doctors ran several tests on me. ultrasounds and what not. when the test results came back they informed me that i have no uterus, cervix, or ovaries.. i can never ever have children.. its always been my dream to have children biologically. but that dream is crushed forever. im 21 years old now and little by little im starting to accept this condition.. im starting to cope.....it hard though everyday you hear the word pregnancy, or motherhood, or you see a mother and a ababy together, etc. the feeling of this condition haunts me everday!(im sure others with this condition as well) my fiance told me something very useful and it made me fell real good about myself.. of course im individually unique, however, on top of that he said,"any person can have a baby biologically, but it takes a real person to be a mother. and when that time comes, motherhood will truely be a blessing."
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replied November 13th, 2011
hi i understand what you feel because i'am also like you.i wish to have a baby but i was diagnosed with a condition like you.little by little i accepted the truth that i will never ever have a baby.i'm proud of your fiance and i liked what he just told you.my fiance also makes me strong
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replied May 12th, 2009
Your not alone
I know this question was asked a long time ago but I wanted you all to know you are not alone.

Here's my story long but I hope it can help someone who has the same questions or problems.

When I was 16 my parents & I found out after not having a period & by test after test & a lapscopy that I too had no uterus and only part of the cervix formed. I did however have both ovaries & tubes. When I was 20 I had the McIndoe procedure performed & had a cervix medically formed by using my own skin tissue & therapy to make the vagina completely usable. I have never had a "normal" period but my body does go threw one & creates cysts. When I was 29 after many years of pain in my right abdomen my gyno found that my right ovary was enlarged & removed it. Now, at 34 I still have 1 functioning ovary & am on a very low dosage of estrogen (been on it a year now). Yeah, been through a lot just with the reproductive system. Now, I'm at the point in my life where a baby is the next step. I know my options are to either have a surrogate (if my eggs are able to do that) or adopt. I'm hoping the surrogate is the route hubby & I can take but if not I'd love to give a child a chance at a family.

If anyone else has been through this I'd love to hear your stories.
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Users who thank meme2009 for this post: bvalead2010 

replied November 13th, 2011
when i read your stories i understand what you feel beacause i also have a condition like you.time passe,little by little im trying to accept the fact that i will never have a chance to bear a child.i wanted to have my own baby,(i love babies)!i was depressed when i found out my condtion and i almost commit suicide by that time.thank god he let me understand and thanks to my fiance that he accepted me.im now 24 and planning to get married soon
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replied May 18th, 2009
:) thanks
hello
i just found out i too have this condition i am 17 and have been very worried about it, this post has helped me see im not alone. i luckyily have a wonderful family to help me through this, but i have been in a very serious relationship for awhile and would like to get more physically involved and my doctor has talked to me about a new way of i guess dialating a vagina if anyone has done this or has any information i would love for you to write me.
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replied May 19th, 2009
I was born like this as well. I found out when I was 15 that I was born without a uterus and cervix. But that I have tiny ovaries and parts of my fallopian tubes.I am now almost 20 and it is very stressful. I am able to have sex, but my vaginal canal is only about 3 inches deep. I chose to not have the surjury when I was younger or to use a dialator, but now I wish that I did. Some guys dont notice, but the guy who I am currently with right now does notice. It makes me very upset, because I have not told him about this. I have only told 2 guys, and they ran off. It would be nice to have someone in the same situation as me to talk with. So if you would like to talk please please please write me.

Thank you so much.

P.S. I am happy to know that I am not the only one out there like this.
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replied November 13th, 2011
im felt okay when i discovered this site because i was not alone.there are also people with my condition.
i have a good sex life with my fiance and he didnt noticed it until i told him.but he accepted me.he told me that we'll just adopt a baby.i dont have pubic hair either.
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replied February 22nd, 2012
not having pubic hair what a plus? haha. thats good you have a good sex life. did you never need to do anything like dilation?
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replied September 16th, 2012
I never did dilation.just a normal penis.haha thank god my fiance loves me so much. can i have your facebook account so we can be friends? since we have the same condition since i think we can have a good conversation and exchange of thoughts?
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replied February 22nd, 2012
:)
Hello, I am in the same situation as you. However I think you are much bigger then me. you can still use dilators now if you wanted too. I am trying because all the Drs I have talked to only recommend that as the best option overall. You know 8cm is the normal length of a vagina so you are pretty much at it.. maybe with a little dilation and you would be sweet and no need to worry Smile
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replied May 19th, 2009
Thank You
I know I just posted something, but I want to thank all of you for posting these things. I have not had the courage to post anything, until now. You girls are all so brave. Im sure you all were told how "rare" and "strange" that this condition is. I am just really happy to know that there are people to talk to now. =)
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replied May 26th, 2009
Hi everyone. I'm sixteen and just today I found out I was born without a uterus or cervix. I do have ovaries and fallopian tubes, however. It was really tough for me to hear it, but there could be so much worse wrong with me. I hope to have a surrogate mother one day possibly so I can pass on my genes as a mother one day. I know this is what God wants for me and it really just may be a blessing in disguise. Hang in there, i'll try to too Smile
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replied June 1st, 2009
MRKH
OMG Wow, Im not alone! I am 22 years old. I have known that I have no cervix and very little vagina since I was 15 and have been through 2 extremely serious operations to create one. I have since had to have my womb and ovaries removed due to severe endometriosis. .. I would love it if people could get in touch with me. I have only found out this week what my condition is called. Thanks

Nic
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Users who thank Nicliz for this post: nattynightmare 

replied June 3rd, 2009
No cervix here?
Hello, my name is Jessica and I kinda have the same problem. When I was in 9th grade, we thought I got my period but it never came back. Then on Father's Day between 2002-2004, I can't remember which year, I got it again. Then the following month on the 15th as well. I though it was going to last but it didn't. It was barely spotting but it was only twice. And it hasn't happened since. I went to Planned Parenthood and then was asked to come back 2 days later to talk with the head doctor. She told me I had amenorrhea, which is the absence of menstruation. There are two types: primary and secondary. Primary amenorrhea is never having a menstruation. Secondary is having it and then it suddenly stops permanently, but not like menopause. She also gave me a prescription for an internal pelvic sonogram. I kept putting it off. By the time I went, it had expired. I went back and had another regular exam to get a new prescription. This doctor also wanted an external sonogram done as well. I went back to the MRI place and finally got it all done. They checked everything. My kidneys, ovaries, fallopian tubes and uterus were all intact. The only problems were she couldn't find my cervix on the screen and my uterus is completely horizontal. Most women have a slightly tilted one, like 85% or 90%. She said there are two possibilities: 1- it's really deep in there and to the side or 2- not there. So I went back to the gyno. She couldn't see it. Next thing I know, there are like 3 nurse plus the doc in the room. Then, She goes to get the head guy because she wants his opinion! That's when I started freaking out! When we were in her office and she told me that she thinks she found my cervix but if that's what she found, it's infantile. She gave me a card for a specialist in the Manhattan. As she walked me out she said that it's possible for me to get pregnant and there is a 95% chance of me having to be on fertility drugs once I'm trying to conceive. I don't understand how I am still able to get prego if my uterus is horizontal and I don't get a period. How could a baby sustain without blood? Hopefully soon, I will be able to go to the specialist soon and find out if my eggs are even viable, so at least I know if I can have biological babies have a sarogant. I have many friends and family that have volunteered for this venture. If anyone ready this knows anything about having a cervix built, please get back to me! I have looked online many times but haven't been able to find any info! Thanks and God bless us all who desperately want to be mommies!
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Tags: cervix, period
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