Hi Dana;

I know of many individuals who noticed behavior changes in their children after the GF diet was introduced. The president of our local support group chapter noticed a tremendous change in her daughters right away, and she only had them tested because she, herself was positive. they did not have any big outward symptoms. Another lady I know has her autistic son on the GF diet., and he gets out of control when he has gluten. I know there is a strong body of research that suggests GF diets for ADD and Autism/Aspergers sufferers.

How is your son doing? Has he had the biopsy yet?

Hi, thanks for posting on my question. That's what I was thinking. My son has actually had a rough weekend. He had a stomach bug. I have a call into his GI because we are going in for the scope this Wed. I hope the GI will still want to go ahead and do it Wed. I'll let you know how it goes.

Best of luck, and please do keep us posted.

Dana;

How did it go last week? Was your son able to have the test?

Hi... thanks for checking on our results. The biopsy didn't confirm celiac. There was no villi damage noted. It did note inflammation, erosion, and ulceration. The dr. isn't totally convinced he doesn't have Celiac. He's afraid the damage is just starting because Colton's symptoms are only a few months old and that he missed it with the biopsy. Now, we are waiting on the genetic markers test and his latest antibody tests. I'll let you know when those come back.... should be next week. We are also going to the allergist tomorrow.

Ugh, that is so frustrating! I'm sorry they are putting you guys through the ringer like that. i hope you find some concrete answers for your son.

The other option is to just go Gluten Free and see if it makes him feel better. the erosions sound kinda scary! Have they looked into Crohn's disease? I am sorry I can't remember if you told me that.

I am going to be questioning about Crohn's Disease and my husband and I have decided after Colton's finished with all the antibiody tests we are going to try going GF. We are also going to an allergist today. Looking for answers! I just feel so strongly it's something he's eating causing his stomach issues along with his hyperactivity. I'll keep you posted. Thanks for all your ideas and keep them coming if you think of anything else!

When all this is said and done, I will have hundreds of little ideas for you. Also, if you shoot me a PM telling me where you are, then I can look for support groups in your area, helath food stores, etc.

Dana;

How is the quest for gluten free going?