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Tmj Trigeminal Neuralgia? Can Tmj Cause Symptoms By Swelling??

"TN (Trigeminal Neuralgia) is a pain that is described as among the most acute known to mankind. TN produces excruciating, lightning strikes of facial pain, typically near the nose, lips, eyes or ears.

TN (Trigeminal Neuralgia / tic douloureux) is a disorder of the fifth cranial (trigeminal) nerve that causes episodes of intense, stabbing, electric shock-like pain in the areas of the face where the branches of the nerve are distributed - lips, eyes, nose, scalp, forehead, upper jaw, and lower jaw. By many, it's called the "suicide disease". A less common form of the disorder called "Atypical Trigeminal Neuralgia" may cause less intense, constant, dull burning or aching pain, sometimes with occasional electric shock-like stabs. Both forms of the disorder most often affect one side of the face, but some patients experience pain at different times on both sides. Onset of symptoms occurs most often after age 50, but cases are known in children and even infants. Something as simple and routine as brushing the teeth, putting on makeup or even a slight breeze can trigger an attack, resulting in sheer agony for the individual. Trigeminal neuralgia (TN) is not fatal, but it is universally considered to be the most painful affliction known to medical practice."


So I definatly have TMJ and crunching/popping when i open my mouth somtimes I have TMJ swelling, but only on one side of my face and from time to time for 1-2 minutes randomly in a week i'll get an agonizing feeling of someone putting a livecircuit on my face (to have jolts of electricity go up my jaw every few seconds for 30sec-2min)

Its agonizing but I barely ever get it and its dealable in short-doses. If I have it, it would be the less typical form that results in a constant dull ache + somtimes electrical lightning feelings.
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First Helper choccy1
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replied December 5th, 2007
Extremely eHealthy
I got some of that too---how are you feeling now---how have you treated it.?
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replied December 5th, 2007
Supporter
I treat my TN with Lyrica and when the pain was severe, I used a TENS unit (it's been okay since I started the Lyrica). Thank God that it works for me.
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replied August 12th, 2011
Experienced User
How did you use the TENS unit for this? What model of TENS? Thanks!
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replied October 2nd, 2010
I have TMJ, trigeminal neuralgia and Osteoarthritis in my jaws. I have suffered with TN over 30 years. I have had the most luck with chiropractors which allowed me to do away with medication but I recently found a diet that also allowed decrease in my medication but many people have done away with TN completely. Here is the link to the diet. It is a VERY good diet because if you are addicted to sugar, you can still eat that. It is also important to not get caught up in the fact of low fat diets. This is NOT a low fat diet but a low saturated fat diet and that is a huge difference.
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replied August 8th, 2011
I can't see the link to this diet. My boyfriend was recently diagnosed with this and is currently on gasepentin but attacks r still happening
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replied August 10th, 2011
I was on several different meds before I found one that worked for me. Gabapentin didn't work for me, I had to take too much of it for very little relief. There are other seizure meds out there, he may need a higher dose or something altogether different. I have been taking Topamax for 7 yrs. I suggest it as a last resort as it is prohibitively expensive.
I have just had Gamma Knife done on my right side. Last month I had my left side done. I am looking forward to backing off the meds soon.
Do your own research, read up on the meds. Make sure your boyfriend is seeing a neurologist. A GP and dentist can't help him with this. Good luck to you both.
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replied August 10th, 2011
I was on several different meds before I found one that worked for me. Gabapentin didn't work for me, I had to take too much of it for very little relief. There are other seizure meds out there, he may need a higher dose or something altogether different. I have been taking Topamax for 7 yrs. I suggest it as a last resort as it is prohibitively expensive.
I have just had Gamma Knife done on my right side. Last month I had my left side done. I am looking forward to backing off the meds soon.
Do your own research, read up on the meds. Make sure your boyfriend is seeing a neurologist. A GP and dentist can't help him with this. Good luck to you both.
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replied August 12th, 2011
Gabapentin is not working for him either. He is currently taking 600mg three times daily. The attacks are worse at night, he seems to get some relief when he goes for walks. I am interested in this drug Topamax, my concern is of course not the expense, my concern is how much relief you got from the Topamax. I sympathize with you as I have never experienced such pain, but watching how incredible this constant agony can effect every aspect of your life is unbearable to watch. The Gamma Knife that you did on your right side, how much pain have you experienced on your right side since? And did you experience any side effects from it? Good luck with getting your left side done. I hope everything goes as planned for you and you can get off the meds. I look forward to hearing from you.
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replied April 20th, 2011
TMJ and trigEMINAL NEURALGIA, PLEASE REPLY
hello, I hope you are still following this post, i have been suffering beyond my ability to think any more with both atypical neuropathy and trigeminal neuralgia which mimics toothace in my upper righ jaw and also stabbing shocks from time to tiime besides, i tried zoloft (sertraline) with some good effects but i sont want to be on medication because i suffer from fatty liver due to insulin resistance and dont want to further compromise my liver function, please please can you tell me abit more about going to the chiropracter as this is of huge intertest and of anything else you found has worked for you, any info would be so gratefully recieved and i hope you are still doing well with your pain, i forgot to mention i had 7 teeth extracted in desperation to stop the pain and it just moves to another tooth and indeed to the other side of my jaw! regards, mairi
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replied April 28th, 2011
Hi, I also have been suffering from this and when I see Doctors from my GPc and Neuroligists and the Dentist and the ER none of them are able to figure it out other than the neuro stated that it wasn't TN it was possibly TMJ neuralgia because it was not constant, although the pain is so intense that I have had root cnals on 4 of my upper back teeth thinking it was infected teeth or something, I had to convince the dentist to do so at my cost. The only instant relief I have found is an injection in the upper back part of my right jaw and then it settles down for at least a month although it is getting more frequent. Neurologists just loik at me as of I am nuts hand me Lyrica and suggest Maxofacial. I also suffer from accute Migraines. Do you have any suggestion for relief? What do the Dr's tell you? Thank you

Sara
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replied June 23rd, 2011
A safer drug to take for TN pain
I have found that Gabapentin is very helpful and I think is a safe drug to take if you have liver problems.
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replied June 30th, 2011
I have had on and off severe pain in my upper right facial area from my teeth to my nose to my cheek, ear and temporal area. I have seen 3 dentist, had a root canal on tooth 5, a $5,000 bridge replaced (to correct my bite and supposedly get me out of pain) and am now waiting to see a neurologist. The pain keeps moving on me. Now it is dull, more constant and I have swelling in the right side around the cheek bone. I look like I have had plasic surgery on the right side of my face because my wrinkles around my upper mouth and nose are almost gone from swelling. Does TN cause the swelling? Should I be seeing a face surgeon and not a neurologist? The only medication that I am on is Xanax to help to sleep. I have also gone thru 6 weeks of physical therapy for my upper facial muscles with no results.
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replied July 25th, 2011
You need to stop seeing dentists and see a neurologist while you still have some teeth and some money. Trigeminal neuralgia can and will make every tooth your head hurt horribly. There is probably nothing wrong with your teeth. This will not go away, it will not get better on it's own, and your life will never be the same. Because the nerve endings cover your entire face, this can affect your eye area and make your nose run.
Look it up on Wikipedia. There is a drawing that shows all the nerve endings affected by this disease.
I have had this for 6 years. It is treated with seizure medications and pain pills if necessary. On July 8th, I had Gamma Knife Surgery done on my left side. I am part of the 10% that is bilateral. I suffer from TN on both sides of my face. So far, I have very little pain and will schedule the right side soon.
Good luck to you, Dover. Don't wait to see a Neuro. Do your own research. If you aren't happy with your medical care, find someone else. Trust me, there aren't enough people out there that know about this, you will need to be on your toes.
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replied August 17th, 2011
Have a question about Tn... I don't think I have TN, but about 6 months before my first significant TMJ symptoms appeared (almosty 3 yrs ago) I felt a burst of pain on the left side of my face that lasted for hours and then suddenly dissapeared right as I was about to go to the hospital. The pain seems to pefectly fit the description of TN, but it only happened that one time...

Does TN start off with rare outbreaks and then build up? Or does the fact that I havn't had it since mean it shouldn't worry about it? Thanks!
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replied December 31st, 2011
trigeminal neuralgia
Hi, I am mostly writing my first post for support. About six months ago I was told by one dentist that I needed a root canal on my upper right molar #3. Every other dentist in town and endodontist told me the tooth was fine. I went to the neurologist and gave me Trillpetal think it was atypical TN. Three rounds of that, constantly upping the dosage did not help. So I went back to the endo to have a root canal. For about two days after the root canal things felt great. Then the second night I woke up because it felt like someone was driving a nail through my upper jaw into my cheeck. The Dr. told me the infection was most likely still there and things should get better. That was over two months ago and the pain has done nothing but intensify and spread across the right side of my face and sometimes drops down to my lower face. I have never felt the electric shock sensation that everyone talks about. I am on Neurontin currently and some things for sleep and anxiety. My internalist wants me to get a stelic nerve block in my neck to numb my trigeminal nerve, but I am afraid of the side affects from this and my insurance is trying to call this a pre-existing condition. I am slowly losing faith in living a normal life. I am 26 years old have a great job, and an amazing girlfriend who has done nothing but support me. I have begged her to leave me because I cannot truly be a partner for her, but she says she's not going anywhere. This makes me feel so incredibly guilty and just like a horrible boyfriend, she deserves a normal life, not to have to take care of her boyfriend or miss out on having a normal functioning young adult life. I am trying not to lose hope, but most days I just want to die. I am pain pills, but I resist taking them because I don't want to run out then go back to the doctor and ask for more only for them to think I am just another junkie trying ti take advantage of medication. I want to have another tooth pulled because it seems to always start off as a burning in my gum around the tooth that was behind the one that had a root canal then extracted. Again, I am just trying to find a group of people who share this pain so we can work to together to keep strong minds and eventually beat this thing. It's almost 2012, I have got to believe there is something out there that can fix this. I have had an MRI and CT Scan all show up as being normal. I am afraid eventually the doctors will start looking at me as being crazy and just telling me this is all in my head, I have already had a couple friends tell me they believe this is all in my head...I wish. I hope to hear some replies from some of you. God Bless everyone on here, and trust that you are in my prayers along with anyone that deals with constant pain. Together there has to be an answer, as I have always believed "power in numbers". Have a great New Year everyone and maybe this is the year we can all beat this thing and become free from our pain, because once we have walked through the valley of death we can handle anything else that may lay in front of us.

-BJM 12/31/2011 11:40 am
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replied March 6th, 2012
I KNOW IT IS VERY PAINFUL.JUST KEEP HOPING THAT THERE IS SOMEONE OUT THERE WHO CAN REALLY HELP YOUR PROBLEM.
TRY TO CONSULT DR.EILLEN MANALANG.TEL N0 0459820155.



CMJ
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replied February 8th, 2012
Trigeminal nerve
Hey email me... I am going through this mystery nerve related thing
Paul
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replied May 14th, 2012
neuralgia in mouth help
i i am 49 and have been having pain in my mouth the last 6 months. each time i do to doctors they always ask have u been to dentist! i had my worst attack friday nite thru till late sat. no sleep and totally drugged up didnt work it eventually died of. it does seem nobobody knows that much about this problem... anybody have any quick tips to give relieve???
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replied May 14th, 2012
neuralgia in mouth help
i i am 49 and have been having pain in my mouth the last 6 months. each time i do to doctors they always ask have u been to dentist! i had my worst attack friday nite thru till late sat. no sleep and totally drugged up didnt work it eventually died of. it does seem nobobody knows that much about this problem... anybody have any quick tips to give relieve???
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replied September 13th, 2012
Atypical TN & TMJ
I am 50, now, but began suffering unusual pain on the left side of my nose and later in my face and upper jaw about 18 months ago. I am menopausal and, after doing some online research, learned that Trigeminal Neuralgia afflicts many menopausal women. I have seen a neurologist who diagnosed me with atypical facial pain and I am taking Gabapentin -- which doesn't seem to be helping. I too had a root canal (after having "perfect" teeth all my life) because I had a slight crack in the tooth and my dentist and endodontist that this was the source of my pain. However, the pain has continued and -- since I have no bad breath or any other symptoms of having an infected tooth -- determined that it couldn't be coming from my mouth. Both my endodontist and my dentist conferred with one another and confirmed this (I have a good doctors!) -- and confirmed that Trigeminal Neuralgia can mimic a toothache. However, my dentist is now treating me for TMJ because I have had a history of pain in my jaw -- and one of my jaws is slightly longer than the other. I will be trying a muscle relaxant -- and Advil works great to relieve the pain -- but I know I can't take it long term either. My neurologist also ran an MRI and confirmed that I don't have MS, evidence of stroke, tumors, migraines, etc. I do have Acid Reflux and see an ENT -- who has diagnosed me with acid burns on my larynx -- so I'm not sure if this is adding to the discomfort in any way. I also have a family history of heart problems -- and my next visit will be to a cardiologist since the pain I suffer in my face and jaw shoots down the left side of my body. Like other descriptions above, I only occasionally have the sharp stabbing pains. Mine is more like a dull, constant ache with sore spots tender to the touch (like under my left eye). I have always described my pain like if I have a line down the middle of my face and head. I have no symptoms on the right side -- only on the left. When I have allergies or sinus problems -- the pain is more intense and constant. I too don't want to be on medication and will try to treat with diet, exercise, heat therapy (such as a heating pad on the left side of my head when I go to bed), and massage. I am overweight, so this is a wake-up call for me as I have never been an exerciser.
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replied February 3rd, 2013
tmj trigiminal neuralgia
8 months ago I started getting tingling in my face. Then a super Web type feeling. Several weeks later full blown tmj. I am wearing a splint to align my bite and relax my muscles. As this happens I am getting bilateral burning and tingling. The burning gets so bad sometimes I break down in tears. Tmj does cause atypical facial neuralgia. I am loving proof. So if any of you have tmj and trigiminal neuralgia, please treat your tmj. And if anyone found something that worked for them let me know. This sucks to high hell!
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replied February 27th, 2013
TN pain relief
I have been experiencing TN pain in the right side of my face since December .
I thought it had gone away until my lower #2 moler became infected.
I had a root canal and the next day began the excruciating pain all over my right side.
It is worse than the first time and lasts much longer. I have been taking Neurontin.
It does seem to numb the nerve as the pain builds. I have only been suffering for 8 days.
I can't live this way. After reading the posts I am fearful of this pain lasting forever.
If you have used a chiropractor to treat the pain, what do they do for you?
I have trouble sleeping and I have a chomping reaction in my jaw that I cannot control.
It is obviously making the pain worsen. I would appreciate any advice.
I sympathize with all of you. I am sorry you are suffering.
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replied March 9th, 2013
TMD- left side face pain, numbness,pain in ear, jaw, cheek,teeth
Thankful for all of you here and your stories. I'm 31 and have had pain on and off on the left side of my face for a few years but the past several months its through the roof. It seemed to be triggered with having a filling replaced back in September.. ever since I've had horrible pain, sometimes dull throbbing and sometimes horrible sharp pain, and numbness on the left side of my face. I've been to 3 dentists and my PCP and an ENT and an oral surgeon. So many xrays were done and they cant find an issue but did a root canal anyway because of my severe pain.. now i have a tooth with a temporary filling since the insurance wont pay for a crown. And I am doubting whether the root canal was ever needed sigh. The oral surgeon and ENT both agree this is TMJD, not just the joint but the muscles are in spasm. The oral surgeon has sent me to physical therapy for it, I'm seeing a specialist in TMD and I have felt some improvement but it goes back and forth. He's doing moist heat therapy, therapeutic ultrasound, myofascial release massage and I have a whole list of exercises to do daily. Some days its manageable and some days I am living in fear that I have some horrible infection or cancer and that I'm going to die and leave my kids without a mother Sad Thats the worst fear. I had a CT scan and an MRI that were both normal, the CT just showed inflammation. I'm taking 10mg of Flexaril at night and going to pray this is just TMD and that I will get better. THe Phys therapist tested me for TN, as some have said that may be going on, but he doesnt think it is, thankfully. Anyway, thank you all for posting.. you relieved my late night fears that I'm dying and remind me that I'm not alone. Best wishes to all of us.
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replied January 28th, 2014
Mums 70 now and has tn for 20 yrs she's on gabapentin I forget what type and tegretol. Has controlled her pains ever since she started on them. She's pain free. Mums only had one tooth extracted. and her teeth and gums are perfect. She's has more teeth than me. Mums had every test from periodontists mris ct scans cone scan sinus X-rays multiple sclerosis test. We see a neurologist every 3 months he's assessing her on her tablets. Neuro doesn't recommend mum to have an operation at her age. But she does have a swollen gum on the left side that bothers her no infection no bleeding a perfectly healthy gum according to perio and dentists and all scans. She does have a 6mm pocket in one of her teeth perio thinks its too small to treat just regular cleaning. Laser is out too.
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