Hello
It is nice to meet you I have Lupus and Huges Syndrome as well. I only found out In June of 2003. I am seeking information on my condition. I have found message boards to be very helpful in finding people with the same problems as I have. It makes me feel like I am not alone If any one has any helpful information please write

thank you
christy

Hi Christy,Thank-you for the reply..I know the frustration of it all and I know it's very frightning.However I refuse to believe it is a death sentence,because I know us lupies can live a normal life span.I do get very scared at times ...because of my kidney invovlment .I have RA which can be sooooooo painful .If you have any questions at all you are more then welcome to e-mail me at any time.Hoping you have a great...painfree day (((((Hugs))))) Diana

It is good to know that we are not alone lots of people like us suffer just as we do. I have RA as well. I have being going to the chirpractor and massage therapy it has help me some with the pain. I am doing some more research to find out about how diet affects this disease.
I hope you are doing well take care & GOD bless you

Yes we are not alone...I belong to another message board support group and have mad many...many friends It has truly made a huge difference in my life.I have a very supportive family but they could never really understand the daily problems the wolf can bring.let me know if you would like to be a part of our wonderful wolfpack,everyone is sooo nice and very helpful.It's a great place to just ask questions,cry,laugh...or just plain vent ...vent ...vent..lmao,talk to you after

hello today was a good day for me my trip to the chiropractor yesterday helped me alot. My joints feel much better I still hurt but not as much. I highly recommed this treatment it is a drug free way to find relief.
I hope you are doing well may GOD Bless You !!!

Christy

That is great news your joints are feeling better...AMEN!I hope this relief lasts for you I will pray that it does.Today I'm ok..just very fatigued,but certainly nothing new about that lol.Have you ever gone onto msn.com...then click on boards and chat then on messege boards.Just a great place to go.Hope you have a great night.Hugs Diana

I have never gone to MSN message boards but I will try it. I hope to see you there and I hope that today finds you feeling well
Take Care & God Bless
Christy

Hyeeee....my member name on there is chelsea444(named after my goddaughter Hope you are feeling good and painfree today.Looking forward to seeing you there.God Bless Diana

Hi, I have Lupus too. I was diagnosed in April'97. I also have epilepsy,asthma. I'm currently having a lot of back pain. I would like to know if there is anyone out there who is drawing or is seeking social security? I tried in '97 ,but was turned down. I need to re-apply, but I'm afraid of being turned down again! My medical bills are on the rise due to the problems I'm having due to my Lupus. Any advice?

Sharon

My name is Diana,I'm 33 and I have had problems since I was 13 but was just dx 2 yrs. ago with Lupus nephritis...Lupus anticogulant...and sle,ra
I'm on a lifetime disability...I'm in Canada...Where are you from?From my understanding It is alot harder in the states to get on it...I know tons of Lupies from the states that have a hard time getting on it.What they have had to do is reapply over and over and tell me that 3 times is a charm,some have had to get lawyers..but ultimately have won
their cases.Please don't give up,as we all know if anyone needs it ..it's us lupies.Goodluck with it,please keep posting.^_^ Diana

Hell-o,

My name is Deborah, I have been diagnosed with: lupus, Fibromyalgia, Raynaud's syndrome, and oesteoporosis. You are not alone in this battle. Romans 8:37...it says: in ALL these things WE are MORE than conquerors through him that (loves) us. We may be on different part of the base, but, we are fighting the same war. Knowing others may have what I have, and are STILL GOING FORTH, strengthens me, so I can go on fighting.

God Bless You and You and You!

Hi Deborah,
My name is Diana I'm 33 and have been dx with sle,lupus nephritis,and lupus anticogulant,which includes all the normal lupus stuff like RA.I've been sick for 20 yrs.but have just been dx for 2yrs.I had a real hard time at first...but have come to terms with it and I am fine with it...thanks to all the wonderful lupies I have met.I hqave met many friends on MSN's lupus support group,you are more then welcome to also come there,everyone is so nice and very helpful,it's just like one big family.God bless you:)Diana

Hi, sorry I somehow missed your reply until now. I've made an appointment with my rheu. Doc. For sept.-16. I'm going for broke! I've got to start pushing for my ss. I've looked up a lawyer in my area whose specialty is disability. I haven't called yet, but after I talk to my rheu. I'm going to make an appointment. I have been turned down once but I will keep trying! Thanks for the support

sharon,from ga.-usa

Hyee,
i'm glad you have your appt.Make sure you take a log(journal)with you that tells when and where you've been in pain and any other symptoms...And jot down all questions you need to ask,as we all know how far and in between these appts can be.Best of luck and please keep me posted on how you're doing and how your appt goes.If you ever want to talk,just leave a post and I will get back to you with my e-mail addy,or messenger id.Good thoughts are sent your way.Hugs diana

Hi sharon,

I did file for ssi back in 2001. I was denied because i'm not totally disabled all the time. They actually have a hand book on lupus alone. I never sent off for this book, or refiled, because I felt like I could make it a while longer. And I know there will come a time that I will need it more. I have sle with heart and lung involvement, I also have ra, with all my major joint involved and sojgrens syndrome. So I just felt like I could wait a while to get the ssi. I know things will get worse, and as long as I can pay my bills now I just don't want to go through the hassels of listening to people say that it's all in my mind! I heard that from so many docs before they finally diagnosed me I just don't think I can go through it again real soon. Hope this helps. Order the book if your going to file, it should help you with the paperwork.

Kris

How are you?I received this post I see it's for sharon,but somehow.Showed up in e-mail inbox hope your doing good and painfree.I have been suffering so much lately with the ra and migraines ugh!!!!!,but other then that i'm ok.Take care and talk to you soon.
Your canadian lupie friend diana