Tmj Tinnitus, Ear Symptoms Very Severe! Posted: 10-18-07 14:31pm
Hello Everyone,
I've been recently diagnosed with TMJD
after a long and agonizing year of
suffering. Neurologists, Ear Specialists,
ERs, ENT specialists i've been too and
they had no idea about what
condition/disease i had until i started to
get limited jaw opening and at that stage
my disease became prevalent to myself and
everyone else. Life is precious, and you
only get one shot at it, its just sad to
see everything end so suddenly and
devastatingly.
Symptoms I suffer through, even to this
day:
- Migraines with Aura (1hour to 2 weeks of
severe, excruciating pain, and 60 minutes
of tunnel vision and dizziness)
- Vertigo (Dizziness) (can last up to 4
weeks non-stop)
- Tinnitus (Chirping, Hissing, Ringing,
Buzzing, and roaring) I even get
pulsatile tinnitus (i usually get 2-4 at
the same time)
- Ear Pain without infection
- Neck Pain (to the point i can't even
turn sideways to look left or right, or
bend over to pick something up, lieing
down only worsens it.)
- Shakiness (tremble for 1hour, usually
associated with severe vertigo)
- Floaters in the field of vision as well
as patterns that animate (distracting me
from everything i look at, this usually
goes away without 2weeks, then happens
again on a bad night)
- Eye Pain, (burning sensations)
- Itchy Ears
- Hyperacusis (Sensitivity to Sound)
Extremely sensitive, to the point i
couldn't even run a tap or open a door.
- Permanent Blurred Vision (now i need
glasses)
- Fluctuating Hearing Loss (I go
temporarily deaf for couple of seconds,
then hearing restores with a high pitched
tinnitus sound, 10x louder than my
ordinary tinnitus) this can happen 20+
times back to back.
- Hallucinations (I will hear random
beeping, sometimes music and other high
frequency based sounds will loop for 1-2
minutes constantly)
- Anxiety and High Blood Pressure
- Sore and Exhausted Jaw with Limited
opening
- Bad Neck Posture
- (There's more)
In 5 days i go receive treatment for my
problem (an orthodic to help the my jaw
relieve pitched nerves) It is said after
viewing my x-rays that 80% reduction can
be expected, but i have to visit a
chiropractor for spinal correctons and
possibly get braces for further treatment.
What should i realistically expect from
treatment?? he said its not guaranteed
that anything could resolve or reduce,
just likely too.
About Myself: I'm a male, i'm 19 years
(and was healthy growing up, not a single
health related issue). Sports and
weight-lifting are my life, the spirit of
competition defines who i am as a person,
and TMJD is disabling me from doing the
things i find enjoyment in the most. I'm
confined to a bed and a computer based on
the belief that any "activity" could
aggravate my situation and make it worse.
When i lay down, all i hear is Hissing
snakes, Chirping birds, Ringing, Buzzing
and Cricket noises. The sensitivity to
sound is restricting me from outdoors, or
going near anything that exerts even the
quiestest of sounds. Television's static
is amplified so loud i can hear it 30 ft
away, as a normal person couldn't hear it
at all. Some sounds are replaced by
cricket noises (as if those frequencies
we're somehow damaged)
TMJD has destroyed my life -- living each
day is an unbearable nightmare and suicide
becomes a friendly voice of reason. I just
wonder if anyone can tell me how
successful their treatments we're, my
problem is mainly muscular, he can't find
anything wrong with the bone structure or
disks. Has anyone ever been relieved of
just the ear symptoms??
-- I don't know how much longer i can live
with this disabling disease.
I look forward to any replies and i am
anticipating your input.
|
Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4346 Location: post falls, id usa
Thanks: 93
Thanked:63
Posted: 10-18-07 15:33pm
I know something that may help. I dont
have time now but tomorrow i will go more
into depth.
and i want to say that tmd did not ruin or
is not ruining your life. the only person
that can do that is you. you have tmd and
tmd doesnt have you. it can only ruin your
life if you let it.
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catswold
Supporter
Joined: 10 Oct 2005 Posts: 404 Location: Flint, Michigan
Posted: 10-18-07 19:05pm
Xanthuss,
I don't have an answer for me
unfortunately. You are so young to be so
disabled by TMJ; I'm so sorry. Have you
seen a Functional Jaw Orthotic or
Neuromuscular dentist? What treatments
have you tried (self-helps or medications,
etc.)? Do you wear a bite splint or tried
physical therapy? I have found that these
tend to be most helpful. Having bad neck
posture will also make a huge difference
and cause almost all the symptoms that you
mentioned. That's why a really good,
intensive physical therapy for both neck
and TMJ might help. Have you tried to
take an anti-depressant? Some work
miracles with TMJ pain. Relaxation
methods (hot tub, Yoga, massage, moist
heat around neck & on jaw) could help.
This is just my personal thoughts, but I
would wonder if the weight training may
have been too much for your neck. It's
probably silly of me to ask if they
checked out your neck and back thoroughly,
hmmm?
These are just some thoughts and ideas.
Remember that stress is the enemy of TMJ.
Take care and let us know how you are
doing. I'll be praying for you.
God bless...
Carol
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Xanthuss
New User, Becoming EHEALTHy
Joined: 18 Oct 2007 Posts: 32
Posted: 10-19-07 00:18am
Hello,
Thank you for all your kind words and
support, I appreciate it greatly,
I spoke to a neurologist (Most highly
regarded type of doctor out there) he said
after treatment he "highly" doubts there
will be any permanent effects, he says i
should be 90-100% cured. That just made me
so happy, a chance at life again would be
more than a miracle. As far as the TMJ
specialist goes; all of his opinons are
rather based on speculation of what could
happen, what could be. I don't like
putting my future on a gamble, or on a
probability based coin flip. He has
confidence that i will gain reduction
after an orthodic splint and chiropractor
based treatments are set in motion.
Although my TMJ symptoms are extremely
debilitating and as worse as TMJ can get,
i think it should be easily remedied, due
to muscles having the ability to heal.
Typically, TMJD is hardest to correct when
bones / disks are compromised and surgical
approachs are the only means for
correction. My doctor compares my TMJ to a
flesh-cut wound, basically when that
happens wounds will heal, but you can
never predict the outcome of the scar. My
chances are good and thats all that i can
really hope for.
- Xan
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Xanthuss
New User, Becoming EHEALTHy
Joined: 18 Oct 2007 Posts: 32
Posted: 10-19-07 00:24am
Also, I'm just wondering what should i do
to help promote healing? Sit with a stiff
posture, walk slowly and upright by
flexing my back? use a warm cloth on the
neck and face etc.... How should i sleep
on my side on my stomach on my back etc
etc.... Any suggestions would help greatly
and contribute to the effectiveness of my
overall recovery. I just want to get back
in the gym and push myself to the limit,
thats the hardest thing for me; the
downtime. I hate being confined to a
little room going blind / deaf, jaw muscle
spasms, pinched nerves etc. Unable to move
my neck, Lieing down doesn't not help
making sleep extremely difficult. However,
when i awake my symptoms are usually 80%
reduced for 10mins to 1hour before they
flare up again. (this could be suggestive
of natural healing as i brought the
concept my neuromuscular dentist's
attention)
Your thoughts help me alot, i await your
replies and feedback and support, it
really helps me get through this thing :O
|
Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4346 Location: post falls, id usa
Thanks: 93
Thanked:63
Posted: 10-19-07 12:40pm
sleep--and do exercises like pilates to
strengthen your core. this will help your
chiropractic adjustments to "stick" and
will help with over all help. Its good
that you go to nmd. you couldnt have gone
to a better type of doctor and yes the
other things that you mentioned are all
good.excep being too still. you have to
relax. and go slow. dont push
|
catswold
Supporter
Joined: 10 Oct 2005 Posts: 404 Location: Flint, Michigan
Posted: 10-19-07 13:10pm
Xan - check out nismat.org/ptcor/tmj for
some pictures, simple exercises and basic
info.
|
Xanthuss
New User, Becoming EHEALTHy
Joined: 18 Oct 2007 Posts: 32
Posted: 10-19-07 20:30pm
Well, sleeping is the most difficult of
things, when i lay down symptoms get
really bad, ringing gets really loud,
hearing goes in and out, and lastly the
room starts to spin (vertigo / dizziness)
at that point i'm adruptly out of bed
trying to walk around to reduce symptoms.
However, when i wake up after a long and
well rested night symptoms improve about
85-90% for a very brief time and my neck
gains its full mobility to move back and
forth, side to side etc. Basically, my
body is wanting to heal, but there is
something restricting it from intializing.
I'm hoping the orthodic will let me heal
better
|
grassy
Experienced User , Rather EHEALTHy
Joined: 13 Jun 2007 Posts: 116 Location: northeast
Hey Posted: 10-20-07 13:20pm
Hi, i'm cindy, and i have to answer this
post. When i first got injured, i had
Everything you had, right down to the
magnified hearing and the high blood
pressure, and EVERYTHING ELSE you
mentioned. I was even hallucinating, all
the ear things, Now listen can you trace
it back to SOMETHING that has happened.
recently.???? had you had dental work or a
trauma?????? did it happen playing sports.
whiplash? ANYTHING??? THINK THINK.....????
ok i am very happy to hear you are seeing
a chiropracter. because i think you need
one..... the neck can do all sorts of
weird things and so can a JAW. It can DO
these things to you. It did this to me and
it was HORRIBLE. and lots of times the two
go together, the neck and the jaw. In my
case my jaw was dislocated by a dentist,
and that dentist knocked off my noggin....
i have been seeing a chiropracter since.
Now if you go to the chiropracter and you
are sore..... Stay with it, because you
might be sore and that is normal. And be
patient, it might take awhile OK? then
maybe somehow you must get that jaw
checked also. you should get your neck
xrayed and jaw checked. Hope that helps!!
also hope you feel better.... i remember
being that SICK, and i feel really bad for
you. let me know if you can think OF how
it started, that will help us all, help
you. ok love cindy
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grassy
Experienced User , Rather EHEALTHy
Joined: 13 Jun 2007 Posts: 116 Location: northeast
One More Thing Posted: 10-20-07 13:38pm
Since you sound identical to my injury,
and as severe, i want to tell you one
more thing. A GOOD CHIROPRACTER, should be
able to feel your jaw move, like if you
move your mouth. a good chiropracter
should be able to feel those jaw bones by
your ears, and TELL IF YOUR JAW BONE IS
SET PROPERLY in your skull. mine can, feel
the back of my neck, hold my head and tell
if my jaw is ok or not. cindy
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Xanthuss
New User, Becoming EHEALTHy
Joined: 18 Oct 2007 Posts: 32
Posted: 10-20-07 14:04pm
Thanks cindy,
I really want your advice and imput since
you've been through this.
Is there any hope out there for me?? Just
today i was laying down, and i just
touched the side my face near the ear and
my hearing gave out, then returns
partially, and after about 20 minutes full
restoration except its extraordinarily
sensitive. Deaf by simply poking my face?
I also can only open my mouth only 20-25mm
also. I tried to call my Specialist, but
it was a saturday (today) and after i put
the phone down, i heard the dial tone of
the phone for 5 minutes. About 1 month
ago, i went to the ear specialist to do a
conductive hearing loss test with a tuning
fork, although no hearing was damaged or
lost, i heard the tuning fork for 2 hours
non-stop, and he said that is not atypical
for a person hyperacusis caused by TMJD
|
Xanthuss
New User, Becoming EHEALTHy
Joined: 18 Oct 2007 Posts: 32
Posted: 10-20-07 14:08pm
treatment is on tuesday and is going to
cost around $3000, what do i do in the
meantime?? when if i go deaf before then,
my whole quality of life is being gambled,
and so far i'm losing.
|
Xanthuss
New User, Becoming EHEALTHy
Joined: 18 Oct 2007 Posts: 32
Posted: 10-20-07 14:18pm
I please do WHATEVER you can to raise
awareness about TMJD, donate for a cure,
join organizations, free people from this
unrelenting, torturing, and disabling
disease / dysfunction -- it's unbearable,
not knowing when it will strike again, and
doctors are baffled when confronted by a
patient with the given symptoms. Why did
it take 10-12 months to diagnose me with
TMJ?? it got worse and worse everyday, why
did i have to wait months to see doctors??
-- My first complaint was Migraines,
second was dizziness, then after a few
weeks tinnnitus came, tinnitus only has so
many causes, why wasn't TMJ tested???
tinnitus was associated with episodes of
deafness, ear fullness then sensitivity to
sound then hallucinations etc etc... FREE
people from this crippling disease, it is
a 24/7 struggle, its even in my dreams, i
never get a break. Thanks for all your
support and care, i ask myself the same
question everyone else does, Why me? what
did i do to deserve this??
Last edited by Xanthuss on 10-20-07 14:21pm; edited 1 time in total
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grassy
Experienced User , Rather EHEALTHy
Joined: 13 Jun 2007 Posts: 116 Location: northeast
Yes You"ll Be Ok Posted: 10-20-07 14:19pm
Yes you ARE going to be ok!!!! i
promise!!!!!!!!!!!, There is hope!!! we
will all HELP you figure it out. Dyan on
the board is great and she knows alot
about it, and i know alot about bad necks,
you will be ok. Try to remain calm if you
can? DID anything happen to you?????? can
you think of anything???????? did this
come on suddenly? because you sound
severe, like i was exactly. I was so sick
i hardly remember it, but i was at the
dentists and they were WAY down the hall
and i could hear them all talking like
extra loud, and i remember my neighbor
sitting and tapping his hand on the table
and i heard it like i was BIONIC HEARING.
i was hallucinating, almost blinded, all
of a sudden my normal eyeglasses, i
couldnt see out of them. I was falling
over backwards, and i had strange vision,
dizzy dizzy, i was getting anxiety like
crazy, i had air trapped in my ears it was
a nightmare. it was a dislocated jaw and
an upper neck dislocation. PLEASE i want
you to see that chiropracter!!! in this
case i mean it. you will be ok!!! cindy
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Xanthuss
New User, Becoming EHEALTHy
Joined: 18 Oct 2007 Posts: 32
Posted: 10-20-07 14:22pm
Nothing, this all happened when i was
laying down on a couch, doctor said it was
caused by a genetic bad-bite, that was
degenerating muscle tissue, damaging
nerves ever since i was born. It just took
19 years to develop as bad as it has and
is.
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Xanthuss
New User, Becoming EHEALTHy
Joined: 18 Oct 2007 Posts: 32
Posted: 10-20-07 14:24pm
Hearing keeps fading in and out, when if
it goes out for longer than a minute? when
if i end up deaf?? this is nerve damage
we're talking about - 100% irreversible,
doctors will say otherwise just to keep
you calm because you're right there still
is a slight possibility i may improve, but
at this rate i dunno how i will make it 5
more days for treatment.
|
grassy
Experienced User , Rather EHEALTHy
Joined: 13 Jun 2007 Posts: 116 Location: northeast
No No No No You'll Be Ok. Posted: 10-20-07 14:26pm
You will be ok!!!!!, you are YOUNG and
You will recover, besides you have to stay
around and help us now. When you get
better, and you WILL!!!!you have to help
others!!!! are you all alone? do you have
anyone that can help you? like a friend?
maybe even have someone stay with you a
few days? cindy
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Xanthuss
New User, Becoming EHEALTHy
Joined: 18 Oct 2007 Posts: 32
Posted: 10-20-07 14:47pm
I'm not optimistic, im not pessimistic,
i'm realistic. WHat i live through now
will scar me for ever. Friends? No, I'm
confined to a little dark room with a
computer and my thoughts. I am unable to
sleep as it only worsens my condition. I
sleep anywhere i can, on the floor,
outside in the backyard, in the bathroom,
TMJD has destroyed every fiber of my soul.
Every second is pain, every second of my
life is torture, and i'm hanging on
because when i hug my mother and she cries
tears praying she can fix me but
"realistically" she can't. Every man
accepts his destiny, my destiny before i
leave this world is to raise awareness of
TMJD, i'm a proponent of how bad it can
be, it is a treatable disease, but not
curable. I'm not giving up unless it is
too late, i'm not living with disability
because all of this could've been
prevented if doctors would have tested me
for TMJ earlier. I refuse to live in
disability. I've been fighting this
disease tooth and nail everyday looking
outside at an undedicated world that
wouldn't even stop their car if i was just
to ask directions to a hospital at 4 am in
the morning because it gets that
UNBEARABLE.
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Xanthuss
New User, Becoming EHEALTHy
Joined: 18 Oct 2007 Posts: 32
Posted: 10-20-07 14:54pm
We're you ever relieved of your symptoms
cindy?? your words have aided me more than
any others, i really need your help.
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grassy
Experienced User , Rather EHEALTHy
Joined: 13 Jun 2007 Posts: 116 Location: northeast
You Will Be Ok Posted: 10-20-07 15:05pm
I know right now you dont think you ever
will feel better, but you will be ok. You
are young and healthy enough to recover.
You have to try really hard to stay calm,
and make it thru..it will get better. you
hold on till tuesday. your Mom is there
for you, your family, people on the boards
are there for you. you just hang in
there! its going to be ok. cindy
