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Q: Update On Carly (not Such a Good Day)
asked by: number game on November 24th, 2007
Extremely eHealthy
Well today wasn't as good as of a day as I thought. I just got off the phone with Mary Ruth, Carly' nurse for tonight. She informed me that her left lung was not expanding. And the little sacs in that lung are filling up with fliud. There is an infection in the lung so they restarted her antibiotic again. She is still on the high frequency ventilator. She said her lung is doing this because of immaturity of the lungs. They are suctioning her lung to remove the secreations. They did an x-ray earlier of her lungs and will repeat this x-ray again in the morning. Oh yeah, they are also doing lung PT, it's where they tap on her back lightly with a little rubber mallat type thing to break up the secreations then what they break up is what the suck out with a machine. Her blood gases were in the 60's and they want them in the 40's, so they adjusted some things and got them back down for now. She said that she hadn't had any BM's in 2 days and they will continue to monitor that, but she is voiding which is good. So far she hasn't had anymore blood transfusions. And as of today she is at 440 grams which is 15 ounces. So no more weight gain as of yet. So she's had a rough day today. Please continue to keep Carly and our family in your prayers. As we all need them right now. We do have family, friends, and church standing behind us and being very supportive. So we are taking this one day at a time. I'm going to try and post a new blog everyday with her updates. So please keep checking in. Thank you all for your support and prayers.

I'll be posting this blog on my myspace account so if you want my url pm me.
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young Girl
replied on November 24th, 2007
Especially eHealthy
rachel my entire family will keep you and carly and everyone in our prayers and thoughts.
we are all here to suppport you and are here for you 100%. please keep us updated on everything. stay strong and if you need anything im here for you

~carly we love you!!!!!!!!!
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number game
replied on November 24th, 2007
Extremely eHealthy
thank you so very much!
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Hollyberries
replied on November 24th, 2007
Extremely eHealthy
Sorry to hear she's having a rough day Sad I really hope she has many good days to come. I think about you two every day. I stop by your myspace daily to see if theres updates! Keep us informed, and if you need anything please feel free to pm me, or message me! Take care hun, and hang in there carly!
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tdr
replied on November 24th, 2007
Supporter
My mom did home-care for a while, and one of her cases was a 27wk preemie. He's now a happy and healthy 3 year old. Just don't give up hope.
You're an unbelievably strong woman to handle all of this. You (along with Carly and your family) are in my prayers.
If you ever need anything (a shoulder to cry on, someone to just listen) don't hesitate to PM me.
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fairytale007
replied on November 25th, 2007
Extremely eHealthy
Aw I'm so sorry to hear that she had such a rough day. God Bless the both of you! You're incredibly strong for fighting through this and so is she. I hope she continues to get better, and becomes the strong happy girl that's she is. Smile

You two are in my prayers. I wish nothing than the best for the both of you during this time.
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ThriftyGal
replied on November 25th, 2007
Extremely eHealthy
I had a hard time reading this, it's so tough to hear about a little innocent baby having such a hard time. I haven't been following things in the pregnancy forum, so I'm not exactly sure about your story or situation. I really wish you the best, and you and baby Carly are in my thoughts. You are really strong to be dealing with this, and I admire your courage, really.
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cln1812
replied on November 25th, 2007
Active User, very eHealthy
I will keep praying for Carly and for you. I'm sorry she is having such a rough time, but she sounds like a fighter. I'm praying she will pull through.
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Shanyan
replied on November 25th, 2007
Extremely eHealthy
I'm so sorry that Carly is not having a good day........she is such a little fighter, you must be so amazed by her strength. I will keep you, your family and Carly in my prayers.....you are going through a very difficult time right now and all we can do for you is let you know that we are all here for you and we are all praying for you.

You are a very strong women (Carly must get that from you) and I'm sure that your sweet little girl will make it through this difficult time.

Take care and know that we are all praying for you Smile
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sillyakchick
replied on November 25th, 2007
Extremely eHealthy
Keep positive, Rachel! You and Carly are in my thoughts. What a sweet little trooper!
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number game
replied on November 25th, 2007
Extremely eHealthy
Thank you all so much! I got to see her briefly today and she was resting very comfortably. The x-ray this morning still shows some fluid but I'm sure it will clear up soon enough with the antibiotics. They'll do another x-ray in the morning. For anyone who read the post concerning her discolored abdomen, well the NP said today that it's looking better! Thank GOD! Her O2 stats were great today. And the NP said her not having a BM for 2 days is no biggie right now seeing as how she has had atleast 3 or more so far and her belly isn't distended or hard. He basicly said nothing in....nothing out! ( she only gets 1ml of my milk every 12 hours, which is next to nothing)

I got to see her move her mouth and thrush out her tongue for the first time today! Amazing how something SO small can mean SO much!

I'll keep you guys updated!
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young Girl
replied on November 25th, 2007
Especially eHealthy
yay carly!!!!!!!!!!!!!!!! get well soon hun!
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number game
replied on November 25th, 2007
Extremely eHealthy
quick update. I just got off the phone with Monica... one of her primary nurses at night. She has increased her feedings to 1ml every 6 hours. And she has lost one of the ounces that she previously gained. Back down to 14 oz now. So maybe the more frequent feedings will help her gain!
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young Girl
replied on November 25th, 2007
Especially eHealthy
whooohooo!!!!!!! before you know it hun she will be comming home!
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amethyst eyes
replied on November 25th, 2007
Extremely eHealthy
I hope the frequent feedings help. If you ever need any one to talk to feel free to pm me. I may not have experience with your situations but an ear is an ear Smile
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oh_mommy
replied on November 26th, 2007
Supporter
im glad shes doing better! i'll be sure to be cheaking in on here to see how she is!

btw ur display pic is cute
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number game
replied on November 26th, 2007
Extremely eHealthy
Today's Update
Well to start things off I woke up this morning having the worst dreams ever about Carly. So needless to say I didn't start my day off too well. Although one highlight of the all so bad dream was when Carly ( quite a bit older) wrapped her arms around me and gave me a hug. Oh the emotion that I felt at that point in my drean was incredible. Just an absolute amazing feeling!
At around 9am I got a phone call from the NICU telling me that they had to turn Carly's vent up and put her on 100% oxygen. She also has pulmonary hypertension ( too much pressure in her lungs). They will now do an echo gram everyday to measure the pressure. And also daily lung x-rays to monitor her pneumonia. The Dr. said that the tiny little vessels in her lungs are not opening up enough, bringing in enough oxygen. So they wanted to put her on nitrous oxide to help open up those tiny vessels. They had to get my permission because it's not FDA approved for preemies ( but is FDA approved for term babies). So of course I said to do it. I want them to do all they can to help her. If this medication dosen't work they will try steriods. The only thing with the steriods is that it could cause mental problems down the road. So they gave her another blood transfusion today. This the 3rd one so far I think. She hasn't had one since last Monday though. Her hemoglobin was 9.5 and it's suppose to be 12.5. So the blood will bring that count back up hapefully. It will also help bring up her O2 sats. Today her O2 sats were all over the place. They wouldn't stabilize for nothing. Well at least not for very long periods anyways. Her O2 sats should be between 90%-95%. It went as low as 64% and as high as 100% today. The red blood cells carry oxygen and when your hemoglobin is down it's less blood cells to carry oxygen. So hopefully the blood she received today will help to improve her O2 sats soon. If it stays too low for too long her organs could suffer damage and if it stays too high for too long it could cause problems with her eyes. But the nurses there are very good about getting to her as soon as her alarm beeps. And try to increase O2 levels when it gets too low, or suction her lungs or mouth. Or if it gets too high for too long they were quick to turn the O2 down. They are great at taking care of her. I mentioned in my last update on her when I edited it that she was now getting 1ml of my breast milk every 6 hours instead of every 12 hours.
I got to visit for a LONG time today! I was there for nearly 6 hours! I was SO glad to be with her all day. She looked so good. It looks like her peach fuzz on her head is turning black or extreamly dark brown. You can't really tell in her pics though. Her skin is starting to turn a nice pink color and is no longer sticky feeling. I held her little hand and cuped her little head today. She's so sweet and innocent. She also got to have tummy time today. She looked so comfy on her belly. I laid my hand on her little back for a few seconds. I can't hold her so gental touching is the closest thing I have right now. It was so funny while I was there....her O2 sats would level out then Pattie (her nurse) would walk away to feed another baby then Carly's O2 sats would drop again. Pattie would come back to check on her then she's quickly level back out. I think Carly was jealous and wanted ALL of Pattie's attention all to herself! It was kinda funny. Her PawPaw Morton got to visit for about 30-40mins today too. He loves her so much! And daddy visited today too. He loves to look at her face. It's a shame it always has to be turned away from us (because of the ventilator). She had her eyes open alot today but wouldn't open them for any pics! What a stinker! Nurse Pattie was so nice to get her a little white shirt and a little pink hat even though it will be quite some time till she can wear it. Nurse Pattie did say I could put her in an outfit on Christmas Eve so I can take pics, so I'll be shopping soon for baby doll clothes. Seeing as how that's all that will fit her! LOL
Grandma Elliotte brought by some nice safari baby animal print fabric today to show me. Two different styles (prints) one for curtins that grandma Elliotte will sew for her room and the other fabric will cover the cushions on the glider in her room. She also got some nice safari animal canvas pics for the wall. It's all SO cute. Carly will love it!
Well that's it for today. Until next time....... I Love and Miss You Bunches Carly! xoxoxo Love Mom!
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