Allergies Forum - Solar Urticaria


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andersen

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I made it go away! Posted: 05-11-08 14:48pm


After having suffered from Solar Urticaria for about 4 years... 10 days on high vitamine D has done so that I now can stay in the sun as I normally did! So if you do suffer from this, try a few weeks on vitamin D + calcium and see if this works for you too! I am so happy!

pritz2

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solar urticaria Posted: 05-15-08 09:58am


Hi i have had this for 5 years now and i think i have finally had a huge break through. I tried pure aloe vera gel on the hives and it brought the redness and itchyness down within minutes. I have had antihistamines before and even they werent as effective as the aloe vera. Hope this helps guys x

nae783

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sun allergy I HATE IT Posted: 05-22-08 11:49am


Hi. Several years ago my Dr. said i was allergic to the sun. I had never heard of any thing like that. At the age of 38 is has gotten worse.I can go out in the sun but i pay for it later with hives and itching nothing releives it except hot baths and it releives it for about an hour. I have no insurance so any home remidies that can help. my husband unerstands but i still feel bad that i can't go out during the day unless i want to pay for it later then i get p***ed because i can't stop the itch and rash. It drives me close to a breaking point. Ive tried sunscreen and it don't help. I thought i was a misfit and the only one that had this but i'm glad to know i'm not alone but sorry that we have to have this. any info would be great.

andersen

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Dear Nae783 Posted: 05-24-08 23:52pm


Im a woman of 41, and I dealt with this for 4 years until about a month ago. I have been clinically tested and found that I was intollerant to both UVA and UVB light with a burn time of 13 sec. and 2,5 minutes.) If you can, have a bloodtest made to check your leval of vitamine D, that help you on your way to find a cure for you, as it has me. The leval of vitamine D in your blood, has to be around 25, my leval was way under 10, which normally is considered the leval for diagnosing patients with Rickets. I have since this was discovered taken 4 tablets of vitamin D each with a 38 µ + Calcium 3200 mg daily. After 10 days I could walk in the sun with normal sunscreen lotion on (SPF 15, where as with this coondition I had to use SPF 50+- and reapply every 2 hours!!), without reapplying, and no Antihistamin (I normally took 360mg daily just to make it to work driving!) Lack of vitamin D is the cause of many severe illnesses. So taking them daily should be a must for many, even without this horrid condition. I hope you have success with this! I know what being close to the breaking point means dealing with this!!

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JoJo27

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Solar Urticaria Posted: 05-26-08 15:23pm


Hello !! Everyone I also suffer from solar urticaria. I have had it for about 5years now. I've been seeing a Dr in Detroit for 4 years now. I thought I was the only person that had to battle this. It has effected me social and emotionally. I have younge childern and can't even go out with them. I start to react within 10 minutes or so and they last up to an hour. I also react through car and house windows, I also have to wear long thick shirts. The Dr I see has been great he has tried a few different things. I take meds which help w/ the itch, and I avoid the sun. He also has had me do a harding in a lighted bed to harding my skin to the UVA and UVB rays. It does help but it is not the same. I didnt read anything that was posted current. If you all still write or know something please write.

2ccede

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solar urticaria Posted: 05-30-08 12:47pm


I'm really glad to find this forum as I've been diagnosed with this and have not told others. I feel like a freak. Used to sunbathe regularly, now five minutes is all I can tolerate. The vitamin D & calcium regimen sounds interesting and I think I will try it. My doctor prescribed 6 months of zyrtec. I lasted less than a week as I felt constantly dizzy on the medication. The doctor said no to lupus and porphyria, but I wonder if she dug deep enough.

JoJo27

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Posted: 06-03-08 22:44pm


please tell me more about how you found out about the lack of vitamin D. I got so excited when I read your news that I called my Dr the next day. He said that that can happen to some but we will take a blood test to check. Was you able to go out side before your break through? I'm not able to go out with meds or sun block. I react with in 10 minutes. Its weird how everyone reacts so different.

andersen

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Dear JoJo Posted: 06-04-08 07:51am


I found out about the lack of vitamin D from reading on my own. What happend was, that I began having musclepains, the bones on my feet began to hurt too, I was so tired all the time...all in all I began having many other disfunctions, and seached answers for those symptoms. In that search, I ran across the symptoms from lacking vitamin D...and in those many listed symptoms..extreme sensitivity to light appeared. ALL of those disfunctions have now gone away along with my solar urticaria! Before...when I was suffering from the solar Urticaria... I had to cover up 100%...and I would still burn within minutes. Every morning I would take 2 tabl. of 180mg Fexofenadin. hydrochlorid, then I would add sunlotion SPF 50+, dress to cover all skin but face and hands (I wore hats too to avoid burning trough my hair)... In addition to sunlotion, I found that mineral foundation powder, created a good physical filter to my face when applied on top of the sunlotion- plus it was a make up that would crackled during the day. I would then wear skin gloves to make it to work driving. Still...my neck would burn if any light would pass...even on a short drive of 15 minutes. I would normally swell from the liquid in my body created by the histamin, get fever warm and uncompfortable during the first hours of the day if the light was bright. I reacted through window glass and certain halogen lamps too. And...from a week to the next...I can now walk and work in the garden wearing thin normal summer clothes, a normal SPF 15-25..NO medicin at all...only the vitamins! I SO know what you all go through! It is such a terrible stressfull condition, to the people around us too. I hope with all my heart that this will work for you too! Good luck!

LisaBk

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I thought i was alone! Posted: 06-10-08 23:29pm


Hello,I am a 23 year old female from new york and I believe I have Solar Urticaria. I got it when I was 17 years old ,its been 6 years. I think the tanning salon is what triggered mine. What happens to me is that when i go in the sun i become itchy and a rash starts to form on the exposed skin. Such as my face,arm,back,hands,legs,feet,ears.....And the rash gets very itchy and becomes red and hot....it also becomes swollen....to protect my face i usually wear cover up to not show the redness and i use it with sunscreen,that helps a lot. A few days ago i went on the boardwalk to take my sun to the park and i started feeling sick to my stomach ,like i had a knot in my gut but i ignored it thinking it was nothing because i usually don't have these symptoms,and as soon as i got into the park gate i got light headed and a blurred vision,everything i saw became white and cloudy and i knew i was about to pass out because i had that feeling before and i quickly kneeled down and put my head down to get my self back together before i pass out and i succeeded and i sat down in the park and all of a sudden i felt in my stomach that i was gonna throw up which i did,like 3 times,but it was white and stringy and flemmy,i also break out in hives,and i get light headaches,my muscles got achy...but its kinda weird because i usually dont wear shorts knowing that my legs would become itchy red and covered in hives,but i did anyways and that first day i wore my shorts my legs were red and itchy and covered in hives and the next day i wore my shorts again and it wasn't red ,itchy and covered in hives,i dont understand...i went out today and nothing became red,itchy,etc....why is this? why sometimes i do and sometimes i dont? some days im red,some days im not,some days i get itchy and some days i dont?? Please help,ive been to doctors and they tell me im just allergic to the sun,i know im not alone,please help!

andersen

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Dear Lisa... Posted: 06-12-08 00:07am


To me as well, it sounds as if you might suffer from Solar Urticaria. I think the incident you described from the park, was a sunstroke, which is to be taken very serious! You ask why you only react sometimes, and my experience from solar urticaria on my body, has been that depending on how cloudy it was, or how high in the sky the sun was (what time of day)...I would react differently. The swelling happens when histamin rush through your body as a reaction to your allergy. If you remember to drink lots of water, you might avoid this, plus you will avoid the lightheadedness as well. Always keep your skin coverd in high SPF lotion; 50+, first cause it will protect you somewhat from reacting as fast to the uv rays, and second cause moist skin burns slower than dry. I got rid of my solar urticaria after having dealt with this for 4 years, simply by taking 4 tablets of vitamin D each with a 38 µ + Calcium 3200 mg daily. It was gone within 10 days or so! Get your vitamine D leval messured by a bloodtest with your doctor. The leval should be around 25, mine was way under 10. I hope you have success with my advice- good luck

soglad

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o ty ty ty all Posted: 07-11-08 16:05pm


this post has helped me a lot I have suffered from this as well my whole life it comes and goes but normally i don't break out anywhere but the back of my left hand (cuz of driving) but this yr i broke out on my arm and i cant seem to get rid of it and the itching is just horrible so ty all for all the tips on here I think I am going to try the vitamin D again tytyty

JoJo27

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Posted: 07-11-08 18:49pm


Anderson how much vitamine D do you or did you take? I asked my Doctor about it and he said he had never heard of any thing like that as a cause. If you could please write it out differant that would be great. I still have hope!!!

mc19

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Lisa, Posted: 07-14-08 20:23pm


I know what you mean by getting it some days and not others. I have the same problem, sometimes i will get it on a cooler day and the next day if its hotter i may not get it at all. And sometimes the UV index can be the same and sometimes ill get it and other times not at all. It's really what makes it confusing...its hard to go to a doctor and tell them whats wrong or show them for that matter when you can't describe when or why it happens.