Just found out a few weeks ago that I have this. It is pretty rare. I been handling massive heaches known as occupital headaches that come from the cranial nerve.
dizzyness as well. Feel free to email me. Notice you had posted last year. Guessing that they have remove this cyst by now. Like to know how did go.

Hey, it's nice to know you're not alone. No actually they haven't done anything with mine. I had more pressing issues; I'm 40 and had open heart surgery in Jan of this year. So I'm still dealing with they cysts in my head and also trouble with the surgery. What are the doctors telling you about yours. I never followed up with a specialist, I'm actually waiting for my disability. Hope you are doing o.k. feel free to email anytime also.

Sincerely,
Lisa

I HAVE THORNWALDT CYST AND SUSPECT INFECTION. HAD WEIRD INFECTED SALIVA GLANDS AND COMPLICATION WITH HOSHIMOTOES THYROIDITIS WHEN PARATHYROID SWELLED. NOTHING DONE WITH THIS. SEEMS EVERYONE IS STUMPED.

curious casper,
I too have just found out I have a Thornwaldt cyst. I was curious about you because I too have Hashimotos thyroiditis! Both diseases appear to be quite uncommon.
Please let me know your treatment. I go to see a neurologist this next Tues. I also have 2 herniated discs in my neck. All of this is causing major headaches, neck pain, dizziness, and my right ear is plugged all the time. If I turn my head to the left, my ear will briefly open up. Miserable, I swear.
grandma offive

I have an 8yr old son who keeps sinus infections and is on a host of allergy meds/shots. Last year no hints of a cyst. Friday new CT shows he has one too! Facing tonsil,adenoids and cyst removal. My 15 yr old has an arachoid cyst, found it at age 9.

yes, I too have a tornwalt cyst maybe two im not real sure, thought though it was like a retention cyst. i also have a traumatic brain injury and, my new neurologist suspects like multiple concussion.. i started seeing her because umm i am having severe dizziness and well possible my sezuires are coming back and my vission is getting worse

I also have a thornwaldt cyst as well as hashimotos thyroiditis with nodules. I am in so much pain with chronic sinus infections, ear pain, really bad breath .....all the symptoms. I just found out and will be seeing a Dr this week.

What do they do for this cyst because I think it is the cause of my ear and sinus problems.

I had adenoidectomy as a small child. Then in my teen age, I used to have terrible migraines, dizziness, lividness, and fainting that were for a long time attributed to being that age and trying to skip school. Finally, after 5-6 years, an ORL and team of other MDs took me seriously, and 2 MRIs later the Thornwald cysts, or abscesses rather in my case, were found (barely). I had surgery in 1997, where they "marsupializated" the abscesses; eventually, at a post-op checkup, the ORL pulled them (or at least some of them) out.
For a while now I've had post-nasal drip, and for the past few months daily migraines (with the whole sensitivity to light/noise and nausea thing) and dizziness, so I wonder if it's the same thing again.

I just found that I had a Thornwaldt cyst ,about 8 weeks ago . I just had it removed yesterday . I decided if it din't belong there then I did not want it . I have lots of medical problems and this was an easy fix . They went in through my nose . I have a slight sore throat , but that is it . Good bye and good riddings to this nasty little cyst .

How did the doctor diagnose the Thornwald cyst? Was there any drainage into your throat before the diagnosis? My doctor thinks I might have a Thornwald cyst and wants to remove it. All he did was use an endoscope to see it. I'm thinking about a second opinion.

I too have a Tornwaldt cyst. I was having problems with dizziness on & off and low grade fevers which they found no cause. Several months later I got what I thought was a sinus infection and sore throat. Two weeks later I had pus discharge from my throat. The ENT found the cyst with the endoscope. I sought a second opinion. It only needs to be removed if it gets infected again. I am going to see the ENT Thursday because it looks like it's infected again. I still need a good doctor in the Chicago IL area or at one of the best hospitals (johns hopkins or mayo clinic). I have multiple health issues (clot in vein in brain and hole in heart) that make surgery high risk. The doctors don't seem too concerned because I am only 39. But I want someone who is as concerned as I am.

My 2 year old son had an mri for seziues and while it ca back fine, he has 2 1mm cyst, likely representing incindental tornwaldts cyst. Does any one here have more than one? We have an appt with hisent in the am but I wish there was more info on the web!

Just found out bout thornwald cysts on mri report, have had thyroidectomy from hoshimoto thyroid disease, plus neck injury.... neuro consult for spinal surgery Oct. 1st.... looking for info on this I get earinfection constantly and ringing in my ears constantly, plus all the fun of spinal stenosis... so any info would be great ... ty

hrgirlie

just found out from an MRI that I have I have a Tornwaldt cyst too. I also have Hashimoto's thyroiditis.
Interesting - maybe people with autoimmune conditions are
just more susceptible to getting these cysts...

found out few months ago i had thornwald cyst after mri scan for ringing in my ear they told me it was harmless and no further treatment needed but still having ringing in ear and constant sore heads after reading this page will be going back to see doctor

does anyone know of a Dr that will remove the cyst. I found out I have a thornwald cyst and it is starting to interfere with my life do to headachs and being dizzy all the time