Joined: 13 Dec 2003 Posts: 200 Location: Australia
Have I had Epilepsy since I was a baby? Posted: 10-26-07 21:08pm
hello. im 25yr old female started having
seizures at 21 i thought
i didnt have a clue why i all of a sudden
started having seizures. since i never
thought that i could have epilepsy. now i
have found out that i was having seizures
at 3 months, well i was going all stiff
and would make a noise for a few minutes
then go all floppy and sleep for hours my
mum told me this now, when i was learning
to walk i was older then usual age to
begin walking for a girl 14months i would
fall forwards on to my head for no reason
and get up not knowing what had happend.
fall out of bed every night some mornings
feel good enough to go to school, but my
parents thought that on most days that i
didnt want to go to school and that i just
wanted to stay home, because i always was
so tired most of the time. in my school
report cards through primary school the
teachers would always say that i would
stare and not answer questions that they
asked me and that i dont consentrate
enough and they would get frustrated
because i dont listen. i wasnt realising i
was just a child. but i guess i was ok
from then to teenage yrs when i started
feeling like my hands were big and i was
small and that things didnt seem right. my
parents said its just growing pains, when
i would cry because my hands and arches of
my feet would be sore in the day after
sleep, and i would always have mouth
ulcers, my parents would say its because
of orange juice. i was always sick very
pale with dark rings round my eyes.
looking back i now realise that something
was wrong but how was i to know that there
was something called epilepsy. i was just
a child. i would just feel strange alot
and things would feel familiar but i didnt
know why, seeing as i had never been to a
place that seemed familiar. just certain
smells would make me feel like that, esp
the very distinct smell of flowers. i just
thought that it must have been hayfever. i
suppose that head spins arent supposed to
last a while. but oh well, never mind. now
i still have seizures i am on lamictal and
epilim and it seems to be ok, i dont have
a seizure for 6 weeks well thats my best.
but i do still feel weird some days. esp
if i dont get enough sleep. my neurologist
said that i have a epilepsy syndrome? but
its hard to find out which one. they are
always giving me combinations of drugs for
lennox gastaunt syndrome, i think thats
what he thinks. as i have so many
different seizures. i was bad that i had
to ware a helmet before but i dont now
that i can go 6 weeks without one, just
odd sensations. and seizures if i stay up
too late. so does anyone think that it
sounds like i had epilepsy since a baby?
i just dont know what to think.
sorry for the big post.
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humaiz15
New User, Becoming EHEALTHy
Joined: 09 Nov 2007 Posts: 1
Im Epileptic Too!! Posted: 11-09-07 04:26am
Hi sami, Im humaiz. I suffer from partial
epileptic seizures. It has been very
difficult for me to accept this fact.
Im from england, I have received great
care and service however my seizures are
not yet under control. I have always been
dignosed with panic attacks when they are
actually partial seizures.
My condition is getting worse by the day.
Im finding it hard to continue with my
education and I can no longer drive.
I have been have these seizures whilst I
was a baby too, I htink yours is the same
but may a little difficult to recognise
and dignose.
email me and we will keep in touch as
where in the same boat!!!