Is It Multiple Sclerosis? w/o lesions or spinal tap indicators ? Posted: 11-21-07 21:31pm
I was diagnosed 5 years ago with MS. I
have had multiple bouts of optic neuritis.
My physician says that I have 7 of the 9
indicators. I do not have brain lesions
& nothing showed up in the spinal tap
that was just recently done.
My neuro-ophthalmologist still believes
that I have MS. Is it possible to have a
form of MS without lesions or anything
showing up in the spinal tap? I am
stimied. Please help me.
Mollie Doodle
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jutzee
New User, Becoming EHEALTHy
Joined: 29 Jan 2008 Posts: 2
Diagnosed with ms in 1972 Posted: 01-29-08 12:51pm
Hi Mollie,
After being diagnosed with MS for all
these years, and having all the classic
symptoms, now I'm having to go through
more testings, because no lesions showed
up on the open mri that was taken
recently.
Did you get answers to your questions
about the lesions?
I'm new in here, but not new to ms.
miles of smiles......jutzee
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mollie doodle
New User, Becoming EHEALTHy
Joined: 21 Nov 2007 Posts: 8
jutzee Posted: 01-29-08 16:49pm
Yours is the first response that I have
had. I wish someone would answer both of
us! Is there a Doctor in the House?
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mollie doodle
New User, Becoming EHEALTHy
Joined: 21 Nov 2007 Posts: 8
Doctor help us Please. Posted: 01-29-08 16:53pm
Bumping this up for answers.
Mollie Doodle
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jutzee
New User, Becoming EHEALTHy
Joined: 29 Jan 2008 Posts: 2
No Lesions! Posted: 01-29-08 18:37pm
Hi Mollie;
Thanks for your reply. Here's something
interesting that I have read about some
others like you and me. After being on
Copaxone for about 6 years, I have
improved so much. I have also come
across others who have had MS for years,
and been on Copaxone, and their lesions
are also gone. Now their neuro is saying
the same thing as mine....We don't have
MS. I think that's so strange after all
these years. MS doesn't just disappear.
Anyways...we all feel so lost now.
miles of smiles....jutzee
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mollie doodle
New User, Becoming EHEALTHy
Joined: 21 Nov 2007 Posts: 8
No Lesions Either! Posted: 01-31-08 16:41pm
jutzee,
I have been an asthmatic all my life and
have taken so much prednisone that my
doctor says that could be the reason for
no lesions. I sure would like a second
opinion.
Smiling today,
Mollie
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EncoreKennel
New User, Becoming EHEALTHy
Joined: 02 Mar 2008 Posts: 1
MS without Lesions Posted: 03-02-08 17:22pm
Hi All
I am in the same situation. I was
diagnosed with MS in 1995 and have had all
the indications but no lesions on MRI.
Recently I began having severe pain in my
R hip and after 7 months of doctor visits
no solutions. A new MRI still shows no
lesions and now Social Security has
decided I am no longer disabled because I
do not have MS.
I am not able to work, but with the new
doctor stating no lesions equals no MS,
now I no longer am eligible for my SS
either. I have no peripheral vision,
severe weakness, fatigue, memory lapses,
and am in a lot of pain. I also have
decreased reflexes in some areas and hyper
reflexes in others.
I just wish someone would let me know what
it is, if it is not MS, that is the
disturbing part. Please let me know how
you all fair with your situtation and best
of luck.
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mollie doodle
New User, Becoming EHEALTHy
Joined: 21 Nov 2007 Posts: 8
Welcome to my world. Posted: 03-03-08 09:22am
I have been hoping that one of the on-line
Doctors would answer our questions. So
far, none has. I just wanted to tell you
that I understand how this affects you. It
is so disheartening to go from Doctor to
Doctor and still not have the answers.
Stay in touch. Maybe someone will see our
posts and help us to find an answer. My
best to you.
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tmthack3
New User, Becoming EHEALTHy
Joined: 10 May 2008 Posts: 5
Thanks: 1
Thanked:0
Im with ya! Posted: 05-10-08 22:44pm
My Mri showed several lesions and I have a
boat load of symptoms, yet my doctor still
will not officially dx me and start me on
treatment. I've heard the sooner the
better and now hearing this, I really want
treatment. What do I gotta do, beg?
This disease is so strange. Anyway, best
wishes to you all. Yes, I'm with Ya!
