Hi Everyone, I hope it is okay that I am joining your conversation. I think this is a really good forum and I have appreciated what you all have been sharing. I really was in particular touched everyone's oppenness and willingness to share their story. I work for a communications firm, and our client is involved in Crohn's research and awareness. I've been trying to pass along to them what I feel Crohn's patients want most and what they need. So I have been reading the forums and attempting to gain perspective. But I really feel your opinions are more valid than mine. Is there anything you would want me to share with them?
If you need to know what people with Crohn's really really want it would be relief from the pain the Crohn's Disease places in one's life. People want to know about the afflicition that is causing them pain.
Additionally, I would add the psychological aspect of living with Crohns. Depression is a common symptom of Crohn's and many people are not aware of that...they think that diarrhea and pain are the only things a person with Crohn's Disease lives with on a day to day basis.