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trajedi
Experienced User , Rather EHEALTHy
Joined: 21 Nov 2007 Posts: 61
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Posted: 12-31-07 16:39pm
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dyan quick question should one always
sleep on their back for tmj? I sleep on my
stomach maybe its making it worse...
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trajedi
Experienced User , Rather EHEALTHy
Joined: 21 Nov 2007 Posts: 61
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Posted: 12-31-07 16:51pm
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one other question you got me kind of
nervous when you said the jaw isn't
supposed to snap..mine snaps very very
loud you can hear it from rooms
away...does that mean i'm screwed
basically and will need surgery?
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4439 Location: post falls, id usa
Thanks: 102
Thanked:68
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Posted: 12-31-07 17:39pm
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No it doesnt mean that you will need
surgery, YOu should find someone that will
make you a splint to put some distance
between your teeth and to get the popping
under controll.
I loved sleeping on my stomach---Ive been
forbidden to--the best way to sleep is on
your side or on your back. On your stomach
you put pressure on your jaw as well as
put a turn in your neck. For me sleeping
on my stomach made things very much worse.
You might also want to look into getting a
good support pillow like memory foam. I
use chiroflow---you fill it with water and
it supports you where you need it as you
move.
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trajedi
Experienced User , Rather EHEALTHy
Joined: 21 Nov 2007 Posts: 61
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Posted: 12-31-07 20:29pm
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thanx again dyan for the advice...if the
jaw does chronically dislocated again and
again which is why i have the snapping
noises unless i manually recapture what is
one to do? I mean i read there are
arthroscopic surgeries to sew the joint in
or something so it doesn't keep doing that
but they are risky themselves...I am
hoping to somehow increase the blood
circulation to that area so it eventually
heals on its own however if that is
possible don't know if it is or
not...hopefully i can do it somehow...i am
still positive for me anyway the stomach
spasms are from the tmj b/c its very
evident in my case...
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4439 Location: post falls, id usa
Thanks: 102
Thanked:68
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Posted: 01-02-08 13:25pm
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I think weve already coverd that topic.
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trajedi
Experienced User , Rather EHEALTHy
Joined: 21 Nov 2007 Posts: 61
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Posted: 01-03-08 18:12pm
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i serouisly can't take this pain anymore
im gonna take anything now to get rid of
it...it was a 10/10 yesterday im not
really better at all...I took ativan
passionflower tea, fish oil msm,
glucosimine, and now im using a tdp minral
lamp...i can manage to get the pain to a
pretty low level with all of these things
but i don't like the neuralgic pain i have
still and it causes my stomach to spasm so
i take pepperment tea a lot too now which
is helping to a degree...I have crevices
in my tongue like i said my stomach isn't
good b/c of this...I can't stand living
like this everday i figure i might as well
do something to kill the pain with school
coming up my immune system is crap i need
to fix this and i guess if i have to
over-stimulate my brain a little with
ativan and these supplements..Basically i
am giving in i don't care anymore i need
everything i can get is what i am really
saying... its less harm to the body then
this terrible suffering...It feels like
bone on bone and my nerves are
pinched.....i might even consider an
anti-convulsant or tricyclic if i cant
reduce it further...i wish i could get
surgery to fix this but my father doesn't
want me to get it done b/c of all the
horror stories even tho there are
successful ones like you dyan...
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4439 Location: post falls, id usa
Thanks: 102
Thanked:68
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Posted: 01-04-08 13:20pm
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well go to the neuromuscular dentist--he
will help you--youve got to ask your dad
to reconsider waiting on it. you have to
be willing to do everything that you can
to get better--this is what is going to
help you.
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trajedi
Experienced User , Rather EHEALTHy
Joined: 21 Nov 2007 Posts: 61
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Posted: 01-05-08 22:50pm
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the first NMD said she couldn't help me
b/c my case was too complex...i have a
mild degenerated disc and she didn't want
to deal with my cross bite also and i had
to manually put it in place and it still
wasn't pain free..is that something
similar you have dyan and if it is were u
able to regenerate the disc with the NMD
or become pain free yet? The only thing
that makes sense is a permanent splint as
we went over before but that too is so
complex to get one for....im literally
missing bone or joint...i can get rid of
the inflammation but like i said the
problem is the pinched nerve im getting
super repetitive but so is this pain...

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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4439 Location: post falls, id usa
Thanks: 102
Thanked:68
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Posted: 01-06-08 16:14pm
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it might be that we need to find you a
more experience nmd--i will talk to my
doctor about you and see if we can figure
out something for you---pm me your zip
again and we will see what we can do--have
you seen a chiropractor? that would help
with the pinched nerve.
I had to have the surgery to correct my
problem--i had structural problems.
Sometimes you just have to bite the bullet
and get the surgery done. surgery is not a
bad thing. you have to think of the
possibility of things being a lot worse if
you dont do it and think of the releif
that you will have when you do have it.
yes i know it is scary but if you werent
scared then id be really worried.
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grassy
Experienced User , Rather EHEALTHy
Joined: 13 Jun 2007 Posts: 116 Location: northeast
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Hi There
Posted: 01-07-08 14:30pm
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Hi hi, i came in on the end of this, but i
read the first original post. I Agree
totally, i have looked into this some.
That TMJ and anxiety are related
physically to each other. Some how someway
it is true. It could be because the inner
ear is effected by tmj, i heard once that
the inner ear sends emotions to the brain,
and it could be it effects the sympathetic
nervous sysytem, which also controls
emotions. it's not really psycological, it
is physical causing the emotions to go
haywire. My jaw was severly dislocated
,the bone.... anyway i was totally out of
it, dilusional, screaming, you name it,
panic was horrific. waves and waves of
panic horror would come over me. I took
another route, and i would like to mention
it, altho you said yours was dislocated 6
years? a chiropracter popped my jaw bone
back in, that was IT? it did RE-DISLOCATED
for a few years off and on. it had to be
trained, because everything inside the jaw
was stretched out. but it stays in now
almost all the time. But i have to be
honest with anyone who trys this way to
go. It did hurt like hell. it was like
setting a broken leg. It was almost like
setting a dislocated shoulder. and it is
always important to get a very good
qualified doctor-chiro-pt-dentist. because
tmj is a very tough thing to fix. no
matter how you go. it takes time, and it
is very complicated. and a person has to
be patient. but when that chiro set my
face and it moved over(my bite) TWO inches
towards my nose. i knew i had found the
problem. but i went around like that for
2-3years. how out of it, i was... i can
not believe sometimes, when i look back.
That is why i joined groups to help or at
least tell someone i know... you are not
alone. love cindy
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4439 Location: post falls, id usa
Thanks: 102
Thanked:68
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Posted: 01-07-08 14:41pm
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hey i talked to the one dentits( the one i
sent you yesterday) they are waiting for
your call and said that they would see you
today.
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trajedi
Experienced User , Rather EHEALTHy
Joined: 21 Nov 2007 Posts: 61
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Posted: 01-08-08 16:36pm
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im not allowed to go the dentist b/c my
father won't pay again and i can't afford
to use my own money on it...This is a sad
state of affairs im just going to take
ativan and good supplements in hope that
one day this neuralgic pain dissapears...
 ,....I have school
coming up so hopefully i am able to go the
next 3-4 months till i decide something
else...My current regiemen is ativan
2mg/per day upped from 1mg a day...Fish
oil, MSM, GLucosimine, TDP Mineral Lamp,
Glucosimine and MSM cream, vitamin E,
L-glutamine, Aloe Vera....WIth all of the
above the inflammaiton is down but i am
left with neuralgic pain till i take
ativan...So i guess i will keep taking
these till i die...I'm gonna start
mega-dosing calcium and magesium now in
hopes that might allow me to reduce
ativan...Does anyone want to add any
supplement that might help with the
muscle/neuralgic pain?
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4439 Location: post falls, id usa
Thanks: 102
Thanked:68
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Posted: 01-08-08 18:08pm
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how old are you????----you might just have
to deal with this till you are out of
school and on your own. you know no matter
what you need to better your life. this
comes by concuring tmd--you cant
concentrate on it unless you do--you
basically are taking everything that you
can.
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trajedi
Experienced User , Rather EHEALTHy
Joined: 21 Nov 2007 Posts: 61
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Posted: 01-08-08 19:40pm
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im 23 but i feel like 100...no one
supports me on this they think its chronic
stress and that the pain won't ever go
down when im stress free b/c the pain is
the cause of the stress..this hasn't
worked b/c the pain is 10/10 without drugs
or supplements and i am just told to
meditate but that is stupid..i hate my
parents for not helping me more but they
took me to one doctor already and it
turned out to be a bust and the NMD didn't
help either she just said my case was too
complex b/c of my crossbite and i need
surgery...This is pointless. I feel like
the unlukiest person on the face of the
earth or better yet just cursed...B/c i
took drugs that incapacitated my sex drive
and was dying of pain for 6 years and i
have pain 24/7 still on top of having
inadequate hormones as well for my
age...this is the f*ked up situation i
have to deal with..
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trajedi
Experienced User , Rather EHEALTHy
Joined: 21 Nov 2007 Posts: 61
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Posted: 01-08-08 21:30pm
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sometimes i think this pain is trigeminal
neuragia...After all tmj is also neuralgic
in nature...I read for trigeminal
neuralgia they too take muscle relaxants
or have sugery to numb the nerve that is
causing all the trouble...I believe there
is one or 2 particular nerves doing this
to me and it won't shut off...Even tho my
joint snaps super loud when its recaptured
etc its the nerves that ultimately cause
the pain in the end...i can chew fine and
it doesn't cause anymore pain than there
already is so i am wondering whats up with
this...i think the nerves are always
compressed which is the root cause of the
pain..
I think i have the dull constant TN not
the erratic one you get from wind or
spontaneously btw...
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4439 Location: post falls, id usa
Thanks: 102
Thanked:68
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Posted: 01-08-08 22:17pm
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yeah ill get on it--let me warn you though
that you want a nmd to teach you how to
use the tens before you use it. ill get on
this asap.
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trajedi
Experienced User , Rather EHEALTHy
Joined: 21 Nov 2007 Posts: 61
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Posted: 01-09-08 18:04pm
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in desperation i got gabbapentin from a
psychiatrist...I read it helps those who
are in chronic pain and neuralgic pain...I
know this is early but it feels like its
already working after one 100mg dose...I
took it after an ativan which is a muscle
relaxer but maybe this is the answer i
have been looking for...the only negative
effect is my eye feels weird and i feel a
little spaced out but at least its better
than living in tons of pain for the time
being..
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4439 Location: post falls, id usa
Thanks: 102
Thanked:68
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Posted: 01-11-08 14:11pm
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Im sorry i dont mean to be
insensitive--but at 23 you should be able
to do this yourself.I was your age and i
paid for all my treatments and 3
surgeries.
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trajedi
Experienced User , Rather EHEALTHy
Joined: 21 Nov 2007 Posts: 61
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Posted: 01-11-08 16:21pm
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its not that i can't pay for it myself its
that i don't have much money left if i use
my savings and i am going to school about
to finish so i can make quite a bit of
money one day...Plus everytime i go to a
doctor i get critisized b/c i already went
to 2 doctors for this and neither of them
helped...If i had no pain i would be more
independent than most i can do a lot of
things on my own if i take a muscle
relaxer i feel like my old self but it
wears off quickly..
...Didn't know you had 3 surgeries done
tho?
I thought u had 1 only...Were the previous
2 unecessary btw? Are you almost 100%
healed yet...
Also do you still take muscle relaxants
would like to know more about your story i
read it but couldn't find all the details
i keep discovering new things about u...
I am calling the NMD you recommended
monday btw after school...
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4439 Location: post falls, id usa
Thanks: 102
Thanked:68
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Posted: 01-11-08 16:28pm
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excellent--he will help you. dont let the
doctors critisize you. Ive been to
multiple doctors. the previous surgeries
that i had didnt help. BUt we had to try
those more conservative surgeries before
becoming more agressive. One was merely to
have my wisdom teeth pulled--they said
that if that was done the jaw problem
would go away--yeah right---then i had an
arthrocentesis--waste of time
really---then I had the latest in april(Im
still healing but pain is 100% better--I
still hurt yes but its so much better than
before) I can say how i feel after a year
passes.
I just got off of a muscle relaxer and i
have a feeling that when i talk to the
surgeon Ill be back on it. I was taking
flexeril. It did ok but I noticed that I
started spasming befor the second dose. Um
where did you find my story--ill read it
and see if i can update it at all---Ive
been on here so long i simply dont
remember what ive told any one any more
lol. I just know that Im adicted to this
place lol
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