Pseudoarthrosis, Atrophy, Leg Length Discrepancy & Pain Posted: 11-07-07 12:28pm
my child of 3 has pseudoarthrosis and not
one doctor has helped i need a doctor that
can help us she suffers with pain i went
to 3 different orthopedic doctors, 1
neurologist, one says its the others
problem to put it simple so i am not sure
what kind of doctor to see for the
problems. also she has atrophy in her leg
and butt. also leg length discrepancy.
PLEAS HELP IM STUCK AT THIS TIME.
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rollar64
Experienced User , Rather EHEALTHy
Joined: 21 Nov 2006 Posts: 155 Location: melbourne
Thanks: 2
Thanked:0
Posted: 11-08-07 05:17am
I thought i had problems all i can say is
in cases of leg lenghth discrepancy
doctors often wait to see how a limb
developes before perfoming surgery but in
these cases they should closley observe
and treat when nesseccary. It sounds like
they want you to go away I think somtimes
doctors ignore patients when they are
unsure about what to do. I dont know what
country you come from but i think your
child needs and deserves some serious
medical attention sorry that i cant help
you
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expatient
Experienced User , Rather EHEALTHy
Joined: 24 Nov 2005 Posts: 128 Location: Finland
Posted: 11-08-07 05:33am
Where that pseudoarthrosis is? What kind
of an injury happened that caused it? At
least in my language it means a fracture
that has not healed.
In many cases leg lenghth discrepancy is
only functional.
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daveynickerson
New User, Becoming EHEALTHy
Joined: 07 Nov 2007 Posts: 10 Location: ,
Re: Pseudoarthrosis, Atrophy, Leg Length Discrepancy & P Posted: 11-08-07 09:10am
daveynickerson
wrote:
my child of 3 has
pseudoarthrosis and not one doctor has
helped i need a doctor that can help us
she suffers with pain i went to 3
different orthopedic doctors, 1
neurologist, one says its the others
problem to put it simple so i am not sure
what kind of doctor to see for the
problems. also she has atrophy in her leg
and butt. also leg length discrepancy.
PLEAS HELP IM STUCK AT THIS TIME.
The Pseudoarthrosis is in the L5,S1. As
far as i know she has never had an injury
to her back all of this started about a
few months after she started walking thats
when we noticed her limping the limp got
worse as time went on. Now she is not in
as much pain or she just learned to handle
it she only complains with pain about 3 or
4 times a week.
We are from the united states, oklahoma.
We have state ins.
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rollar64
Experienced User , Rather EHEALTHy
Joined: 21 Nov 2006 Posts: 155 Location: melbourne
Thanks: 2
Thanked:0
Posted: 11-08-07 09:48am
I think that doctors are reluctant to rush
in with this type of problem as a
intervention may interfere with a child's
development sometimes growth probs such as
true leg length discrepancy will resolve
by themselves i know that they can be very
cautious i do not know about
Pseudoarthrosis though however i think
that any good doctor would make sure she
is being closely monitored if this is not
the case i would search for someone who is
more interested. sometimes it is not in a
doctors vocabulary to say this is over my
head i don't want to deal with it, your
just supposed to read between the lines
and find someone who can deal with it
yourself
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expatient
Experienced User , Rather EHEALTHy
Joined: 24 Nov 2005 Posts: 128 Location: Finland
Posted: 11-08-07 10:09am
Take her to a doctor of osteopathian. Ask
to check her pelvis and sacroiliac joints.
Are the iliums in symmetrical positions?
She might suffer from ilium upslip that
osteopathians call "superior innominate
shear" that causes apparent leg
lengthening, problems to lumbar spine like
hypermobility, extended lordosis, etc. And
it is very common disorder but unkown to
(most) medical doctors.
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daveynickerson
New User, Becoming EHEALTHy
Joined: 07 Nov 2007 Posts: 10 Location: ,
Re: Pseudoarthrosis, Atrophy, Leg Length Discrepancy & P Posted: 11-08-07 11:23am
daveynickerson
wrote:
daveynickerson
wrote:
my child of 3 has
pseudoarthrosis and not one doctor has
helped i need a doctor that can help us
she suffers with pain i went to 3
different orthopedic doctors, 1
neurologist, one says its the others
problem to put it simple so i am not sure
what kind of doctor to see for the
problems. also she has atrophy in her leg
and butt. also leg length discrepancy.
PLEAS HELP IM STUCK AT THIS TIME.
The Pseudoarthrosis is in the L5,S1. As
far as i know she has never had an injury
to her back all of this started about a
few months after she started walking thats
when we noticed her limping the limp got
worse as time went on. Now she is not in
as much pain or she just learned to handle
it she only complains with pain about 3 or
4 times a week.
We are from the united states, oklahoma.
We have state
ins.
Thanks for the help i will try that i am
going to find some one to help no matter
how long it takes so if this dont work ill
try something new. I am trying to get her
in with the shriners in Tulsa Oklahoma but
it can take up to 6 to 12 weeks. she has
shoes she wears for her legs but no one
has helped with her back or with her
mussels not forming in her leg and butt
like it is in the other and im not sure
what causes that unless a nerve is being
affected some how.
Thanks for yalls input about her ant the
help you are giving anything else for me
to try ill be willing to do.
