Hi, I read your post and sounds like me, exactly..
I'm unsure if u r still reading these or r off the patch, I've been on it for over 3 yrs now, and it caused me many problems, sweating, chills on 2nd night and 3rd day,, I get about 40 good hrs.. But I'm so tired out all the time from waking every hr, I believe I wake up when medication releases, it sucks, then up because I think it is not as strong and I start withdrawal, I know the med is still releasing but just not as much as 1st day, very very bad vicious cycle every 3 days , then I sometimes have to be some where and change it early and run out early, and I'm terrible by the time my month appt comes
I am on it for many reasons, all diffrent .. But 1/2came after I started the patch.. I lost my gall bladder have alot of imflamation in my stomach, I can't eat, always nausea ,, I take zofran for that among other stomach Meds. Which gi doc said to stop all, and said the pain Meds have to go..
I am terrified on June 18 I get my first reduction, I'm terrified and wonder if I can even have. My kids around to see this..
If I need or should be going to need a detox center? I was told to wean not to go to detox...
I am prescribed mariguanana pills, for cachexia , which my ins just stopped paying for,
I can't afford it 1400$ a month..I was 165 yrs ago
I went down to 92 pounds I had skin hanging everywhere.. The mariguanana helped my appetite/ and withdraw hot flashes and sweats and chills.. but I can feel all food go thru me and it hurts terribly, my stomach always sounds like a bad flu.. And acts like it.. I sometimes vomit.. Like i said the zofran helps but not always..Every day..ESP after food. I get constipated ,, or have runs , it is more constipation then any thing ..
It is very hard to eat.. I go days with out food, if I don't have the pills, I have a friend that recently been bringing me the thc pops and cookies and brownies,, I am up now to 105 I feel better I don't want to drop under 100
If this helps here is why thc
I had a pulmonary embolism so no hormones.... I have been off blood thinners for 2 1/2 yrs now
I have been on Meds for panic disorder none help tried all only Xanax works
So for13 yrs I've been on Xanax .. 2mg 4 times a day 120 a month
I had a horrid MRI bulged , dics pinched nerves, degenerative disc disease,, on my lower back
Some how I got in a accident 6 months ago I guess that car knocked my back in place
It went normal which is wonderful
But now permanent damage to my c1 in my neck, I don't feel it much.. Now but unsure when patch goes..
My neck already was a wreck and had radio frequency lesion sing done..
Had a annal fissure from prob constipation
Gallbladder disease
Anemia
Cachexia
Asthma
Bad immune get strep, or pneumonia every other month, bacterial infections constant in my stomach, h pylori or ur typical vaginal
Constantly running fevers,
Sore throat on and off mainly always even after I finish all Meds from strep
No mono been tested several times,
Most blood. Is great but low thyroid can't take medication for it at the moment due to my weight my doc says I will lose more..
I take the anemia vitamins2 a day
B12 injections very week
Vitamin D 50,000 units every week
180 percoset but I really only take about 50-80 month ...
Prescribed first trazadone then ambian for sleep
But I take 5 mg of melatonin I found while buying calcium in cvs for sleep
I have no energy at all I'm exhausted physically and mentally ,, I cant take the up very hr .. No more I slept once for 5 hrs could not believe it.. But I was tired again within 8 hrs of my day..
I want to be normal again,,,
It seems when I travel I'm better,, I sleep better, eat better, and not so concerned of Meds I do still have nerve pain bad in my legs.. And get sick,, end up home than and bed bound for a month after a trip, but to have that normal feeling of living life more productive and better by going out of town anywhere I think that it is well worth it even my panic disorder..
So if traveling makes me better in all ,, soon as I'm off the patch and percoset I am going to either get a new career , I took in a classes at a travel academy , learned alot cruise lines, ,, continental airlines Amadeus , u name it .. Car rentals, even.. I would be great in traveling around to inspect hotels management and hospitality, I would take just about any travel job, planes how ever I hate, that panic disorder gets badd..it was a fun class.. I even went for paramedic , got my EMT emergency medical tech.. at 18 yrs old..... Than court reporting..
I never in my life thought I would be like this now.. Meds. Sick.. It sucksim sick of hospitals doctors pills pharmacies ,,, they probably think oh here comes the walking medication twig that looks like I smoke crack..I believe crack might be easier to come off then fentanyl ? Wouldn't know.. I did detox from percs back in the day 30 mg Roxie and stadol,, I stopped cold turkey and Xanax that was a mistake never a benzodiazepine .. I seized up could not move my body at all my father carried me to the car and called the rehab facility they told him if I had a Xanax to give it to me and bring me back, he said f u and took me to a. Er where I met a doctor that helped me and pretty much doubled timed my Xanax temp.. And then weaned me back to my normal dose at that time.. This was in 2007,,
I stopped sub oxen immediate I actually got sick from it badly. Vomited panic attack badd was dizzy it worked in rehab but the one they prescribe out is diffrent I could not take it.. But had no problem staying off the opiates till I had my last child in may of 2009 I had been given 3 or 4 epi during labor than next day tubal,, I felt my whole tubal I woke up and the epi did not work , just like during labor,, any way that was the last straw , I could not walk and hurt so badd, I had no choice but to take a opiate if I wanted to be able to Hold and care for my newborn and 2 other children, and my husband just divorced me, I guess my addition went to the mall and shopped him to debt..
So I figured that percoset of 10/325 was worth be able to care for my baby..
It was ..
But that should of stopped oh yeah and that soma ,, I stopped soma 1 yr ago
After my gallbladder disease I got pneumonia , and was very ILL I thought I was going to die
My vision was blurred I could not understand nor think, was dehydrated , doctor gave me prescriptions I filled them and took them as prescribed..I never payed attention that one was a narcotic, I never heard of fentanyl even going thru EMT school.. I never finished paramedic or I would not be on here now.. On this page
It came my routine appt I made it , but not exact on 30th day and the fentanyl wore out.. Had I known that was the problem!!!
I got really sick I thought I relapsed w/ a real bad flu I went to er told them I just got over pneumonia and told them I was on normally antibiotics for that.. They gave me nausea and other stuff for a bad flu stayed almost a full day almost admitted , and was sent home..
Lasted a full week.. Went back to my doctor I was better , he said great, and wrote my normal scripts, plus fentanyl again I asked then why? He said w my gallbladder disease and stomach pain he wanted to lower my percocet so I would not be getting as much thru my stomach, objective lessen medications going thru my stomach.. Hoping to lessen my stomach pain, it sounded good.. At the time, had I known that caused my so called flu, or told my doctor about it, I was just embarrassed, telling him because I am sick so much,, I figured why mention a flu.
Well now I still have stomach pain,
But I also feel so absolutely horrible from this patch, right now my life is terrible..
It has such bad side effects ,, and caused more problems then anything
This is so long and alot of problems and yes I can say there r more medications I take
Creon
Dexilant
Aciphex
Oh and I grind my teeth really bad while I do sleep,, which causes bad migranes associated with light sensitive and wavy lines if driving or flashing lights, that happens right before my head hurts so i know to go home. And sleep it off, if I can..
I'm a complete mess with sleep a schedule..
This drug ruined me .. But I will get off this.. And I want to make sure this drug is known to everyone ... Stay away from it ... U will suffer....baddd I know brief what I'm about to go thru,
I figure probably 100 times more than that flu for 1 week
,, that was 25 mg at 30 days,,that was 01/2010 now I'm on 75 mcg 2 yrs 1/2
I hope my health gets better coming off every other doctor says it is the patch.. I just wonder if I should go in a detox center and they said cold turkey, and they will give me Xanax , as its prescribed, but nothing else..nothing for sleep or even methadone at the highest point of the detox,, I found that odd .. Cleveland clinc does that, and they r like #1 on a us hospital, that is where I went before, I could not wean off pills it was hard..I just wanted quick easy
But that benzodiazepine they should never done, I suffered greatly .. So unsure really how bad a opiate is? I hear benzodiazepine u can die from ,,opiate u can't ''well always nothing is 100%#" u always r at risk of death w/ fentanyl ..
Every doctor tells me it has to be weaned off?? But only 1 doctor will prescribe it,, to me. Messed up .. I want to scream at him, but I can't I want this as painless as possible,,but I don't want to withdraw every 25 mcg every month, and find out it would of be the same as going in a detox, 1 time . I want to be certain that the withdrawals r less weaned .. I don't need to detox 3 times badly or maybe not ? Any one know? How bad being weaned, or any thing that can releiave withdrawals from this, I am a walking pharmacy so .I may have something to help.. Does percoset help,, withdraw from fentanyl I know it's a opiate, however my doctor said if I fell withdrawals in between patch my percs would help?
Or is detox off 25 going to be the same as a rehab, just not being prolonged, and withdrawals 3 times or 4 I forgot 12 mcg?? I know understand alot of u have diffrent opinions, and similar Meds.and people r diff but I see alot of side effects that r all the same for everyone,
I went to a seminar in Tampa on opiate addition and found out after so long fentanyl will destroy ur receptors in ur brain and u will not be able to get any kind of pain relief, no pain Meds will work... I see people on this for 10 yrs.. I'm glad it works for y, it did at first for me,, it should of been weaned off after my gallbladder, he said well ur back is bad u may need surgery.. Had injections only..
Then car accident so no weaning then another procedure then every month something I am so glad that car accident was not my fault they prob. Would tell me I have no rt to drive w/ these Meds, but I don't drive much and only if I'm ok not sick or sleepy,
So any way I really believe I met my soul mate however he knows I am sick, but never told him all I was afraid to, still am so when he leaves back out of country for work I have to get off this and kinda fast, he treats us well and I've never been so happy when he comes home and he is next Sunday:-) till July he wanted me to go w/ him to London but I said I would think about it, I m afraid what if my pass port would get lost or I would lose a patch anything what would I do?would any of u travel out of country while being weaned off of fentanyl ?
I'm so afraid of letting him know how scared, and bad this has affected me.
I've only been with him since October , I guess when I'm off our relationship will be even better..but I have no help from family, only few good friends.. But they do work,, can't stay with me through this, if I needed.
I am very confused about so much.. I don't know what to do, and w/ my kids also..?? Any advise .. From anyone?
And I'm replying I just realized , I forgot that is how long and far in depth I got, sorry, alot of whatbu said caught my eye wanted to know how u r today?