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Conditions and Diseases > Vision and Eye Disorders Forum > Photophobia, Eye Pain, Trails (palinopsia), Dark Spots
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Q: Photophobia, Eye Pain, Trails (palinopsia), Dark Spots
asked by: winklemouse on October 24th, 2007
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39/f. Sudden onset in November, 2006...started seeing trails behind moving objects. By Feb., I developed severe photophobia with eye pain...which invariably led to a killer "brain freeze" headache above my brow. A couple months later, I noticed several dark spots and squiggles in my vision. They've been multiplying to the point they're really distracting in day to day life. By summer, I developed occasional flashes and streaks in my peripheral vision. All of the above mentioned complaints have continued 24/7 to this day. This week, I noticed the air seems electrified, or slightly shimmering...as if my sight is just TOO good. I feel like time is running out for my sight...or my sanity (I think I'm allergic to pain)....which led me to mad-crazed googling...which eventually led me here.

About my medical history....I've been checked by a neurologist, ophtalmologist, neuro-ophtalmologist, and back to a neurologist. All findings are normal including eye exam (20/20), eeg, and mri. Diagnosed with an autoimmune thyroid disease (post-partum thyroiditis and/or Hashimotos depending on which dr you ask) and, what I would describe as a life long "blah...whatever....I'm exhausted and just want to sleep" disorder. The latest neurologist thinks I have a degenerative autoimmune eye disease that effects the retina. And...she's pretty sure I have lyme disease. Another dr. is sure it's lead poisoning and/or lyme. Many new Dr. appts in the next couple of weeks with many more test results.
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hazel111
replied on September 30th, 2009
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32/f. I have the EXACT same symptoms. My vision problems started last year about the same time I was diagnosed with hypothyroidism (Aug 2008). My dr put me on Synthroid and I have been taking it every day since my diagnosis, being very careful not to miss any doses. Still, these visual disturbances haven't gone away. I also went to several doctors, including an ophthalmologist, neurologist, and endocroninologist. All tests (including blood tests, retinal exam and MRI of the brain) came back normal. No one could ever tell me what was causing these vision problems. And like you, they effect me everyday to the point where it's distracting and annoying. I've heard it can be caused by anything from low blood pressure, to anxiety, to migraines, to eye strain, to heart problems, to low iron, to lyme's disease. I wish I could get a definite answer.
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