*Constant drainage from somewhere?? into
throat and mouth
*Drainage tastes salty/sickly/like
chicken. Strange, I know
*Cheekbone enlargement
*Mandible looks pushed forward and shorter
on left side compared to right side
*End of mandible feels weird. Like
nothing I've ever felt before.
*Jaw joint feels like it's full of fluid
and I get fluid draining into throat and
mouth when I open and close my mouth for
extended periods of time.
*Ear feels "wet" inside and pops when I
talk
*Drainage pushing into mouth when I roll
my head in a circle and when I push my
chin to my shoulder
*Major brain fog, memory, concentration,
reflexes, facial expression and emotion
and communication problems when drainage
is excessive
*Pressure type pain in cheekbone and side
of nose
*Get sick to stomach, feel like I have
abdominal flu, sweat profusely and also
get the chills and shakes when drainage
kicks in from low/moderate to severe.
No dx thus for and it's been 11 years now.
I've seen several dentists, oral surgeons,
ents, my gp, orthos and a neurologist.
I've had an MRI done years ago, at least 5
CT scans of the head/sinus/tooth root
areas, chest xrays.
I've been on many antibiotics, even the
most powerful on the market, tried
gabapentin for possible nerve problems,
tried OTC sinus, allergy meds, ibuprofen,
muscle relaxers, a mouth guard, a bite
adjustment or two and nothing has put a
dent in ANY of the symptoms.
I was referred to Mayo by the ENT that
I've been working with for 2+ years now to
see a Neurologist. He said he thought I
could benefit from seeing 3 types of
specialists (oral surg, ENT or Neuro) He
chose neuro right after taking me off the
gabapentin....which did do anything for
me.
My questions are:
Has anyone with facial nerve problems
experienced any or all of these symptoms?
If so, which symptoms have you suffered
from?
Do you think I'm going to see the right
specialist at Mayo? I get the feeling
that I'm not.
When neurologists test for unknown
problems in the beginning, do they
typically start with an MRI and then a
consult? Because that is all they have me
listed as having done at Mayo. I'm
becoming nervous about going there because
I'm afraid they will shoo me off with no
answers just like everyone else has done
with me:(
Kristine
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Mollyhealth
New User, Becoming EHEALTHy
Joined: 08 Mar 2008 Posts: 1
Strange draining from jaw Posted: 03-08-08 17:56pm
Wow you are the first person or Doctor
that has ever heard of this. I have the
exact symptoms and been to all kinds of
specialists - I've had it for about 5
years. I remember a terrible pain in my
cheek and then it seemed to drain
continuously into my mouth ever since -
anti biotics will make it stop but then
comes back as soon as I stop taking it. I
think it might be
coming from my sinuses? This year I've
developed cervial spine dystonia on the
same side as this jaw thing. I've kind of
just gotten used to it - but I'm sure this
can't be good. Lately - I'm starting to
wonder if this might be a result of
environmental toxins? Thanks for posting -
I hope someone out there knows what it's
all about.
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818snoopy
New User, Becoming EHEALTHy
Joined: 17 Mar 2008 Posts: 1
Samething wish we could get help Posted: 03-17-08 20:28pm
I have had the samething going on since
October of 2007. I am very miserable. I
have also seen doctors and dentists oral
surgeons catscans and find nothing. dont
know what to do .you find yourself going
crazy over it
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LaurieT
New User, Becoming EHEALTHy
Joined: 10 Jun 2008 Posts: 3
same mystery problem Posted: 06-10-08 21:55pm
My mom has had this problem for a long
time. We have no answers, except maybe
allergies, but no relief. It seems to
come and go.
