How Contagious Is Enterobacter Aerogenes?

After five years of battling Lyme, herpes six (HHV-6), EB-V as well as other immune system disorders (ISD) by being treated with about every oral antibiotic that exists plus months of IV Ceftin and IV Rocephin, I now discover my core illness all along may be a "heavy" level of enterobacter aerogenes (EA) plus yeast infection. This was diagnosed by a swab of my always very sore throat. My infectious diseases (ID) doctor says for me to be on so many antibiotics for so long and to still have a "heavy" level of this bacteria in my body either means I am now almost totally resistant to all antibiotics or the bacteria has hidden in crushed bone that exists in my face (shattered by a dentist in 2004) that died but was, during one of many unsuccessful operations, apparently introduced to the surgery area and has now spread to all of my body. Why I have not been able to find a maxillofacial surgeon who will surgically remove the once infected dead bone and remaining osteomyelitis (live but infected dying bone) is another story that would probably sound more unbelievable than this does. I wish it was fiction.

I'm now told it is probably too late anyway for surgery and I should now concentrate on pain control which I began today after months of being stopped from receiving "level 2"(?) oxycodone pain medication meant only for terminally ill bone cancer patients. The reduction in pain is a God-send and has allowed me to write this message. The pain is much like bone cancer pain in type and severity but not caused by bone cancer. Still, it is extreme and never ending.

My ID doctor today me today, unless the new tests to be done in two weeks show an improvement, there is little remaining that can be done so I accept the inevitable.

My question, if anyone knows, is how infectious am I? Even my ID doctor gives me vague answers. Reading seems to tell me EA infection is much like HIV. Body fluids, etc. But not airborne nor from skin to skin touching. Except to a very limited number of people who are already very sick and have a severely compromised immune system (people like me). I avoid such people and am quarantined in a private room when hospitalized and treated the same as if I had HIV or worse.

None of my family has picked this up from and all remain healthy. I too was 100% healthy before my face was smashed and the bacteria introduced during later surgery. I now have a three month-old granddaughter who has become my sole reason for living. The pain is extreme and constant so she is my only reason for hanging on. I want her to be old enough to remember me before I am gone. But, ever since the diagnosis and being told it is an MRSA germ, I am terrified to hold her. I shower and scrub with special soap plus use Peridex mouth wash beforehand and literally hold my breath for minutes at a time while holding her. And always with gloves. Should I wear a surgical mask?

She was born 100% healthy and remains so. To pass this bacteria to her or to anyone would end my life. But I so much want to hold her and spend time with her. Please, does anyone know how infectious I am with a "heavy" level of EA throughout my body? "Heavy" is apparently a clinical term as the lab report listed it as such. Thank you in advance for anyone who knows more about this specific bacteria and how careful I must be as it slowly kills me. I've accepted the future but have not accepted taking the chance of hurting anyone else. Do I need to "quarantine" myself to a certain extent? If so, how much? As I say, my ID doctor just says "it is very hard to pass EA to someone else. EA is picked up in surgery but rarely any other way".

As an aside, I have been taken off all antibiotics for 30 days so I can be retested for everything. Hopefully, new tests will show most of my ISD's are now suppressed but I know it will show an even higher level of Enterobacter Aerogenes since it was detected while I was eight weeks into receiving Rocephin via IV to my heart and taking Avelox orally. Being off antibiotics for two weeks now I notice the illnesses are really ramping up and I may not make it to the 30 day point when I can resume IV antibiotics. I am now mostly bed-ridden and losing weight rapidly. It's taken me all day to type this. Apparently the various very strong antibiotics is what has been keeping me alive in this latter stage of this severe bacterial infection along with Lyme, HHV-6, EB-V and any other ISD I still have.

Thank you again for information anyone has who would be so kind as to share it with me.