Hello people

I wonder if you might help me.
I have a range of symptoms affecting by jaw, neck and head and have done for at least 5 years.

The onset was quite bizarre. I had a constant pins and needles sensation on my forehead. Within a few weeks bizarrely and involuntary my jaw started moving from side to side, then a few days later back and forward. All outwith my control. Then my teeth started to clench together with such immense force I was very concerned my teeth would snap. I also developed severe pressure in my temples and sinus area and constant pins and needles on the temples and forehead. I also had a horrible sensation of something moving on my palate

My right ear is constantly crackling/grating from the most miniscule of movements...when I hold my nose and blow (like you do to relieve pressure) this seems to help for a few seconds...but my point is the area whcih is inflated for that time must be related somehow...does anyone know what this area is? Is it to do with my eustachian tube?

I also have right sided neck pain around the occipital area and down my neck

To date I have seen various people and had various scans including maxillofacial who worked on the basis that I had TMJ for years...no result. Then they felt it wasnt tmj and thought it must be something else. I approached neurology which again came back with nothing. I have just had a neck and sinus CT scan to see what that reveals.

Can anyone relate to any of these symptoms? I have tried every treatment available and still no release, and, to be honest, its a living hell which is holding me back.

I have read about things such as eagle syndrome and wonder if it could be something to with a ligament perhaps?

I'll stop just now as dont want to natter on too much, but I would be grateful if someone could respond, hopefully relate and explain why these symptoms occur...pins and needles, why when my teeth meet my jaw will go to one side if it isnt tmj.. is there anything else that controls the jaw that maybe I need to check out?


Cheers Folks