I posted this in another forum. I was diagnosed with this and I have since been pain free. I can have sex and it doesnt hurt anymore. Please pm me if you have any questions. But I highly recommend that you find a doctor that knows what this is. I wish you the best.
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Vulvar Vestibulitis
So yep I have this. Finally an answer to my painful sex. I feel so relieved. I know whats wrong and most of all why.
According to the doc the birth control I have been taking for 5 years has robbed my body of estrogen and replaced it with progestrin. This causing my painful sex. The vestibule, which is where the hymen is, are glands that are designed to protect your vaginal opening during intercourse. These little glands allow the entry of a penis. The glands thrive on etrogen. The estrogen keeps this piece of skin strong and enables it to allow friction. Well since my body does not have enough estrogen the skin literally becomes raw when there is any kind of friction. So its like I have an open wound there. My body cannot defend itself from "things going inside." So the answer is I have to inject etrogen into myself for four weeks to build my levels up. I cant have sex for 4 weeks, not that I could anyway. In three months my body will be healed. I CANNOT take hormonal birth control again otherwise this will happen.
So theres my story and thats where I am at. I will probably get and IUD placed later. But my hubby and I finally have an answer and our sex life can come back. This has been so depressing for me. I felt less than a real women for so long. (I have had a history of painful sex since I started having sex). I almost lost hope.
There are like a hand full of doctors that actually know about this so it has been very difficult to find a doc. I have gone 5 years to all sorts of doctors and no one knew. There are only 2 docs in my entire state! There are some in CA and most are on the east coast. Man this has been a headache.
So just wanted to let you guys know about this, and maybe help the next women that has this .