Nonstop, your symptoms are very familiar to me.
Since you posted your inquiry several years ago, I sincerely hope you have found resolution to them. With that in mind, it is for those individuals whose internet searches have brought them to this page that I am taking the time to write. I feel compelled to do so because, after 20+ years of dealing with the symptoms listed below and seeking an explanation for them, I finally have a diagnosis. Unfortunately, it is one that I had to discover myself through extensive research. Luckily, having a background in medicine (specifically, psychiatry), I have been fortunate enough to be able to communicate with my own doctors on a professional level. This is most significant because, as a medical professional, I can assure you that when a patient presents with what appears to be widely varied and transient symptoms (i.e. when symptoms involving more than two systems--such as the digestive, endocrine, musculoskeletal systems, etc.), we are trained to look for a psychological cause. I do believe this is a huge deterrent in proper diagnoses of conditions such as the one I now know I have. I believe my condition is much more common than current medical data supports�mainly because it absolutely affects every system in the body, and at varying rates and degrees over a prolonged period of time.
I�m listing (in lay-terms) the symptoms I've dealt with, more or less, since puberty. I do so hoping that if someone out there recognizes them as their own, it might facilitate proper diagnosis:
1. Chronic low blood pressure�sometimes extreme (i.e. 80/40)--causing Orthostatic Intolerance (OI), which led to a condition called Postural Orthostatic Tachycardia Syndrome (POTS)�resulting in dizziness when standing, blacking out, severe heart palpitations, etc.,
2. Periods of quick weight gain (5-10+ lbs in a week!), often followed by similarly quick weight loss months later,
3. Shortness of breath, feeling of inability to �catch� breath.
4. Depression--at times severe
5. Rapid mood swings/difficulty with mood regulation (lots of irritability!),
6. Debilitating fatigue and mental fogginess,
7. Short-term memory loss, confusion, inability to articulate thoughts,
8. Attention Deficit issues�at times severe,
9. Hypersensitivity in all sensory regions--particularly hearing, touch and a condition of constant photosensitivity,
10. Severe post-exercise exhaustion, excessive sweating
11. Hypersensitivity to cold, as well as significant intolerance of heat resulting in severe heat exhaustion,
12. Cycling between significant edema and dehydration; periods of constant bladder activity
13. Hormone fluctuations leading to menstrual irregularities, hot-flashes and other GYN-related symptoms
14. Cycles of impaired mucosal activity--generally resulting in periods of extremely dry mouth, eyes, nostrils, vagina, etc. These periods often lead to sores in my nose and has caused my teeth to become quite mobile,
15. Numbness and tingling in the extremities, occasional muscular dysfunction (which is especially troublesome because I power-lift and am accustomed to being quite strong)
16. Sudden bouts of blurred vision, �tunnel� vision, �floaters� in my vision, at times pulsating visual disturbances, eye socket pain, etc.
17. Intermittent periods of constant headache�often lasting for weeks at a time.
18. Additional alarming symptoms pertaining to the Central and Peripheral Nervous Systems (i.e. involuntary muscle spasms, intermittent �shooting� nerve pain, etc.)
19. Painful joints and back, swelling of joints
20. Frequent kidney and urinary tract infections (despite excellent hygiene)
21. Very easy and frequent bruising, periods where wounds heal slowly
22. Significant lymphatic impairment�calcification of numerous lymph nodes throughout the body
23. Persistent insomnia--generally untreatable despite numerous therapeutic approaches.
24. Shorter periods of extended sleep, profound drowsiness and persistent lethargy.
25. Constant digestive maladies such as: cycling between enzymic and, thus, digestive inefficiency (resulting in lots of gas, bloating, nausea, constipation, etc.) to extreme hyperactive GI activity
26. Issues with regulation of flora resulting in recurrent yeast infections of the mouth, scalp, vaginal region etc as well as the above-mentioned digestive issues, skin rashes, etc.
I�m sure I�m leaving things out but, as you can imagine, the impact on my general sense of wellness and functionality are profound. I have been screened for Lupus, Multiple Sclerosis, and various other conditions. I�ve seen myriad specialists over the years, despite a general unwillingness to seek treatment. Since symptoms are often transient and unpredictable, my own doctor and friends/peers in the medical community have, in conversation, often noted that in a normal patient evaluation, they would assume the individual�s symptoms were psycho- and somatogenic. It is only because of my general avoidance of treatment and medical background that I believe I�ve been taken seriously at all.